CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby uprightdoc » Sun May 05, 2013 10:33 am

You were right Dania. Your body is compressed due to your condition and disabilities. You need decompression. Traction and flexion-distraction are based on sound science and basic physics.
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Re: CCSVI and CCVBP

Postby uprightdoc » Sun May 05, 2013 11:15 am

I have never heard of the "thirteen circuits" of the body. Connecting the teeth to the sacroiliac joints is ridiculous. What I am discussing here is definitely based on science and it's far from being just my opinion. Although the theory may be weak, CCSVI is also based on science. Unlike medical doctors I am not suggesting that we write laws to prevent MS patients from seeking alternative treatments. I think MS patients should be allowed to try anything they want as long as it's not harmful such as TMJ, orthotics, chelation therapy, colonics, ionized water, crystals, magnets, polarized glasses, color therapy, Bach Flower Remedies, grounding, sleeping under pyramids, fecal transplants, etc.
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Re: CCSVI and CCVBP

Postby MrSuccess » Sun May 05, 2013 12:20 pm

I must agree that the list you provided ..... might be harmful.

I disagree with you , that the CCSVI theory is weak.

I base this on the medical FACT , that applying reduced or stopped bloodflow INTO the brain - by way of cartoid's - has DIRE if not FATAL ... consequences to the brain. This is PROOF of the delicacy of the brain.

Applying that same logic [ CCSVI ] .... how can anyone argue that by NOT allowing the brain to function in a free flowing CIRCUIT .... has no consequences.

THAT is a weak theory. :twisted:


Common sense and logic ..... always win the day .......

Professor Zamboni's discovery is LOGICAL and based on common sense.


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Re: CCSVI and CCVBP

Postby NZer1 » Sun May 05, 2013 12:56 pm

uprightdoc wrote:I have never heard of the "thirteen circuits" of the body. Connecting the teeth to the sacroiliac joints is ridiculous. What I am discussing here is definitely based on science and it's far from being just my opinion. Although the theory may be weak, CCSVI is also based on science. Unlike medical doctors I am not suggesting that we write laws to prevent MS patients from seeking alternative treatments. I think MS patients should be allowed to try anything they want as long as it's not harmful such as TMJ, orthotics, chelation therapy, colonics, ionized water, crystals, magnets, polarized glasses, color therapy, Bach Flower Remedies, grounding, sleeping under pyramids, fecal transplants, etc.


The thirteen circuits is new to me as well, and there is also a grey area around the test methods used for 'missing' and also 'toxic' elements.
It makes logical sense for the electrical and magnetic influences on the body and those are things that Science has systems to measure and document in peer reviews, but there doesn't seem to be support.
My other concern is when a Dr produces products that are pushed as opposed to recommending products that can be blended by the patient.
The other aspect is when I make contact and seek to discuss the knowledge and I get snubbed when I ask relevant questions or fobbed of if I have insights that challenge the Dr then my warning bells are ringing!
If a Dr understands and is experienced then they are communicative, open and supportive of finding answers and this to my mind is an indication of authenticity and willingness to focus on the patient not the profit!
Ego versus Integrity!

;)
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Re: CCSVI and CCVBP

Postby uprightdoc » Sun May 05, 2013 1:13 pm

Hello Mr. Success,

I didn't mean to imply the list of alternative therapies was harmful. I just came in from doing some heavy gardening and wrote the response hastily. The therapies I listed are completely harmless. For the most part they are also clinically speaking, completely useless when it comes to treating MS.

I think that Dr. Zamboni's procedure using internal jugular venoplasty to treat MS associated with venous drainage problems has been a huge success and one of the most significant discoveries regarding the cause of MS in decades. As I have stated here many times before, in my opinion the procedure should be considered and used more often as a potential alternative to CSF shunts. Nonetheless, I think the theory that majority of MS cases are due to internal jugular problems is weak. My theory is that fautly blood and CSF flow between the cranial vault and spinal canal plays a far more significant role than the internal jugulars. As I have also stated before, it my opinion that the internal jugular venoplasty works because it improves cranial hydrodynamics by the siphon effect.
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Re: CCSVI and CCVBP

Postby uprightdoc » Sun May 05, 2013 1:34 pm

Good insight Nigel.

The body is run by an electric dynamo that transmits its current through conductors called nerves. When you run current through a conductor you create a magnetic field. Likewise if you run a magnetic field around a conductor you will create electricity. It's basic physics.

The electrical and magnetic influences on the body do make sense and we can measure certain of their aspects with EEG, ECG, EMG and MRI for example. There are many different types of electricity and wave forms that are well recognized as effective forms of physiotherapy. Electrical therapy has been around for decades. I prefer my electrical method of Acu-Tens to acupuncture because of the consistency of point location and effective stimulation when using electricity in whiich I can see the effects and the patient can feel it. My experience with the clinical use of magnets is that they don't work the way they are currently being used.
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Re: CCSVI and CCVBP

Postby NZer1 » Sun May 05, 2013 2:09 pm

Thanks Dr F, hope the gardening is harvest and planning the new season as well!

The electrical aspects is also an area that is not well understood and things such as the influence of toxins and scars disrupting the energy flows and creating illness or dis-ease in the body fascinates me.

I often think that the chemical level of studies and cellular functions at atomic level has gone too far. By that I mean that I think there are many aspects of function at less deep levels of involvement that are brushed over. I do understand that everything is symbiotic and that it takes a combination of things to generate dis-ease because the body has so many alternative ways to cope with the challenges to wellness.
The findings that you have seen with the structural and physical aspects of flow dynamics is a classic example of how Science brushes over the obvious at times.

Our comments on the hypothalamus and it's interlinking chain is a classic of how Science has overlooked the functions and more particularly the incidence of lesions on the hypothalamus in MS and not gone seeking more knowledge!
If the search had happened, imo, there would have been investigation into the CSF hydraulicing and the overall lack of blood flow from the neck up and back in many degenerative diseases.

I had a search of Pub Med and found many links to the phenomenon of lesions on the hypothalamus from early MS to later MS and the severity of the disease can be measured by the lesion activity and load. The Thalamus is also known to atrophy in MS.

If the central brain is hammered by blood reflux/back jets and also has a lack of blood flow causing oxygen deprivation and slow waste removal and minor nutrient supplies there has to be symptoms!

**Symptoms from a major junction and transport of nerve signals has to be of concern, the interlinked brain functions of the Thalamus for instance and the resulting sensory and motor pathways disruptions screams out for attention!**

**One problem though, drugs won't fix the problem so there is no money to be made by 'curing' the cause!**

From Fatigue Central,
Down Under
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Re: CCSVI and CCVBP

Postby NZer1 » Sun May 05, 2013 2:16 pm

From Joan, https://www.facebook.com/notes/ccsvi-in ... 7640167211

"Those of us interested in moving CCSVI diagnosis and treatment forward can always learn from history.

In the 1960s, a neurosurgeon in Bogota, Columbia made the controversial claim that he could reverse neurodegeneration by surgically diverting an excess of cerebrospinal fluid (CSF) in the brains of his patients with a shunt.

Professor Salomon Hakim first published his thesis in 1964 and then published 6 case reports of "normal pressure hydrocephalus" in The New England Journal of Medicine and the Journal of the Neurological Sciences in 1965. Hakim rose to the forefront of academic medicine as he described a newfound ability to reverse symptoms of “neurodegeneration” that had long been considered irreversible.
link

It is important to understand that today, 60 years after Hakim's discovery, treating normal pressure hydrocephalus is an accepted practice, even though diagnosing NPH is an inexact science. There were never any double blinded clinical trials for this surgery. Hakim claimed he could reverse gait impairment, cognitive problems and urinary incontinence by diverting CSF flow. And the proof was in his patients' recovery. No one cries "placebo effect!" after a patient recovers mobility, cognition or bladder control once treated for NPH.

Here is a first hand account of the changes in brain function and recovery, written by a woman treated for NPH. Her story was published in the New York Times.
CASES; A Mind Emerges Joyfully After Years Lost in a Cloud

++++++++++++++++++++++++++++++++++++++++++

I first learned about NPH from Dr. Elliot Frohman in Bologna, Italy--at the first CCSVI conference in September 2009. It was Dr. Frohman, an MS specialist and neurologist, who commented that CCSVI treatment reminded him of the success he had seen after treating his patients for NPH. Here is what Dr. Frohman said about venoplasty for CCSVI. I wrote it down in my notes, because his comment literally stunned me.

I have seen this happen in “normal pressure hydrocephalus- (NPH) Where there is a loss of gait, cognitive and bladder issues and the lesions disappear because the expanded ventricle swallows the lesion. I have shunted the brains of NPH patients, and they showed remarkable improvements. Again, the enlargement of the third ventricle precedes the changes.

Readers might wonder, what ever happened with this revelation from Dr. Frohman? Did he go back to his university and propose a clinical trial for CCSVI venoplasty? Did he look further at the correlation of NPH and CCSVI? Has he attended any more CCSVI conferences? No.
Dr. Frohman lists the following industry relationships:
Consultant/Advisory Boards: Novartis; Biogen; Teva; Acorda; Genzyme; Abbott (for multiple sclerosis)
http://www.uptodate.com/contents/intern ... disclosure"
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Re: CCSVI and CCVBP

Postby MrSuccess » Sun May 05, 2013 10:36 pm

I find your posts very interesting . Opinions based on science.

We need more of that . I am looking forward to reading more results using the upright MRI.

It looks like the right tool for the task at hand . :idea:

Are you in agreement in regard to the fragile state that the brain is in and the effects on it when bloodflow IN is compromised ?


No need to clarify ..... I already have cast doubts when it comes to the unusal. :lol:


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Re: CCSVI and CCVBP

Postby NZer1 » Mon May 06, 2013 12:18 am

"Common bug could trigger Alzheimer's

Chlamydia pneumoniae is present in half the population
A common bacterium which can be transmitted through coughing and sneezing could play a role in Alzheimer's Disease, according to American research.
The bug, Chlamydia pneumoniae, is present in half the population by the time they are 20. Older people are believed to be more susceptible to it.

The research team, led by Alan Hudson from Wayne State University in Detroit, found the bacterium in the brains of 17 out of 19 people who had died from Alzheimer's.


The bug was present in victims' brains
A control study of 19 people who had died from other causes found the bug in only one person's brain. It was much less likely to spread in this person.

In the Alzheimer's patients, the bug was found in the two areas of the brain most likely to be affected by Alzheimer's: the hippocampus and the termporal cortex.

In addition, the researchers managed to culture the bacterium from two of the Alzheimer's affected brains and found that it was still active and alive.
http://news.bbc.co.uk/2/hi/health/150252.stm "

Glad I found my infection early! ;)
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon May 06, 2013 1:24 am

MrSuccess wrote:...Are you in agreement in regard to the fragile state that the brain is in and the effects on it when bloodflow IN is compromised ?...


As I mention in my book, the design of the skull, spine and circulatory system of the brain predisposes it to chronic ischemia (decreased arterial flow), edema (decreased venous flow) and hydrocephalus (decreased CSF flow) due to craniocervical juntion malformations and mialignments, Chiari malformations, pressure cone, spondylosis, scoliosis and stenosis etc.

I am well aware of compromised blood flow into the brain. In addition to neurodegenerative diseases I have an interest and background in rehabilitation of strokes using an intergrative approach of Acu-Tens, TCMs and intensive gait training and other rehabilitation exercises.
Last edited by uprightdoc on Mon May 06, 2013 7:21 am, edited 1 time in total.
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon May 06, 2013 1:44 am

G'day Fatigue Central,
The garden and yard work are going well. We got our potatoes planted yesterday and I am working on a dwarf white clover no maintenance lawn. I have been a fan and experimenting with xeriscaping for years.

Many of the signs and symptoms seen in MS are related to dysfunction of the thalamus and hypothalamus. The thalamus and hypothalamus are suceptible to compromised blood and CSF flow. They are also susceptible to tension, compression and shear stresses due to their location in the core and on the bottom of the brain.
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon May 06, 2013 1:55 am

Finding bugs and bacteria in the brain doesn't necessarily imply that there was an infection. Researchers now suspect that amyloid placques, bacteria, iron accumulation etc., is due to sluggish flow and clearance of breakdown products and pathogens from the brain. It is highly unlikely that the early onset Alzheimer's and Parkinson' disease seen in football players and other athletes exposed to head and neck trauma is caused by bacteria. There is also a correlation of Alzheimer's disease with cardiovascular degeneration, which more than likely plays a far greater causative role than bacteria or viruses. Degeneration of the spine due to accumulated injuries and aging resulting in dissociation of fluid mechanics between the cranial vault and spinal canal compounds the problem.
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon May 06, 2013 3:34 am

NZer1 wrote:... In the 1960s, a neurosurgeon in Bogota, Columbia made the controversial claim that he could reverse neurodegeneration by surgically diverting an excess of cerebrospinal fluid (CSF) in the brains of his patients with a shunt.

Professor Salomon Hakim first published his thesis in 1964 and then published 6 case reports of "normal pressure hydrocephalus" in The New England Journal of Medicine and the Journal of the Neurological Sciences in 1965. Hakim rose to the forefront of academic medicine as he described a newfound ability to reverse symptoms of “neurodegeneration” that had long been considered irreversible.
link

It is important to understand that today, 60 years after Hakim's discovery, treating normal pressure hydrocephalus is an accepted practice, even though diagnosing NPH is an inexact science. There were never any double blinded clinical trials for this surgery. Hakim claimed he could reverse gait impairment, cognitive problems and urinary incontinence by diverting CSF flow. And the proof was in his patients' recovery. No one cries "placebo effect!" after a patient recovers mobility, cognition or bladder control once treated for NPH...


CSF shunts fail more often then they work in adults, which is why surgeons hesitate to use them. The diagnosis needs to improve to determine who will benefit. It appears that patients with NPH benefit from shunts and those with atrophy do not. Most likely, cases due to intracranial hypotension and dissociation of blood and CSF flow between the cranial vault and spinal canal won't benefit from shunts either. In fact, as I have mentioned previously on this thread shunts and venoplasty may exacerbate intracranial hypotension due to over-drainage.

Haikim and Adams didn't consider the connection of NPH to blood and CSF flow, upright posture, the vertebral veins, the subarachnoid space of the cord and design and degeneration issues in the spinal canal. Despite MRI studies being done in teh supine position, the latest research confirms the connection. Upright MRI will reveal much more. Upright posture causes significant changes in cranial hydrodynamics, including switching the major venous drainage routes of the brain from the internal jugular veins to the preferred route of the vertebral veins.
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Re: CCSVI and CCVBP

Postby cheerleader » Mon May 06, 2013 12:25 pm

Hi Dr. Flanagan--
Nigel didn't copy over the full post I wrote on Facebook, just want to clarify since he put my name on it---I was not advocating for CSF shunting, the note was more about how NPH treatment developed--how Adams and Hakim found a correlation between slowed CSF drainage and reversable neurologic symptoms. Obviously, we're learning more as science advances, and FONAR upright MRI is providing more insight. We're at the tip of the iceberg understanding CSF, blood flow and neurodegenerative disease, but the connection is there, and we're thankful to have you online, helping us all understand it better.

I agree with what you've said (multiple times) about slowed venous drainage and the bacteria, viruses, iron and plasmic particles being deposited in delicate brain tissue---there is not one bug or element we can isolate --it is the weakened blood brain barrier and cerebral endothelium which is allowing entrance for a plethora of cells that just shouldn't be there. Here's a paper on this from BNAC-
The association between EBV infection and CCSVI has not yet been explored; however, it could be hypothesized that venous stasis in the superior saggital sinus due to extracranial outflow impairment could affect the drainage of bridging veins that pass through the subarachnoid space (near the meninges and EBV-infected B-cell follicles) and contribute to EBV activation. The venous stasis hypothesis in the SSS may contribute to understanding why so many different viruses and bacteria [3,111] have been linked to increased MS susceptibility risk over the last 50 years.

http://www.expert-reviews.com/doi/abs/1 ... ern.11.117

thanks!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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