CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby blossom » Fri Aug 31, 2012 4:48 pm

hi costum, glad to hear from you and you are doing so well.
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Re: CCSVI and CCVBP

Postby costumenastional » Fri Aug 31, 2012 5:06 pm

Hi!!! Nice to hear from you too my friend. I m always around you know. It's an addiction ;)
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Sep 01, 2012 12:26 am

Hello CN,
It's nice to hear from you and that you are back to exercising and lifting weights. The type and source of amino acids and protein used by body builders is a complex topic too lengthy to go into here. The chicken breast, beef, egg, yogurt and tuna you mention are good dietary sources as is the whey protein. The best type of cooking for protein foods depends on the food you are using. I mostly grill in the warm weather. During the cold season I prefer to braise, saute and steam. I use glazed cast iron cookware for braising, a stainless steel wok to saute and bamboo baskets to steam. Occassionally I roast certain meats in an unglazed clay pot. The link below is to a good website regarding proper protein selection, use and cooking methods for body builders.

http://www.bodybuilding.com/fun/protein3.htm
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Sep 01, 2012 3:49 am

Since CN just stopped by it's a good time to point out that he was successfully treated by Dr. Michael Koontz. Dr. Koontz uses the Kale Brainstem Method of upper cervical correction. The Kale Brainstem Method is closer to the method I was taught. It uses a knee chest table for the setup and a toggle recoil type thrust to make the correction. In addition to treating CN, Dr. Koontz also posted, awhile back on this thread, a post surgical decompression Chiari case he successfully treated. In other words, the patient had the posterior arch of atlas surgically removed before she saw Dr. Koontz for upper cervical correction. Removing the posterior arch or atlas significantly weakens the bone. Prior to that, I think it was Nigel that posted the link to a Youtube presentation by Dr. Marshall Dickholtz regarding a Chiari case he successfully treated using NUCCA upper cervical. I have cases in my files somewhere by chiropractors who successfully used a craniosacral approach. My own approach is a hybrid upper cervical craniosacral approach. The key difference in all upper cervical methods is specific analysis of the strain. Dr. Rosa is refining the Atlas Orthogoanal method of analysis by incorporating MRI of the craniocervical junction. The transverse slices are terrific for imaging malrotation of C1 and counter rotation of C2 in certain cases. Typically upper cervical chiropractors have used Base Posterior, Vertex and Open Mouth Odontoid views to see rotation but it is much more difficult to see it on x-rays compared to MRI. The problem with most craniosacral methods is that they do not clearly identify the strain. The strains they describe are subjective and cannot be shown on x-rays or MRI.
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Re: CCSVI and CCVBP

Postby costumenastional » Sat Sep 01, 2012 12:11 pm

Thanks for the tips Doctor!!!
Sounds like I 'm on the right track. Guess from which site I was informed :)
Thanks again. I 'll send you an email regarding my process sooner than later I hope.
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Sep 01, 2012 1:24 pm

Your welcome. The diet and workout changes will make a big difference. Keep me informed. I am a big fan of George Pilatu. His contributions to body building were unique in that he focused on control and conditioning of core muscles. Among other things, he was inspired by his father who was a champion Greek gymnast, as well as yoga and martial arts exercises.
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Re: CCSVI and CCVBP

Postby NZer1 » Sat Sep 01, 2012 3:27 pm

Hi all, Hi CN good to hear more positives!
Dr F the adjustments and analysis of misalignments gets my brain thinking.
Many times I have spoken about the art or skill to re-align atlas in particular. It is human to want a one time fix.
I hear from Chiropractors all around the Globe say that they don't have a one treatment fix and that the body to some degree aligns itself after the 'treatment'.
This is what I struggle with! My mind being trained from an engineering/mechanical/electrical back ground is challenged to grasp the concept of re-aligning a bone that is connected my tendons, etc.

Is there a 'natural' position that the body repeatedly self aligns to?

If there is damage done in for instance a whiplash or sports injury, does the 'natural' position become difficult to achieve? I imagine that the strain/stretch/tearing effects that can occur would make return to a natural 'best' position and also maintaining that position a lottery?

I haven't yet received the written assessment of my vein flows although I was told I have minor problems that would not be viewed as requiring PTA. The blood tests indicate that there is a CPn infection. So going on the Antibiotic protocol is the next step, once I convince the NZ Medical World that using the treatment off label is the best approach going by the reports and research I will provide.
What I am well aware of is that alignment is a major part of my problems symptomatically. Because I am focused on my well-being I am analytical of what is happening in my body. I can tell I have a curve to the left of my mid spine, and that my neck at Atlas through to C3 is rotated and tilted at the top of my head to my right. My thoracic spine is curved forward and my head is forward with a straight neck. Maintaining upper posture is very difficult and can only be held briefly before fatigue slumps me into a forward curving posture that effects depth of breathing. And so on, I have analysed it to death so to say.
With the contact of Joe Ierano in Australia by email only I am even more aware that the treatment of the issues I/we all have is VERY SPECIALIST dependant.
And saying that if people/we go to other Chiro's or the general Medical System equivalents we will report outcomes that are not true to your findings that you are posting here and on your Blogs.

I am thinking that there needs to be, as you are doing now, a clear point of difference stated when talking about what you and your group are doing. The difference is very important when we compare outcomes in treatments that are operator dependant on specialist one off MRI equipment.
There will be unqualified people who want to feed off the knowledge you are finding without the skill to provide equal outcomes.

I'll stop now I haven't recovered brain power from the journey to Aus yet.

Regards,
Nigel
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Re: CCSVI and CCVBP

Postby costumenastional » Sat Sep 01, 2012 3:49 pm

uprightdoc wrote:Your welcome. The diet and workout changes will make a big difference. Keep me informed. I am a big fan of George Pilatu. His contributions to body building were unique in that he focused on control and conditioning of core muscles. Among other things, he was inspired by his father who was a champion Greek gymnast, as well as yoga and martial arts exercises.


Hello Nigel. Always glad to hear from you mate!

I ll keep you in the loop whatsoever Michael. This is gonna be a hell of a ride, trust me. I suspect that diet will be a catalytic element in the whole process indeed. Without sugar, sodas and bread I ve already seen spectacular changes so...
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Re: CCSVI and CCVBP

Postby uprightdoc » Sun Sep 02, 2012 3:01 am

NZer1 wrote:...Many times I have spoken about the art or skill to re-align atlas in particular. It is human to want a one time fix...I hear from Chiropractors all around the Globe say that they don't have a one treatment fix and that the body to some degree aligns itself after the 'treatment'...My mind being trained from an engineering/mechanical/electrical back ground is challenged to grasp the concept of re-aligning a bone that is connected my tendons, etc...Is there a 'natural' position that the body repeatedly self aligns to?...If there is damage done in for instance a whiplash or sports injury, does the 'natural' position become difficult to achieve? I imagine that the strain/stretch/tearing effects that can occur would make return to a natural 'best' position and also maintaining that position a lottery?...


Nigel,
Bones and joints can break, dislocate and subluxate. Because of my involvement in martial arts, I had many martial arts patients as well as a slew of other athletes from just about every sport. Consequently, I had to reset dislocated or subluxated shoulders, elbows and fingers, which are fairly common. Judo is much worse than karate for joint injuries and dislocations. The shoulder is difficult to reset because the elastic components of its combined powerful muscles and strong connective tissues have to be overcome. Once the resistance is overcome and the joint relocated, the elastic nature of the muscles and connective tissues snap the head of the arm back in the socket. I have used the classic long axis traction method with my foot in the armpit as well as the Kocher maneuver. There are others. It takes skill to do without having to sedate the patient. It similarly takes significant traction force to set broken bones. It is much better to use an anesthetic as bone pain can be intense. If not you can use the bite the bullet technique. The point is that it is the elastic components that prevent bones and joints from realigning themselves. Typically, they also hold them in place when they are aligned. The problems is that joints can be damaged and their and elastic components can be torn by trauma and degraded with age. Tears in connective tissues casues joint instability and excess motion. Damaged, fused and arthritic joints decrease range of motion.
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Re: CCSVI and CCVBP

Postby NZer1 » Sun Sep 02, 2012 2:29 pm

Thanks Dr, I am thinking that the nature of the Atlas with its required movement does have a 'place' to realign 'into' rather that the connective tissues have to 'relax and then hold' into position, a neutral as such.

Interestingly my younger brother has just been dxed with Rheumatoid Arthritis after about 5 years of strange symptoms and attempts with drugs to improve his joint swelling and mobility issues. If I remember correctly this dx is associated with CPn as well. Maybe we have a gene issue or alignment hereditary problem, have the Uncle with MS dx from years ago, he is in his 80's now and not really a typical MS symptom group. Uncle ran into a clothes line at neck height at age 6 and has always believed his current ailment that became symptomatic at mid 30's is from the neck trauma!
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Re: CCSVI and CCVBP

Postby blossom » Sun Sep 02, 2012 5:54 pm

hi dr. flanagan, this has nothing to do with ccsvi or ccvbp but i felt it says a lot if you think about how things have went on way too long with mainstream med. take note what the dr. says about patients insisting to make things happen and other comments. the dr. sitting at the table is pretty neat too. sound familiar?


http://www.youtube.com/watch?v=cJtCZx-4 ... r_embedded
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon Sep 03, 2012 2:58 am

Nigel,
All the joints have a neutral place to align to. That point however can be changed by injury and degeneration that result in subluxation and structural deformation. People with curvature problems have altered neutral points. The altered position causes abnormal loading which can lead to further degeneration.

RA is a complex topic too lengthy to go into here. It is an autoimmune-inflammatory disorder. Among other things it can cause erosion of the dens of C2 and the transverse ligament in the upper cervical spine resulting in compression of the cord. It can cause lower brainstem signs and effect breathing. We inherit our complement immune system, as well as certain aspects of our immune system. I agree with your uncle. It would be interesting to see some x-rays of his neck.
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon Sep 03, 2012 3:21 am

Thanks Blossom. It does sound familiar. Patients do have the power to make things happen and they are far more educated and connected these days thanks to the internet.
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Re: CCSVI and CCVBP

Postby mtf » Mon Sep 03, 2012 9:51 am

Hi Dr. F.,
Finally I have some xrays!!!
Can you,please, have a look to the xrays I have sent by e.mail?
Thank you very much!
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Re: CCSVI and CCVBP

Postby NZer1 » Mon Sep 03, 2012 5:03 pm

Some progress, step by step,,,,,,,,,,

My communications with the Fonar MRI outlet in Sydney Australia,

"Thank you for the reply,

Can you please keep me informed I have many friends here and overseas who are wanting to be involved when the time comes.

I am also in contact with Dr Flanagan in the States who is assisting with the research and analysis.

I have also been in touch with Joe Ierano (Sydney) to get him up to speed as an AO Chiropractor who is trained in the same basic methodology as Dr. Rosa who is working with Dr Damadian.

Looking forward to the potential.

Regards,
Nigel
----- Original Message -----
From: Info Upright MRI Australia
To: j.e@xtra.co.nz
Sent: Tuesday, September 04, 2012 11:56 AM
Subject: MRI


Dear Mr Wadham



Re: CSF Flow Study.



Sorry for the delay in responding.



Dr Lee has contacted the USA and there was some delay in their response. At this stage, the imaging is still research however Fonar are going to release a software package in the near future - date yet not specified. When this happens we will contact you. Please feel free to contact us anytime to ask us further about the progress of the package.





Regards



Renee on behalf of


DR MATTHEW LEE

Upright MRI Australia"
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