CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby vesta » Wed Jun 12, 2013 6:31 am

I didn't think that the Shiatsu massage stopped the attack until I re-read my notes to find that Dr. Pallis found my case very unusual since normally the leg should have been affected as much as the arm. And from my notes at the time I discover that after the massage I felt tremendous relief, the "attack" stopped. (See Pallis/Shiatsu massage blog on my site.) The blood reflux theory has changed my life by allowing me to treat myself - or get necessary treatment - and stop attacks. I don't bother with the Neurologists because they can't help me.
However, you guys are right, I should change my post to read:
"Delay Drugs One Year OR re-inforce your healing WITH Drugs by optimizing your nutrition and treating the blood reflux."

MS Cure Enigmas.net
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Re: CCSVI and CCVBP

Postby dania » Thu Jun 13, 2013 1:04 pm

Had a fall. Did not hurt myself but the person jerked me back into my wheelchair and my neck snapped back. Lost all my improvements. The person who drives me to my chiro appointments fell off a ladder and broke 4 ribs. So now I am unable to get to the chiro. I wish there was a facility that I could stay at and get treated every day or wish I was rich and buy the Cox 7 table and pay the chiro to come and treat me every day.
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Re: CCSVI and CCVBP

Postby vesta » Thu Jun 13, 2013 2:36 pm

I'm really sorry to hear about your fall - or rather the neck "snap". I guess you will have to start over when you can get a ride for the treatments. At least you know that there is some therapy which helps. Keep the faith.
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Re: CCSVI and CCVBP

Postby uprightdoc » Thu Jun 13, 2013 2:46 pm

I am sorry to hear the bad news Dania. I hope the person who drives you heals fast for both your sakes.
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Re: CCSVI and CCVBP

Postby HappyPoet » Thu Jun 13, 2013 4:17 pm

oh dania, so sad to hear this news, especially considering all the improvements that you had been having. Why, oh why, isn't anything ever easy for us. We'll collectively send out positive energy so that you can get back to your appointments ASAP and get back all those great improvements. You will get them back, you will.
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Re: CCSVI and CCVBP

Postby blossom » Thu Jun 13, 2013 10:12 pm

oh dania, what can i say. i just feel so bad this happened to you. now, i am feeling frustrated and mad that there are those of us that we know because of living in a body that positioning of it influences symptoms yet the so called "goorues" or so called experts that call the shots when it comes to treatment or ins. paying etc. they turn a deaf ear conveniently--to our testimonies.

and, yes, if we were rich we could do a lot more for ourselves. i try to hit the lottery and when i do there will be a special place with special dr.'s that will listen and help us. instead of all this bs that has went on.

ok, dr. flanagan, when i hit on the lottery, are you open to being the top dog at our facility?

anyway, dania, i hope something and someone good comes out of the blue for you to get you back on track.--it's a shame that when many of us were healthy and at it and did not need help there were all makes and models of people in our lives. couldn't shake them when you wanted to. now, when we need them----------------------------------------------------------------!!!
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Re: CCSVI and CCVBP

Postby uprightdoc » Fri Jun 14, 2013 4:59 am

Thanks Blossom. I would be honored to be the top dog in your facility. I have a good idea of what it should look like.

I started a power point presentation for a webinar for an osteopathic craniosacral symposium at the end of this month. It's turned into a complete graduate course and I already have craniosacral doctors requesting a book. I am sure it will turn some heads.
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Re: CCSVI and CCVBP

Postby civickiller » Fri Jun 14, 2013 10:17 am

Dr. F its been awhile since I posted

Can I ask you some questions

1. Why is there scarring around the ventricles, mainly? I thought for a second it was from CSF leaking from the ventricles but isnt there already CSF in the skull so why is there scarring

2. is a lot of the ms symptoms from pituitary gland and thlamus dysfunction? Is it from a lack of CSF?

3. can the amount of CSF your body produces change over time, is there a way to measure it?

i ask because when i read "The Gateway to 10000 Illnesses" by Robert Boyd, and read about Dr. Amir's dental jaw realignment might correct C1 ans the fact Dr. Amir said every ms patient he has seen suffered from tmj. It is nothing special about it, its simply correcting the body's own misalignments.

Currently i was told by a neuromuscular dentist who told me i WILL suffer from tmj in the future and that i needed braces to correct it. i done know if you remember talking with me before but i tried Upper Cervical Chiropractics which UCC for the 1st year it felt like i was ms free but i stopped feeling the benefits then Happypoet was in Dr. Rosa's study where she, sorry if youre a man sorry, had her CSF flow restored with a UCC adjustment.

so i was thinking UCC, jaw realignment, and craniosacral work which is my way so far but i think its backwards, the correct way im theorizing is 1. craniosacral chiropractics, 2. jaw realignment-tmj correction 3. if needed UCC which is simply correcting the body's own misalignment. What do you think?

it all seems to center around CSF flow, making sure it flowing correctly through your body
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Re: CCSVI and CCVBP

Postby civickiller » Fri Jun 14, 2013 10:36 am

dang i started my post last night but feel asleep and finished it when i woke up this morning dang
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Re: CCSVI and CCVBP

Postby NZer1 » Fri Jun 14, 2013 12:14 pm

dania wrote:Had a fall. Did not hurt myself but the person jerked me back into my wheelchair and my neck snapped back. Lost all my improvements. The person who drives me to my chiro appointments fell off a ladder and broke 4 ribs. So now I am unable to get to the chiro. I wish there was a facility that I could stay at and get treated every day or wish I was rich and buy the Cox 7 table and pay the chiro to come and treat me every day.


Hi dania,
I hope that you have found solutions to all these challenges and you are back on the positive side of Life.
I sometimes think these times are there to remind me of needing a back up plan and also how fragile we are!

Be well,
Nigel
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Re: CCSVI and CCVBP

Postby NZer1 » Fri Jun 14, 2013 12:18 pm

Hi Dr F,
Civic's question about why the lesions are close to the third ventricle remind me that I have wondered why they are also extremely common in the hypothalamus of PwMS.
When Rob Zivardinov published a few papers with the Hypothalamus axis lesions I wondered if that was a link to CCSVI or was caused by a different process?
Any insights?

;)
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Re: CCSVI and CCVBP

Postby uprightdoc » Fri Jun 14, 2013 1:28 pm

civickiller wrote:...
1. Why is there scarring around the ventricles, mainly? I thought for a second it was from CSF leaking from the ventricles but isnt there already CSF in the skull so why is there scarring

2. is a lot of the ms symptoms from pituitary gland and thlamus dysfunction? Is it from a lack of CSF?

3. can the amount of CSF your body produces change over time, is there a way to measure it?

... the fact Dr. Amir said every ms patient he has seen suffered from tmj. It is nothing special about it, its simply correcting the body's own misalignments.

Currently i was told by a neuromuscular dentist who told me i WILL suffer from tmj in the future and that i needed braces to correct it. i done know if you remember talking with me before but i tried Upper Cervical Chiropractics which UCC for the 1st year it felt like i was ms free but i stopped feeling the benefits then Happypoet was in Dr. Rosa's study where she, sorry if youre a man sorry, had her CSF flow restored with a UCC adjustment.

so i was thinking UCC, jaw realignment, and craniosacral work which is my way so far but i think its backwards, the correct way im theorizing is 1. craniosacral chiropractics, 2. jaw realignment-tmj correction 3. if needed UCC which is simply correcting the body's own misalignment. What do you think?

it all seems to center around CSF flow, making sure it flowing correctly through your body


The scarring is caused by degeneration of the myelin. As I mention in my book, the demyelination can be caused by chronic ischemia, edema and NPH. Mechanical stretching, such as from edema or ventriculomegaly can damage myelin as well as alter nerve conduction. Myelin is also very sensitive to decreased blood flow (ischemia).

I think many MS signs and symptoms are due to thalamic dysfunction, which can be caused by chronic ischemia, edema and NPH (ventriculomegaly). The location makes the thalamus susceptible. The pituitary is also very susceptible to similar problems and is often affected by intracranial pressure problems.

CSF production is dependant upon sound arterial circulation to the choroid plexus and salt secreting cells of the ependyma. It's also dependant upon pressure gradients. In brief all of these conditions are affected by aging and I suspect CSF active and passive CSF producion and brain bouyancy decreases with age. The dura mater of the brain also ages. The combination will most likely favor the brain sinking in the cranial vault and into the foramen magnum, which I call a pressure cone in my book.

You are right. While manipulating the TMJ or putting splints in the mouth may help some patients with MS, I don't agree with Dr. Amir's theory at all. As you said, it's backwards. Craniosacral is a good approach but not as it is currently practiced by most doctors and dentists have no background in the spine, orthopedics or neurology. UCC is much more scientific and a good approach but there is much more that can be done. The special flexion-distraction tables I have mentioned are excellent but again doctors are poorly trained and not prepared for serious neurodegenerative conditions and associated challenges such as cord tethering, cysts, syrinxes, CTE, etc.

CSF flow is just one part of the problem. It also involves arterial and venous flow, which is why I refer to the overall circulatory problems as cranial hydrodynamics. There are also problems with displacement of the brain in the vault,tethering, inflammation among other things.
Last edited by uprightdoc on Fri Jun 14, 2013 1:42 pm, edited 1 time in total.
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Re: CCSVI and CCVBP

Postby uprightdoc » Fri Jun 14, 2013 1:36 pm

NZer1 wrote:... Civic's question about why the lesions are close to the third ventricle remind me that I have wondered why they are also extremely common in the hypothalamus of PwMS.
When Rob Zivardinov published a few papers with the Hypothalamus axis lesions I wondered if that was a link to CCSVI or was caused by a different process?
Any insights?...


Good question Nigel. I suspect it has to do with cranial hydrodynamics. In addition to the deep veins of the brain, the thalamus and hypothalamus drain into the cavernous sinus. The cavernous sinus drains into the petrosal sinuses, which drain into the internal jugular. It also drains into the pterygoid sinus outside the vault just below it. Venous back pressure can affect circulation to the thalamus and hypothalamus. Both are also susceptible to faulty CSF flow, NPH and ventriculomegaly.
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Re: CCSVI and CCVBP

Postby NZer1 » Fri Jun 14, 2013 2:31 pm

uprightdoc wrote:
NZer1 wrote:... Civic's question about why the lesions are close to the third ventricle remind me that I have wondered why they are also extremely common in the hypothalamus of PwMS.
When Rob Zivardinov published a few papers with the Hypothalamus axis lesions I wondered if that was a link to CCSVI or was caused by a different process?
Any insights?...


Good question Nigel. I suspect it has to do with cranial hydrodynamics. In addition to the deep veins of the brain, the thalamus and hypothalamus drain into the cavernous sinus. The cavernous sinus drains into the petrosal sinuses, which drain into the internal jugular. It also drains into the pterygoid sinus outside the vault just below it. Venous back pressure can affect circulation to the thalamus and hypothalamus. Both are also susceptible to faulty CSF flow, NPH and ventriculomegaly.


Is Upright MRI able to help with imaging of the CSF through the thalamus and hypothalamus so that calculations could be made?
I wonder if Dr Haacke is looking into this as well?

;)
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Jun 15, 2013 1:10 am

The thalamus surrounds the thrid ventricle. The hypothalamus is on the lower front end of the thalamus. MRI is being used to study CSF flow in the third ventricle (thalamus). MS has been associated with enlargement of the third ventricle. The hypothalamus and pituitary are affected by surrounding CSF in the interchiasmatic and suprasellar cisterns. Because of its location beneath the brain, the pituitary is often affected in intracranial pressure problems. Upright MRI is relatively new and very few studies have been done.
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