CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby NZer1 » Sat Apr 13, 2013 4:27 pm

Interesting;
"Clinical details

All patients in this series presented within 3 months from the date of their acute cervical cord injury (hyperextension-hyperflexion injury in automobile accidents and hyperextension-rotational injury in industrial or environmental accidents). The diagnosis of definite MS in all the cases was confirmed by the neurologists prior to their referral to one of us (POB). There were a total of 39 cases, 24 of which were of new onset. These latter cases had new disease, without any history of neurological symptoms and were previously in excellent health. There were 12 males and 12 females, whose ages ranged from 19 to 55 years with a mean age of 32 years. They were all in excellent physical health previously. The onset of the symptoms occurred within a range of 12 h-12 weeks post-trauma with the maximum number of new cases reaching their peak between 2 and 3 weeks. Their expanded disability status scale (EDSS) scores ranged from 1.5 to 8.5 with a median score of 5.0. A further 15 cases, three male and 12 female, were of mild MS which rapidly accelerated to a progressive form following their injury. Their ages ranged from 21 to 51 years with a mean of 38.6 years. Their pre-trauma EDSS score had a range of 1-3 with a mode of 1, whilst their post-trauma EDSS at the time of examination were between 3 and 8.5 with a median score of 5.5. The worsening of their MS, i.e. the onset of new symptoms occurred between 1 and 12 weeks post-trauma with a mean maximum incidence of 1-2 weeks.

The severity of soft tissue injury was assessed retrospectively on an arbitrary scale of 1-15 (Table 3). There was no apparent correlation between the individual severity of injury as measured in this arbitrary scale and the subsequent deterioration of MS symptoms. In this series, none of the cases had any cervical vertebral fracture, dislocation or spinal cord compression."

"Conclusion

In our paper, we have sought to draw the attention of the readers to the role of certain CNS-specific focal trauma (cervical cord injury, stereotactic brain surgery like thalamotomy and electrical injury) in precipitating the symptoms of undeclared MS and adversely affecting the course of benign MS. Like infection, which will trigger MS symptoms only in a proportion of patients [10% (McAlpine et al., 1965)-48% (Sibley and Foley, 1965)], cervical cord hyperextension-hyperflexion injury is likely to unmask or worsen the natural course of MS in a subgroup of affected patients with an underlying diathesis. This may be important because the prevalence of asymptomatic (silent) MS has been estimated to be about 25% of that diagnosed in vivo (Engell, 1989).

We must make it clear that we do not propose physical trauma in any form causes MS per se. Physiologically, CNS-specific trauma produces focal breaches in the BBB and induces metabolic changes by activating the stress response. In addition, focal trauma also enhances the expression of nitric oxide synthase in the CNS microvasculature (Cobbs et al., 1997). In susceptible individuals, these effects might unleash critical changes in the levels of pro-inflammatory cytokines and nitric oxide, thus triggering MS symptoms ab initio or aggravating symptoms of pre-existing latent disease. The mechanism of MS is still unknown and research must focus on the role of traumatic breakdown of BBB, stress and nitric oxide pathways in the MS symptom exacerbation for a better understanding of this common, disabling neurological disorder."
http://www.mult-sclerosis.org/news/Jan2 ... AndMS.html

;)
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Re: CCSVI and CCVBP

Postby uprightdoc » Sun Apr 14, 2013 3:08 am

Good paper but it's old and it overlooks and marginalizes structure. It also limits faulty fluid mechanics to breaches of the blood brain and CSF barrier. Lesion locations associated with breaches of the blood brain barrier hardly explains the plethora of signs and symptoms seen in MS which are often distal and unrelated to lesion locations. The paper mentions nothing about dynamics of blood and CSF flow, especially during upright posture, which can be effected by structural problems in skull and spine. Misalignments and abnormalities of the craniocervical junction, spondylosis, scoliosis and stenosis can effect fluid mechanics in the cranial vault and spinal canal resulting in chronic ischemia, edema and NPH and subsequent neurodegenerative conditions. Trauma is definitely a causative factor in many cases of MS.
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Re: CCSVI and CCVBP

Postby dania » Mon Apr 15, 2013 3:23 pm

Well, I found a chiro with a cox 7 table but he takes a patient every 7 minutes. Says it would take too long to treat me, so he will not.
I was looking at my mother neck and hers is forward like mine. She says her head as always been forward and she does have pain in her lower back. So I probably inherited this from my mother. And I inherited Hodgkin's Lymphoma from my father. I swear if I did not have bad luck I would I have no luck at all.
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Re: CCSVI and CCVBP

Postby uprightdoc » Tue Apr 16, 2013 4:55 am

He sounds like an insensitive idiot to say something so callous to a patient in need. If he sees patients every seven minutes he isn't worth seeing. You certainly wouldn't be seeing me for seven minutes. If you were seeing my wife I would advise you to pack a lunch. We had three treatment rooms and a therapy/traction room, as well as a flexion-distraction room. Therapies such as muscle stim, ice, heat, traction all take at least 12-15 minutes. You need several modalities plus some hands on corrective work such as craniosacral. If our rooms got backed up we just put you back out in the reception room. Patients would socialize and commiserate in our reception room. Sometimes we sent them next door to Starbucks and went and got them when we were ready. There was no time limit per patient and no one left the office until we were satisfied with our post care follow-up. We didn't have a one-size fits all approach to our patients. Patient's were treated like family and according to their needs.
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Re: CCSVI and CCVBP

Postby dania » Tue Apr 16, 2013 6:29 am

I only talked to the receptionist. I did find another chiro with a old cox table. 25 years old. He is 20 minutes from me. He at least called me and seemed genuinely interested in helping me. And is wheelchair accessible.The other one, as with the one you recommended was not. Should I try this chiro?
http://www.chiropincourt.com/index_en.html
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Re: CCSVI and CCVBP

Postby uprightdoc » Tue Apr 16, 2013 8:29 am

Keep him in mind and keep shopping. You want a caring, thinking doctor with good examination and treatment skills plus a full line of physiotherapy equipment.
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Re: CCSVI and CCVBP

Postby dania » Tue Apr 16, 2013 9:12 am

You will not believe this but I just talked to another chiro clinic with cox table. Found out it is the same chiro you recommended but at a different location.The reception never mentioned Dr Hoang worked at another place.This place is wheelchair accessible. Dr Hoang will be calling me at the end of the day.
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Re: CCSVI and CCVBP

Postby uprightdoc » Tue Apr 16, 2013 10:49 am

Good job!
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Re: CCSVI and CCVBP

Postby dania » Tue Apr 16, 2013 12:21 pm

I just spoke to Dr Huang. Made an appointment for next Tuesday. Yeah!
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Re: CCSVI and CCVBP

Postby uprightdoc » Tue Apr 16, 2013 1:20 pm

That's terrific news. You got lucky.
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Re: CCSVI and CCVBP

Postby blossom » Tue Apr 16, 2013 2:56 pm

dania, good news--the best to you!
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Re: CCSVI and CCVBP

Postby uprightdoc » Wed Apr 17, 2013 2:00 am

The link below is to page I just published on the basal ganglia. Among other things, dysfunction of the basal ganglia can cause muscle spasms, weakness and tremors.

http://www.upright-health.com/basal-ganglia.html
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Re: CCSVI and CCVBP

Postby uprightdoc » Thu Apr 18, 2013 10:40 am

A short while ago Costumenational revisted this site recently to report that his mother has multiple sclerosis. Her primary complaint as I recall is numbness and weakness in her right foot and leg. She also has neck pain and difficulty turning her head while sitting. She has had neck pain and spasms for several years now. CN can clue us in on the rest of her signs and symptoms. She has atypical lesions in her cervical cord. Except for O-bands her blood and lab work were fairly unremarkable from what I saw. I finally got to see her brain and cervical MRIs this morning. She clearly has a small posterior fossa and low lying cerebellar tonsils called cerebellar tonsillar ectopia (CTE) similar or adult acquired Chiari 1 type malformation. I tried to post them here but was unable. I will see if I can get CN to post some of the images showing the small posterior fossa and low lying tonsils. She is currently seeing Dr. Koontz. Her neck pain subsides following cervical correction. She will continue with upper cervical correction for several months to see if it can improve her condition.
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Re: CCSVI and CCVBP

Postby NZer1 » Thu Apr 18, 2013 9:25 pm

I just found a link to Sherman College on FB and found a very good post;
https://www.facebook.com/photo.php?fbid ... nt_count=1

Dr F do you know a Dr David Jernigan? I am not sure if he studied at Sherman but he is a Chiro in Kansas.

:)
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Re: CCSVI and CCVBP

Postby NZer1 » Thu Apr 18, 2013 11:06 pm

uprightdoc wrote:A short while ago Costumenational revisted this site recently to report that his mother has multiple sclerosis. Her primary complaint as I recall is numbness and weakness in her right foot and leg. She also has neck pain and difficulty turning her head while sitting. She has had neck pain and spasms for several years now. CN can clue us in on the rest of her signs and symptoms. She has atypical lesions in her cervical cord. Except for O-bands her blood and lab work were fairly unremarkable from what I saw. I finally got to see her brain and cervical MRIs this morning. She clearly has a small posterior fossa and low lying cerebellar tonsils called cerebellar tonsillar ectopia (CTE) similar or adult acquired Chiari 1 type malformation. I tried to post them here but was unable. I will see if I can get CN to post some of the images showing the small posterior fossa and low lying tonsils. She is currently seeing Dr. Koontz. Her neck pain subsides following cervical correction. She will continue with upper cervical correction for several months to see if it can improve her condition.


So pleased people are being assessed rather than processed!
Looking forward to progress reports please CN, I knew we were going to keep contact with you one way or another!
All the best to your Mum!

;)
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