CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby HappyPoet » Wed Apr 24, 2013 5:27 pm

Nigel, I don't think you've been out of line/out of character, not at all. You want to put together all the interconnected pieces of the "MS" puzzle, and your efforts are highly commendable. Starting a new thread will allow many more people to read about your ideas than just posting them here which is a narrow topic that not everyone reads. Please keep thinking and posting!
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Re: CCSVI and CCVBP

Postby NZer1 » Wed Apr 24, 2013 5:48 pm

Thanks HP for your kind words,
I have started using FB sites such as mine and Joan's to get discussions happening and the learning curves will form. I have found and posted some very important papers in this line of thinking to my site mostly and feedback is happening.
:)
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Re: CCSVI and CCVBP

Postby dania » Fri Apr 26, 2013 11:03 am

Had my second spinal decompression treatment with the chiro using the Cox 7 table yesterday. Improving more. Slow but sure. I am now able to hold a phone against my ear. Drink out of a glass without using a straw. I am able to rotate my head in circles again. Muscles are much less contracted, not forcing my body to the floor. My left side which is useless is now regaining strength. I noticed I am not so hot. I was actually cold in the shower. Usually I am too hot Taking my shower was much easier today. Everything is just a little easier to do. YEAH!
I wish there was a place I could be treated every day at least once or twice, plus get a deep tissue massage plus the other treatments that you recommend Dr Flanagan. Thank God for the internet and you Dr Flanagan.
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Re: CCSVI and CCVBP

Postby DougL » Fri Apr 26, 2013 11:15 am

dania wrote:Had my second spinal decompression treatment with the chiro using the Cox 7 table yesterday. Improving more. Slow but sure. I am now able to hold a phone against my ear. Drink out of a glass without using a straw. I am able to rotate my head in circles again. Muscles are much less contracted, not forcing my body to the floor. My left side which is useless is now regaining strength. I noticed I am not so hot. I was actually cold in the shower. Usually I am too hot Taking my shower was much easier today. Everything is just a little easier to do. YEAH!
I wish there was a place I could be treated every day at least once or twice, plus get a deep tissue massage plus the other treatments that you recommend Dr Flanagan. Thank God for the internet and you Dr Flanagan.


Yeah! even the simple things make a huge difference

continued healing to you!
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Re: CCSVI and CCVBP

Postby HappyPoet » Fri Apr 26, 2013 11:31 am

dania wrote:Had my second spinal decompression treatment with the chiro using the Cox 7 table yesterday. Improving more. Slow but sure. I am now able to hold a phone against my ear. Drink out of a glass without using a straw. I am able to rotate my head in circles again. Muscles are much less contracted, not forcing my body to the floor. My left side which is useless is now regaining strength. I noticed I am not so hot. I was actually cold in the shower. Usually I am too hot Taking my shower was much easier today. Everything is just a little easier to do. YEAH!
I wish there was a place I could be treated every day at least once or twice, plus get a deep tissue massage plus the other treatments that you recommend Dr Flanagan. Thank God for the internet and you Dr Flanagan.

Terrific for you, Dania!
I also say, "Thank God for the internet and Dr. Flanagan."
If you haven't been to his website yet, it's chock full of information.
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Re: CCSVI and CCVBP

Postby uprightdoc » Fri Apr 26, 2013 11:34 am

HappyPoet wrote:CONGRATULATIONS on reaching 200 pages in your thread!

Thanks HP,
I just noticed the comment and the number.
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Re: CCSVI and CCVBP

Postby uprightdoc » Fri Apr 26, 2013 11:37 am

Good news Dania. The treatments will go a long ways toward improving and maintaining your spine.

Thanks for the compliments.
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Re: CCSVI and CCVBP

Postby uprightdoc » Fri Apr 26, 2013 1:55 pm

I didn't say Nigel was out of line or character. I said we were getting way off topic and I wasn't referring to Nigel's post. Nigel took it that way. I was referring to the extra long post that followed his that buried a very relevant topic related to CN's mother and a Chiari 1 beneath a bunch of fatty links.
I said that I didn't think he meant what he said that I " want to stay with the mechanical involvement and managing symptoms rather than look at the whole picture of interlocking issues that finally express as 'disease'." He knows that's not true. I have discucssed my background in TCM many times, including: acupuncture, medicinals, tui na, chi kung and othr martial arts forms used for health care. My interests run deep, much deeper that what I am covering here.
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Re: CCSVI and CCVBP

Postby Anonymoose » Fri Apr 26, 2013 1:58 pm

dania wrote:Had my second spinal decompression treatment with the chiro using the Cox 7 table yesterday. Improving more. Slow but sure. I am now able to hold a phone against my ear. Drink out of a glass without using a straw. I am able to rotate my head in circles again. Muscles are much less contracted, not forcing my body to the floor. My left side which is useless is now regaining strength. I noticed I am not so hot. I was actually cold in the shower. Usually I am too hot Taking my shower was much easier today. Everything is just a little easier to do. YEAH!
I wish there was a place I could be treated every day at least once or twice, plus get a deep tissue massage plus the other treatments that you recommend Dr Flanagan. Thank God for the internet and you Dr Flanagan.

Dania,
Wonderful news!! When I first started posting here and read about your frustrations and seemingly insurmountable 'barriers' to feeling well, I despaired for you. I am so so happy this is working...and I'm also so grateful that URD is here to guide others along the same path if needed.

Yay! :) Wishing you continued success.
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Re: CCSVI and CCVBP

Postby blossom » Fri Apr 26, 2013 11:42 pm

HappyPoet wrote:
dania wrote:Had my second spinal decompression treatment with the chiro using the Cox 7 table yesterday. Improving more. Slow but sure. I am now able to hold a phone against my ear. Drink out of a glass without using a straw. I am able to rotate my head in circles again. Muscles are much less contracted, not forcing my body to the floor. My left side which is useless is now regaining strength. I noticed I am not so hot. I was actually cold in the shower. Usually I am too hot Taking my shower was much easier today. Everything is just a little easier to do. YEAH!
I wish there was a place I could be treated every day at least once or twice, plus get a deep tissue massage plus the other treatments that you recommend Dr Flanagan. Thank God for the internet and you Dr Flanagan.

Terrific for you, Dania!
I also say, "Thank God for the internet and Dr. Flanagan."
If you haven't been to his website yet, it's chock full of information.


so happy for you dania. AND yes, thank God for the internet and dr. flanagan who willingly and unselfishly takes his time to guide and is helping so many.
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Apr 27, 2013 3:03 am

HappyPoet wrote:... Starting a new thread will allow many more people to read about your ideas than just posting them here which is a narrow topic that not everyone reads...


CCSVI is about the role of the jugular veins in MS. That's a narrow topic.

This thread is about upright posture, the design of the skull, spine and circulatory system of the brain and cord, spondylosis, scoliosis, stenosis, Chiari malformations, pressure cones, VVP, CSF flow, hydrocephalus, syrinxes, cysts etc.. in MS. That's hardly a narrow topic.

It's unfortunate that many more people aren't reading and learning about these topics which are important to finding the cause, prevention, cure and care for many neurodegenerative diseaaes.
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Re: CCSVI and CCVBP

Postby HappyPoet » Sat Apr 27, 2013 8:17 am

uprightdoc wrote:
HappyPoet wrote:... Starting a new thread will allow many more people to read about your ideas than just posting them here which is a narrow topic that not everyone reads...


CCSVI is about the role of the jugular veins in MS. That's a narrow topic.

This thread is about upright posture, the design of the skull, spine and circulatory system of the brain and cord, spondylosis, scoliosis, stenosis, Chiari malformations, pressure cones, VVP, CSF flow, hydrocephalus, syrinxes, cysts etc.. in MS. That's hardly a narrow topic.

It's unfortunate that many more people aren't reading and learning about these topics which are important to finding the cause, prevention, cure and care for many neurodegenerative diseaaes.

Hi Dr. Flanagan,

I should have said 'different' instead of "narrow" topic, sorry. I totally agree it's unfortunate that more people aren't reading this thread which is why, for over two years, I've promoted--and will continue to promote--your thread here, in other threads on other sub-forums, and in many PMs.

Looking at the positive, your thread has over 200,000 hits, which is absolutely terrific, and I know you've corresponded with and helped many others who never posted on your thread. You're an excellent teacher, and TiMS is incredibly lucky to have you!
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Re: CCSVI and CCVBP

Postby dania » Sat Apr 27, 2013 9:43 am

http://archneur.jamanetwork.com/article ... eid=801321

Two stenosed jugulars gave this patient a lot of symptoms familiar to us... no MS diagnosis of course... train of thought for doctors if CCSVI is not allowed to be discussed... ask them to explain how the stenosed jugulars caused this patients symptoms?
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Apr 27, 2013 12:51 pm

Thanks Poet. Many of those pages grew and patients ended up here because of you.

Even though most of what he says is Greek to the rest of us, CostumeNational has done a lot to spread the word. He also invited me here and I made the mistake of starting a new thread. Who knew? I knew nothing about websites and blogs when I started.

Blossom has done her bit and distributed many of my books to different doctors. She left some of the best neurosurgeons scratching their heads wondering what the heck her bone spurs (spondylosis) have to do with CSF flow and MS and the fact that she gets weaker when she flexes her neck forward and stronger when she extends it. Maybe she didn't knock down any walls but she sure put a few dents in some thick skulls.

Nigel has done tons to educate patients and chiropractors in NZ. Nigel quit thinking outside the box and decided to just get rid of it. It only gets in the way.

What you are all doing through networking makes a big difference in spreading the word and speeding up the research .
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Re: CCSVI and CCVBP

Postby NZer1 » Sat Apr 27, 2013 1:16 pm

Hello,
I have been thinking about disc bulges and disc de-generation in PwMS. I have seen over time many MRI's that have disc bulges and most people I talk with have disc degeneration.
Dr F from memory I recall comment that once a disc is damaged they don't recover or repair the splits etc. I have always wondered about my disc bulge and always been told it will go away in time.
Whilst all the cause of this damage is happening I assume that there will be inflammation and I also guess that there is going to be ongoing inflammation if the disc is stressed.
On MRI I don't see inflammation or hear of Radiologists talk about it. To me that seems strange almost another example of one field of Medicine not acknowledging another. We as patients have over time come to realise that whilst there is a flair of inflammation there will be symptoms and yet the link between the inflammation and the cause of symptoms that it creates doesn't seem to have been technologically 'seen'.
It reminds how the lesions in MS are assumed to cause the symptoms of mobility etc yet when asked under the stop light Neuro's etc are not able to support the theory.

**Is there proof that the inflammation is the cause of symptoms and where and how this happens?

I also want to talk with Arelene Hubbard and ask if there is fMRI support that shows the dysfunctions in MS, or for that matter any way that this can be achieved with fMRI.

The other aspect of the symptoms and cause pondering I have been doing has come from discussions with Franz Schelling and he showed a paper of Dr Oppenheimer's;
The spinal cords were examined in eighteen cases of multiple sclerosis, with special attention to the cervical enlargement. It was found that (1) lesions in the cervical cord are about twice as common as at lower levels, (2) in this region there is a striking preponderance of fan-shaped lesions in the lateral columns. It is argued that both these findings are explicable on the theory that mechanical stresses play a part in determining the site of lesions; that such stresses are commonly transmitted to the cord via the denticulate ligaments during flexion of the spine; and that many of the lesions are attributable to vascular leakages due to tension in the denticulate ligaments. It is concluded that in patients with multiple sclerosis neck flexion is dangerous–especially in cases where Lhermitte's sign has occurred.
http://onlinelibrary.wiley.com/doi/10.1 ... x/abstract

The symptom expression LHermitte's is still, from what I have read, not defined regarding cause and effect and this paper was 1978.

Another interesting find was in an interview with Professor Garth Nicolson when he was asked about disc degeneration and infections "DrNicolson: We are interested in this degenerative process, and have found that most patients have mycoplasmal and especially chlamydial infections. Working with orthopedic surgeons we have documented these types of infections in the tissues." http://www.prohealth.com/library/showar ... libid=8415

Because at present my treatment is having an effect on the 'MS' symptoms as well as any past injury sites I have interest in why the disc noise that I have always had is extremely loud as the treatment is currently having the most die off effects in my spine region.

**Dr F has there been research into the involvement of infections AFTER injury in the spine? **

I am interested in understanding if there are connections between the disc bulges, the disc degeneration, CCSVI, MS and also diseases such as CPn infection because the commonality of all these symptoms and 'MS' is intriguing!

:)
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