CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby NZer1 » Sat Dec 01, 2012 6:11 pm

Hi Dr F,
can you please make contact with Mike on his FB page or let me know an email address where he can contact you please, he is keen to talk.
https://www.facebook.com/Dr.Arata/posts ... re_comment
Thanks,
Nigel
User avatar
NZer1
Family Elder
 
Posts: 1504
Joined: Thu Feb 18, 2010 4:00 pm
Location: Rotorua New Zealand

Advertisement

Re: CCSVI and CCVBP

Postby uprightdoc » Sun Dec 02, 2012 3:49 am

Hello Nigel,
No I haven't communicated with Mike Arata and I don't know what particular information he is looking for. It is a huge topic and I have thousands of papers going back to physical anthropology and Drs. Harry Shapiro, Andrew Tobias and Dean Falk, and surgeons such as Drs. Oscar Batson and James Eckenhoff on the vertebral venous plexus and upight posture, and Drs. Raymond Adams and Solamon Hakim regarding normal pressure hydrocephalus. While I don't have time to provide links to all the sources and citations, any topic I cover can easily be found online with a simple search. The internet wasn't around when I started. I started with the New York Library of Medicine, as well as hosptial libraries. We will be including a limited number of some of the most relevant studies in future posts. Those studies are in turn loaded with additional citations for those wishing to dig deeper.

The role of the autonomic nervous system is a complex topic. Suffice it to say that the autonomic nervous system is known to fail in cases of high intracranial pressure such as traumatic brain injuries and strokes. It can also fail from arterial hypertension (high blood pressure). Some researchers suspect that hypertension and autonomic failure play a role in NPH. I further suspect that NPH may cause autonomic dysfunction which I am currently discussing on my website regarding the third ventricle. I also suspect the venous blood and CSF drainage problems can cause brain edema and NPH.
Last edited by uprightdoc on Sun Dec 02, 2012 8:40 am, edited 1 time in total.
User avatar
uprightdoc
Family Elder
 
Posts: 1659
Joined: Thu Sep 30, 2010 3:00 pm
Location: USA

Re: CCSVI and CCVBP

Postby uprightdoc » Sun Dec 02, 2012 5:39 am

Nigel,
PM me his email address and I will contact him.
User avatar
uprightdoc
Family Elder
 
Posts: 1659
Joined: Thu Sep 30, 2010 3:00 pm
Location: USA

Re: CCSVI and CCVBP

Postby dania » Sun Dec 02, 2012 11:20 am

Dr Flanagan I forgot to tell you that I have had for the last eighteen years high ocular pressure. Just over the normal range. It has been followed and there are no signs of glaucoma. My retina has always been normal. Would that further indicate that I have NPH?
User avatar
dania
Family Elder
 
Posts: 1083
Joined: Wed May 12, 2010 3:00 pm
Location: St Lazare Quebec

Re: CCSVI and CCVBP

Postby NZer1 » Sun Dec 02, 2012 12:04 pm

Dr F I have passed on the message as has Jan.

It's interesting now that Mikes video has sunk in a little over night. I think that being able to link Vascular, Arterial and Electrical by symptom changes from PTA treatment is a step in the best direction, both Dr Rosa'a findings and Mikes. :)

I am going to talk with Ray and Deb Henderson about the findings and suggest that they have a test for:


Autonomic Nervous System Testing
Synergy Health Concepts’ instrument facilitates the following ANS or Autonomic Nervous System Tests sometimes known as HRV or Heart Rate Variability Testing:
1. R-R Variation: (HRV) R-R Variation measures beat-to-beat heart rate variation, as it corresponds to deep respiration.
2. The Valsalva: Valsalva test measures beat-to-beat heart rate variation during and following a Valsalva maneuver.
3. 30:15 Stand Test: The 30:15 Stand Test measures heart rate variation with the patient’s postural change.
http://www.synergyhealthconcepts.com/diagnosis/
and;
http://www.synergyhealthconcepts.com/symptoms/

After discussing the outcomes from the three PTA treatments I am hopeful that Ray can get more recovery if this is looked into. I am also very aware that Chiropractic care is extremely limited still in NZ and that there may be issues to progression.
I want to be tested as well to get some more insights, my symptom group fits Mikes list for
Dysautonomia (http://www.synergyhealthconcepts.com/symptoms/)
please check his site and blog ;
http://blog.synergyhealthconcepts.com/
User avatar
NZer1
Family Elder
 
Posts: 1504
Joined: Thu Feb 18, 2010 4:00 pm
Location: Rotorua New Zealand

Re: CCSVI and CCVBP

Postby uprightdoc » Sun Dec 02, 2012 3:16 pm

My contention is that dysautonomia is a consequence of faulty fluid mechanics in the brain, not the cause of it. I discuss the effect of increased CSF volume in the ventricles and cisterns in my book and how incontinence etc. is probably due to faulty fluid mechanics that effect the third ventricle.

I will be covering a variant of Parkinson's Disease called multisystem atrophy/Shy-Drager/olivopontocerebellar atrophy on my wordpress blog in a month or so. I have to explain a few other points first. MSA is associated with dysautonomia. It is very similar to a variant of Dandy-Walker syndrome.

I have a very different opinion regarding the cause of Huntington's Disease and ALS. My theory has nothing to do with dysautonomia. I mention them both HD and ALS briefly in my book and why I intentionally left them out because it would have been way over most people and doctor's heads. It's was hard enough just to explain the role of the unique design of the skull, spine and circulatory system of the brain and cord due upright posture in the cause of neurodegenerative diseases. There is much more to the story.
User avatar
uprightdoc
Family Elder
 
Posts: 1659
Joined: Thu Sep 30, 2010 3:00 pm
Location: USA

Re: CCSVI and CCVBP

Postby uprightdoc » Sun Dec 02, 2012 3:17 pm

dania wrote:...I forgot to tell you that I have had for the last eighteen years high ocular pressure. Just over the normal range. It has been followed and there are no signs of glaucoma. My retina has always been normal. Would that further indicate that I have NPH?


It certainly adds fuel to the fire.
User avatar
uprightdoc
Family Elder
 
Posts: 1659
Joined: Thu Sep 30, 2010 3:00 pm
Location: USA

Re: CCSVI and CCVBP

Postby NZer1 » Sun Dec 02, 2012 3:35 pm

Hopefully when you and Mike talk by email there can be support each way with the understandings.

The testing of outcomes from PTA is where the gain will be. Could Upright MRI, fMRI and MRV be able to detect the changes from PTA or from AO treatment.

It seems the finer points of what is changing are the details everyone seeks.

Is there technology 'yet' that can interlink the knowledge required? :)

Interesting how the dysautonomia symptom list and the Chiari symptom list are much the same as well! That would explain more on the CSF link, Vascular and Arterial contact with the Vagus nerve in such a confined or compressed junction near C1?

Nigel
User avatar
NZer1
Family Elder
 
Posts: 1504
Joined: Thu Feb 18, 2010 4:00 pm
Location: Rotorua New Zealand

Re: CCSVI and CCVBP

Postby uprightdoc » Mon Dec 03, 2012 3:57 am

NZer1 wrote:...Could Upright MRI, fMRI and MRV be able to detect the changes from PTA or from AO treatment...Is there technology 'yet' that can interlink the knowledge required? :)

Interesting how the dysautonomia symptom list and the Chiari symptom list are much the same as well! That would explain more on the CSF link, Vascular and Arterial contact with the Vagus nerve in such a confined or compressed junction near C1?


The technology is here to detect the changes and link the knowledge from CCSVI and CCVBP to cranial hydrodynamics. There is much more to discuss however as it involves far more that just the vagus nerve. Other cranial nerves, such as the optic nerve, the trigeminal nerve and vestibulocochlear for example are often effected in MS that are only indirectly related to dysautonomia. The neurovascular myogenic autoregulatory reflex mechanism (cerebral autoregulation) is often involved as well and it has nothing to do with dysfunction of the vagus nerve.
User avatar
uprightdoc
Family Elder
 
Posts: 1659
Joined: Thu Sep 30, 2010 3:00 pm
Location: USA

Re: CCSVI and CCVBP

Postby dania » Mon Dec 03, 2012 6:41 am

Dr Flanagan I have noticed that lately, I smell something burning. I know there is nothing burning. It is rather odd but it is happening more frequently. Any thoughts? Other than I am crazy.
User avatar
dania
Family Elder
 
Posts: 1083
Joined: Wed May 12, 2010 3:00 pm
Location: St Lazare Quebec

Re: CCSVI and CCVBP

Postby uprightdoc » Mon Dec 03, 2012 9:08 am

My guess is that the olfactory nerve to your nose is suffering from the same problem as your eyes. The problem is caused by faulty fluid mechnanics in the cranial vault. It would be interesting to see if you have an empty sella turcica. Do you have any endocrine type hormonal signs and symptoms?
User avatar
uprightdoc
Family Elder
 
Posts: 1659
Joined: Thu Sep 30, 2010 3:00 pm
Location: USA

Re: CCSVI and CCVBP

Postby dania » Mon Dec 03, 2012 10:05 am

uprightdoc wrote:My guess is that the olfactory nerve to your nose is suffering from the same problem as your eyes. The problem is caused by faulty fluid mechnanics in the cranial vault. It would be interesting to see if you have an empty sella turcica. Do you have any endocrine type hormonal signs and symptoms?

I am hypothyroid but that is due to radiation treatment for Hodgkin's Lymphoma.
User avatar
dania
Family Elder
 
Posts: 1083
Joined: Wed May 12, 2010 3:00 pm
Location: St Lazare Quebec

Re: CCSVI and CCVBP

Postby NZer1 » Mon Dec 03, 2012 1:10 pm

Dr F it appears to me that the issue is testing the flows of Arterial blood and following it from start to finish, this is going to be necessary to get a full picture.
We each have our piece of interest and ideas about what is happening in these diseases, we are finding links happening from the individual studies and points of interest, if someone came along and said lets start at the Heart and map the travel and look at the dysfunctions in the system and then test what are the symptom outcomes from the dysfunctions found, we would be moving ahead.
The studies and research have been manipulated by their financial backers and researchers have to find a way to finance their existence rather than to look at Humans as needing study to be proactive in Health research and Knowledge.
Bla Bla.
An example is that for instance the NPH, Chiari, Parkinsons and Dysautonomia share a symptom group and no-one knows why it is linked and at what region of the vascular system there can be treatment.

The Upright MRI sounds "extremely positive", hope they duplicate their machine and let people learn and experiment rather than keep it for a small group to 'study'.

Regards,
Nigel
User avatar
NZer1
Family Elder
 
Posts: 1504
Joined: Thu Feb 18, 2010 4:00 pm
Location: Rotorua New Zealand

Re: CCSVI and CCVBP

Postby NZer1 » Mon Dec 03, 2012 2:32 pm

Thanks for PM Dr F.
After my rant above I have to say my Hobby Horse is VV flows, CSF flows and impediments, there got that out in Public.
I believe from the Doppler testing on my veins that the Jugs are 'ok', it's the others that support me when I am vertical, which I personally think is the main issue, like the flows in most people are problematic/symptomatic when vertical.

*So are 'vein flows/brain drainage/CSF flows' on a daily basis when Upright the common MS causation, rather than the veins used when Horizontal?*.

**Dr F is there any indication from the Upright MRI studies about flows and issues in vertebral's as yet?

**Is there any indication of problems when Horizontal compared with problems when vertical seen on Upright MRI at this time?

Regards,
Nigel
User avatar
NZer1
Family Elder
 
Posts: 1504
Joined: Thu Feb 18, 2010 4:00 pm
Location: Rotorua New Zealand

Re: CCSVI and CCVBP

Postby uprightdoc » Mon Dec 03, 2012 3:35 pm

NZer1 wrote:...So are 'vein flows/brain drainage/CSF flows' on a daily basis when Upright the common MS causation, rather than the veins used when Horizontal?...
is there any indication from the Upright MRI studies about flows and issues in vertebral's as yet?...
Is there any indication of problems when Horizontal compared with problems when vertical seen on Upright MRI at this time?..


The VVP certainly plays a signficant role in the cause of MS. Moreover, there are a far more problems in the spine that can effect the VVP during upright posture than there are problems with the internal jugulars.

There aren't any signifant studies yet on flow in the VVP during upright posture.

There are many farily recent excellent studies on CSF flow problems that occur in the recumbent position. Now they need to repeat all the studies in the upright position. Humans spend roughly two thirds of every day sitting or standing upright and the upright position increases the challenges to blood and CSF circulation.
User avatar
uprightdoc
Family Elder
 
Posts: 1659
Joined: Thu Sep 30, 2010 3:00 pm
Location: USA

PreviousNext

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users