CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby uprightdoc » Thu Jul 19, 2012 9:09 am

The study is in Latham, New York, just outside the state capital city of Albany.
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Re: CCSVI and CCVBP

Postby dania » Thu Jul 19, 2012 9:16 am

Great. I am coming!!!!!!!!!!!!!!!!!!!
I can be driven there. Can you give me all the details please?
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Re: CCSVI and CCVBP

Postby uprightdoc » Thu Jul 19, 2012 9:43 am

I sent you a PM with contact information. I will contact Dr. Rosa as well and let him know you will be contacting him.
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Re: CCSVI and CCVBP

Postby dania » Thu Jul 19, 2012 9:59 am

uprightdoc wrote:I sent you a PM with contact information. I will contact Dr. Rosa as well and let him know you will be contacting him.

Thank you. Called the #. Left a message. Could not make out their message. It was inaudible.
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Re: CCSVI and CCVBP

Postby uprightdoc » Thu Jul 19, 2012 10:06 am

I just heard from Dr. Rosa. They may have been closed for lunch. Try again.
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Re: CCSVI and CCVBP

Postby dania » Thu Jul 19, 2012 10:11 am

uprightdoc wrote:I just heard from Dr. Rosa. They may have been closed for lunch. Try again.

OK
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Re: CCSVI and CCVBP

Postby uprightdoc » Thu Jul 19, 2012 11:35 am

Terrific. I am happy to hear you are in the study.
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Re: CCSVI and CCVBP

Postby blossom » Thu Jul 19, 2012 12:54 pm

great news dania, i couldn't make it this time but i am so excited for you and the others and all those that were in the previous study. i truly believe this is making history--not just for ms but other disorders. and i'm so thankful that it is finally getting in perspective. as i've always felt the spinal involvement was a big part of this mess someone named ms.

and thanks to dr. flanagan being here at tims to take our hand and walk us through so many things. no matter which way the cards fall for me "of course i'm hopeing for the better" i'll always be grateful. he is the "only" dr. in 20 yrs. that made sence to me. especially in my particular case.

have a great trip dania!
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Re: CCSVI and CCVBP

Postby uprightdoc » Thu Jul 19, 2012 2:57 pm

Alright. Who left the empty can of Bud down by the river after I said it wasn't polluted by me? I know it wasn't you Blossom because it was a Lite.
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Re: CCSVI and CCVBP

Postby NZer1 » Thu Jul 19, 2012 3:07 pm

I guess you're happier when they are full?
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Re: CCSVI and CCVBP

Postby blossom » Thu Jul 19, 2012 3:51 pm

you got that right dr. flanagan. you got me pegged. no lite for me. if i'm gonna have a beer it has to be the real thing. do what it's supposed to do. i have found a beer no sugar no salt "straubs" comes in dark green glass bottle that isn't bad. of course good "home brew" is hard to beat. it's not often anymore that i indulge a little. -------
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Re: CCSVI and CCVBP

Postby uprightdoc » Fri Jul 20, 2012 3:11 am

I would prefer a real one as Blossom put it. As it was I had to breast stroke a fair distance upstream with the empty can in my hand. I tried to swim closer to the shore and slipped behind some rock outcroppings to try to get out of the current but it didn't help much. We had long needed rain a couple days ago and the river was back to itself. It takes a couple of days for the rain that falls on the moutains to recharge the river. The water was cooler and deeper and the current was much stronger.
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Re: CCSVI and CCVBP

Postby NZer1 » Fri Jul 20, 2012 10:40 pm

Post on 'CCSVI in MS' of interest Dr F,
https://www.facebook.com/notes/ccsvi-in ... 3520372211
My comment to Joan,
"Hi Joan I would humbly suggest you make contact with Dr Flanagan on this. The Fonar Upright MRI study showing CSF flow decreases is supporting the combined findings of this article and the work of the Dr Rosa study. I think the Aliiance is looking at this as well.
The work that Dr. Flanagan has done on Hydrocephalus is far ahead of the angle that this study is working on yet the two will meet as the work progresses. Nigel"

Regards Nigel
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Jul 21, 2012 5:30 am

It has been suspected for decades that obstruction to venous outflow can effect CSF flow and cause normal pressure hydrocephalus. I found that pearl of wisdom in a textbook "Neurology" by Adams and Victor. I mention it in my book. It goes back to the early part of my investigation. The problem according to Adams is that blockages were never found. But researchers only looked for blockages inside the cranial vault and stopped at the dural sinuses. The most likely place for obstructions to occur, however, is outside the vault in the craniocervical junction.

Autoimmune and inflammatory responses in MS are most likely consequences of chronic ischemia, edema and hydrocephalus not the cause of it. In many cases the supratentorial (above the posterior fossa), periventricular and perivenular lesion locations seen in MS are unrelated to the signs and symptoms seen, which are often related to nerves in the posterior fossa (infratentorial).

The link below is to a study showing excess sodium and calcium in axons of the lower brain in MS patients. In my opinion, these are most likely signs of chronic ischemia and the glutamate cascade.

http://brain.oxfordjournals.org/content/early/2010/01/27/brain.awp334.full
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Re: CCSVI and CCVBP

Postby NZer1 » Sun Jul 22, 2012 2:34 am

I saw this and couldn't make sense of the logic, any clues please,
http://www.ncbi.nlm.nih.gov/pmc/article ... ool=pubmed
Paradigm shift in hydrocephalus research in legacy of Dandy’s pioneering work: rationale for third ventriculostomy in communicating hydrocephalus
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