uprightdoc wrote:Thanks for the links Dania but patients shouldn't take it as an endorsement. Patients with MS and other neurodegenerative conditions should be very careful in choosing a professional to work on the upper cervical spine. You will notice on the Atlantotec website that one of the contraindications of an upper cervical adjustment could be a Chiari malformation. Many patients with MS and other neurodegenerative conditions have Chiari malformations. Doctors need to be fully informed and well trained to handle neurodegenerative diseases and complex cases.
Liberation wrote:...I just sent you recently an email with a picture taken during a posture examination. It looks to me that I have a scoliosis. I am just wondering if this problem might be connected to upper cervical disalignements. Do you think this is the case? What kind of treatment would you suggest in this case? Is it enough to focus only on upper cervical treatment, like toggle recoil or a different approach should be taken?
irishmum wrote:...I have been following this thread and indeed others regarding the atlas misalignment. I sustained whiplash in a car accident 2001and I had first symptoms in 2002, very minor nothing showed on mri except spondylosis in neck. Then seven years later had more severe relapse and mri showed a couple of lesions nero said it was cis but prescribed copaxone which I have been taking. I feel I am in gradual decline though still mobile, I sufer neuropathic pain and neck pain daily. My neck makes cracking noises when I turn it sometimes especially in the evening. I have always noticed in pictures of myself that my left shoulder is lower and my left leg is longer in jeans. I was interested in ccsvi as my brother was diagnosed with Hughes syndrome and when examined was found to be missing veins in his abdominal area and had collaterals that were doing the work but not as efficiently so that lead to blood cloths in each leg for him. I have been tested for Hughes but they came back negative. Does Doctor Rosa take paying patients at the moment for atlas realignment? Are there any people in Britain using the AO for treatment that you know of?...
Sharon wrote:...You are doing a terrific job answering everyone's questions ...it is quite an undertaking to keep the Internet hype accurate and balanced- thanks for supporting the TIMS community.
I enjoyed meeting you at Dr. Rosa's last week and was excited to observe the study as well as talk with some of the patients. The work being done by Dr. Rosa (based on your hypothosis) will, I hope, continue to answer the many questions surrounding neuro degenerative disease.
I know that you have cautioned readers but I would like to remind everyone that Dr. Rosa is the only AO doctor in the United States who is using image guided treatment of the Atlas....until the study is completed and until more doctors are trained, patients should be very cautious about seeking treatment...
dania wrote:Having been treated by Dr Rosa and doing research, I am now, more aware how much posture plays a part in all of this. I am making a conscious effort to sit up straight. I am getting stronger. I can do things I was not able to do before being treated. The woman who comes 3 times a week to help me has noticed the improvements and is amazed. Also, thinking back, I did incredibly well for the first 17 years after being diagnosed, and I started to deteriorate when I stopped going to the gym. I use to lift weights 5-7 times a week. I was able to leg press over 400lbs. Heavy weight lifting and I never felt better when I did this. So I now wonder if working out, kept my body better aligned?
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