centenarian100 wrote:uprightdoc wrote:As I have mentioned many times on this thread - it's not the degree of descent that matters. What matters is whether or not it causes problems.
fair enough, but her symptoms are not suggestive of Chiari-related symptoms.
Did she describe postural posterior headaches or cerebellar dysfunction or anything typically associated with Chiari-I? You want to attribute her foot drop to <3mm of cerebellar herniation?uprightdoc wrote: The signs and symptoms of Chiari 0 and Chiari 1 are similar to MS.
NZer1 wrote:Reading this quote does alert me to the fact that MRI images very rarely give reason for symptoms found in de-generative diseases such as MS, Parkinsons and Alzheimers.
My own example is graphic of this issue. There are so many examples where the inflammation that occurs due to structural issues and infection issues does not give a Radiologist or a Neurologist an indication of cause of symptoms.
HappyPoet wrote:Hi Dr. Flanagan,
I give you my apologies. I believe Centenarian came to your thread because she's upset with me for inquiring about her "husband" on her "badass" thread (general forum) that she started in which she asked for personal experiences from members. Evidently, I made a mistake in her mind because I asked about her connection to MS (she gives a one-word answer, "husband," which is suspicious to me). I then asked her to share her "husband's" "most impressive feat" which is a quite reasonable request since she is the one who started the thread. Unsurprisingly, she never came back to the thread to answer my question which seems suspicious, imo.
Then, I post on your thread which she must have seen because your thread is the only other thread she posted on for several days. I thought she moved on to other pastures, but obviously I was wrong. Then Monday comes around, and she's back. Hmmm.
Personally, I think this person might work for a company, posting mostly during typical work hours and not on weekends, hmmm. We've seen this happen at TiMS many times before. I take great umbrage at people who come here under false pretenses to cause trouble and to upset and cause stress to people who suffer from MS--and we know stress can cause NEW lesions. Seems like she might not give a damn about hurting us. She's been harassing NHE, too, and I don't know why--I wonder if she realizes NHE is a moderator.
Oh, she'll probably come back here to try to justify herself, but if it looks like a duck, posts like a duck, and doesn't post like a coward...
My advice is to ignore her post because she might not ever leave you alone no matter what you say.
Hey Centenarian, if you tell us about yourself and background and about your "husband" and his "badass" impressive feat, and I'm wrong about you, I'll apologize.
Edit: changed "is not" and "will not" to "might."
uprightdoc wrote:... and 3mm descent or less can be enough to cause muscle weakness in the legs.
The quote below is from the WebMD page I provided a link to above.
"Traditionally, Chiari malformations have been defined and classified by how much of the cerebellar tonsils protrude through the foramen magnum. A diagnosis of a Chiari malformation usually signifies that the cerebellar tonsils protrude below the foramen magnum (often cited as at least 5 millimeters). However, researchers have determined that the length of tonsil descent in a Chiari malformation does not always correspond to the severity of symptoms or to the response to treatment. In fact, some individuals are classified as having Chiari malformation type 0, in which there is minimal or no descent of the cerebellar tonsils. These individuals still have symptoms associated with a Chiari malformation, most likely due to abnormalities in the flow of cerebrospinal fluid within the skull and spinal canal. Research is ongoing to understand the complex, underlying mechanisms that cause Chiari malformations. "
If you disagree you should discuss it with Milhorat and Bologonese, as well as other leading Chiari experts, neurosurgeons and radiologists.
While the signs and symptoms seen in MS may be difficult to explain, the atrophy of the brain and degeneration of the substantia nigra shown on brain scans explains many of the signs and symptoms in Alzheimer's and Parkinson's. Atrophy of the brainstem and cerebellum explains the signs and symptoms seen in multisystem atrophy.
costumenastional wrote:This is how things are Nigel. We can only fight back with every thing we got. Imagine being in my place. Seeing the same bad, old movie again...
Even though it sucks with mom not being able to do things as she used to, I couldn't stop thinking I know every single step towards their "diagnosis". Their PPMS diagnosis in specific. The neurological exams, the MRI reports, the clinical data, bloodwork, everything went like they were supposed to when a person suffers from neurological symptoms. The diagnosis couldn't be anything else.
Mom didn't even tell them that she suffers from terrible neck pain for the last 5 years. What difference would it make? She knows them from the good old days.
I didn't want her to be hospitalized cause I knew they d propose chemo. On the other hand, like I told Dr Flanagan, I couldn't decide for her. It is her life. Now, she is thinking of chemo along with upper cervical care. She wants to minimize the chances of getting worse.
Unfortunately, Mitoxandrone most probably has nothing to do with that. I really believe this. Like Campath did nothing for me. Nothing good that is...
I don't believe it is MS. Not with her neck giving her so much trouble. Not with her "non typical" lesions being in there. Only in there.
Not with Dr Flanagan saying that something else might be responsible.
I would be an idiot if a believed something neuros say. They dont know shit. Simple as that.
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