CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby uprightdoc » Sat Jul 06, 2013 9:35 am

Hello Vesta,
I have all of Dr. Royal Lee's books. He was a remarkable biochemist and organic farmer way ahead of this time. His whole food extracts are more on the order of neutraceuticals and physiological agents than simple vitament supplements. He was big on cofactors in vitamins long before anyone considered the importance of cofactors like rutins, hespirdins, bioflavinoids in vitamen C. Everyone else was focused on and isolating ascorbic acid. I am very familiar with all the Standard Process products. They are highly effective. While I understand and like the protomorphogen theory of cell determinants, which predates current stem cell theories by decades, I never warmed up to the practical clinical application of them. The results just weren't there.

I have no respect for Stephen Barrett MD. He should stick his big nose into investigating and exposing the rampant fraud in his own profession.
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Re: CCSVI and CCVBP

Postby HappyPoet » Sat Jul 06, 2013 11:37 am

Oh dear, you poor thing, dania, having been thrown from a horse at a young age. Dr. Flanagan sure knows his stuff which I can attest to first hand. My initial appointment with him showed what everyone at TiMS already knows: Dr. Flanagan is a consummate, highly experienced, extraordinarily scholarly, world-class, empathetic professional.

On the top of one of his bookshelves is a museum skull model, now owned by him, which is one of only three in the world--actually being able to see all the tiny holes and sharp angles that our nerves and blood vessels traverse, helps make it quite clear why there can be, and are, so many people in the world with neurodegenerative problems.

My husband and I couldn't believe how thoroughly he performs his examination. He takes a complete history, tests every muscle, zeroes in on all areas that are causing problems, and offers actionable solutions and suggestions. He offered to talk with my AO upper-cervical chiro, and he recommended a local chiro who has the right distraction table for my lower spinal problems.

We're all extremely, incredibly lucky that a doctor of such reputable, impeccable qualifications participates on TiMS. I hope things go well for you, dania.
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Re: CCSVI and CCVBP

Postby dania » Sat Jul 06, 2013 11:54 am

My falls from my horse were after 1988 when first diagnosed with MS. The falls probably exacerbated the problem but I doubt they were the cause. I started riding when I was 18 and as I said I noticed problems as early as 12 years of age.

Happy Poet, you are so fortunate to have Dr Flanagan evaluate you. Would it be wonderful if he had a clinic that I and Blossom could stay at, be evaluated and treated. I would be there in a flash.

Dr Flanagan I think the tides have turned and many more are finally coming around to your thoughts on CSF and neurodegenerative diseases. Just look at your thread. It is the second most popular one and I bet dollars to donuts it will be the most popular in the not to distance future.
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Jul 06, 2013 2:18 pm

Thanks for the compliments Poet.

The skull is a Beauchene skull preparation, that is disarticulated. They are rare but not that rare. Good luck trying to find one though and they are very expensive if you do. Orthodontists and physical anthropologists use them. I also have the full skeleton with painted origins and insertions of muscles, as well as my demo skull that I used to show you the tunnels of the cranial vault. I was given the anatomical specimens for my research by a patient who worked at the Museum of Natural History in NY. He also introduced me to Dr. Harry Shapiro who invited me to the museum to research into closure of the sutures and deformation of the base of the skull, which is how it all started. The anatomical specimens were invaluable to my studies. They provided lots of important forensic evidence. I was given many rare and precious normal, pathological and comparative anatomical specimens to study as well. They are too numerous to mention here but one was the five horned Rothschild giraffe I mentioned previously. The artificially deformed crania from Peru and Bolivia are what started me thinking about hydrocephalus in adults.
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Jul 06, 2013 3:26 pm

Thanks Dania. I just got back from the lake. You are in pretty good hands. I would be using the table on you if I had one here. I would however, liked to have done a baseline ortho, neuro kinesiological assesment to monitor your progress, as well as your complaints and comments regarding head and neck positions. It would be well worth a try for Blossom if she can find and get to a good doctor who has the right equipment.
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Re: CCSVI and CCVBP

Postby HappyPoet » Sat Jul 06, 2013 7:31 pm

DrF, how could I have forgotten about your very cool skeleton!?! It's fascinating, and I could have played with it for hours, but I didn't dare touch it, lol. I did, though, study it as much as I could, and I'd like to study it more, especially the rib cage and shoulder blades because of my MS Hug, the vertebrae because of all my spinal problems including my misaligned Atlas, the skull and how it sits on the Atlas, the pelvis and how it relates to the Atlas, and so much more. Also, the muscles and ligaments being colored on the skeleton is such a help in seeing how parts of the skeleton are connected and how they're able to move.
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Re: CCSVI and CCVBP

Postby uprightdoc » Sun Jul 07, 2013 2:04 am

I suspect that the thoracic spine plays a significant role in the MS hug. The ribs make the thoracic spine much more stable than the cervical, lumbar spine and pelvis but it is affected by problems in the spine above and below it. There is also comparatively less space inside the spinal canal relative to the size of the cord. Spondylois, bone spurs and degenerated ligaments that penetrate into the canal decrease the limited space further which can affect blood and CSF hydrodynamics.
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Re: CCSVI and CCVBP

Postby dania » Sun Jul 07, 2013 6:36 am

Last night I discovered more what my problem is. Definitely mechanics. My left leg bone is drawn up into my hip bone. That is why I can stand up when I completely bend over, my chin touching my knees.This action draws my leg bone down out of the hip. I also stuck a piece of wood under the hip bone and I was able to sit straight in my W/C, my left shoulder which has been slanting down became straight allowing me to now use my left arm and I was able to push my W/C quite easily. And the touch sensation returning to normal. MS hug disappeared. I also noticed that depending on my position the hot brain is on or off in a sec. Oh, Dr Flanagan you have been spot on!
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Re: CCSVI and CCVBP

Postby uprightdoc » Sun Jul 07, 2013 8:56 am

Dania,
The following quote is from the study you previously posted a link to on degeneration of the cervical spine.

"The basis of patient evaluation begins with a thorough history... Aggravating and alleviating factors are clues which often help the clinician formulate a differential diagnosis..."

Reports by patients of an increase in strength or weakness, as well as other signs and symptoms in different positions is a clue that should always be investigated.
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Re: CCSVI and CCVBP

Postby vesta » Mon Jul 08, 2013 7:40 am

Just Food for thought.
Multiple Sclerosis : The Rigidity Disease
Recently I was treated by an outstanding Osteopath. He is the official Osteopath
for a championship French sports team and is accustomed to putting dislocated
muscles and bones back into place. When I arrived I could barely walk and
wondered if my nervous system was failing me. No, upon leaving my legs moved
freely, I was liberated. And think of it this way. The muscles were so
tightly compressed around my pelvic region that they literally prevented my legs
from moving. Like a horror film, I could imagine my entire musculature
shrinking, compressing my skeleton to the point I was becoming immobilized. He
said there was so much tension built into the shoulder/neck/head area that the
muscles were compressing all circulation from the head like a vise. So if I
think of what these muscles are doing to fluid circulation through my neck,
head, and spine I can well imagine a blood reflux injury to the central
nervous system - a good definition of MS.

I think there is a MS personality which creates this exreme body tension problem. This may anger some, but keep in mind I am describing myself as much as anyone. Also, rigidity describes not only the patient but also her therapist/Doctor. That is why it is so difficult to get experts to "move" away from their established position and see the disease differently. They are PARALYZED. Indeed, as MS patients become more flexible and move away from orthodoxy, they may become less "sick" than their Doctors. If your Neurologist has a hysterical fit at the mention of CCSVI, consider his to be a neurotic, "sick" reaction. Let's look at this.,
I believe MS patients and their Doctors/Therapists struggle under the shadow of the Mythical God Saturn. What does he represent?
Authority. Career. Profession. Duty. Recognition. Rules. Patriarchy. Doctor. Science.
Hierarchy. Rank. Status. Conformity. Responsibilty. Organization. Order. Orthodoxy
Control. Constriction. Rigidity. Inflexible. Repression. Limitation. Depression. Negativity. Critical. Caution. Judgement. Hardship. Security. Safety.
Structure. Skeleton. Bones. Teeth.
Falls. Failure (Success) Fear.
Wisdom. Old Age. Time.
Cold. Crystallization.
Now, remember, I’m talking about myself. On the Thisisms.com site a newly diagnosed member asked what she should do, I sent off my “After Diagnosis” blog. Her response (I can’t find the exact quote) “Yikes, that’s too much for me and said with such authority!”. I frightened her off. In fact, everyone tends to write with authority, for one it’s zinc and magnesium (what about the rest? Vits B, C, D, E, minerals calcium etc) For another a long recommendation for insulin testing. Newbies tend to get hit with an overwhelming deluge of suggestions (and with such AUTHORITY) that understandably they might prefer to retreat and just go for the safety of the established authority, their Doctor. To get a good look at MS Authority, look at the You Tube Video of Dr. Terry Wahls “Minding Your Mitochondria”, she has it in spades. I’m not the only one who finds her “I am the one and only true authority” tone irritating even though I find her video very instructive. (I don’t altogether agree with her diet – the meat part especially– and she doesn’t there say that she stimulates her blood circulation through electrical stimulation of her back muscles. That’s my authority protesting. Details here under Paleo-Macro diet.) You often hear this same deep, imposing tone of authority in MS patient videos.
Fear. Obviously MS triggers fear, and the fear exacerbates the MS. For Safety one seeks the shelter of the Patriarch, the high status Neurologist. And one might even gain in status by entering into the restricted circle of MS patients who undergo all the high priced examinations – MRI, Spinal Tap, etc. and get prescribed the high priced drugs. Everyone hopes to be THE ONE to unlock the enigma of MS and find the cure. One gains status by participating in the Scientific project (though most would agree this is a meager compensation for having a debilitating disease.)
MS patients are known to be high powered, ambitious people. Consumed by what I call “Success Stress”, in search of status, rank, recognition. Some conform to the established treatment protocol. Others resist. But they are all subject to the rigidity of the MS model presumably dictated by Science, if only in having to deal with Neurologists who refuse to consider alternative therapies as being Unscientific.
Unfortunately Medical Science is too deformed by Money and Vested interests. The FDA disgraced itself by overriding their own scientists to OK the neurotoxin Aspartame and they continue to refuse pulling it from the USA market. One has reason to believe that Big Pharma pressured the FDA to restrict Angioplasty treatment for MS patients. Would some curious Scientist set up a study to see if a simple back massage would stop an MS attack? Or do a statistical study of MS women to see if there is a high incidence of menstrual cramp histories? Everyone is looking for the Big Buck breakthrough. And “Science” has already determined that beta interferon doesn’t work. So why keep prescribing it?
RIGIDITY: I believe that childhood stress may actually deform the vascular system eventually leading to the blood reflux in CCSVI. And even if that deformity doesn’t exist, a lifetime of stress leads to muscle contraction, and skeletal rigidity which in turn may impact the vascular system and fluid circulation through the brain and spinal cord. Thus specialists in bones, skeletons, and teeth may be called on to treat this rigidity in order to overcome it – Osteopaths (Europe), Chiropractors, Dentists (known as Saturn professions.) Massage therapists may be as effective (unless there is a real skeletal deformity) even though they suffer from a lack of status which tends to undermine their position. What if MS could be best treated by a Masseuse rather than a Neurologist? Think of the status comedown. Better stick with orthodoxy.
How does this fit me?
I have always suffered from extreme muscle tension. Rigidity. Crystallization. Subject to Falls. Subject to the imperative to succeed. Childhood fear of authority. However, I resist authority – which increases the body tension. At the same time I’ve been open to unorthodox healing modalities. I want my voice to be heard, my authority recognized. May not happen, but the question arises. And in some ways I consider myself a healer, if only as a hidden voice for change.
If one feels that Saturn doesn’t define one’s character, chances are good it defines a childhood authority figure against whom one developed in opposition.
A good quote from the great historian Eugen Weber writing about why so many Doctors in 1930’s France adhered to the reactionary Royalist political faction l’Action Francaise.
“The authoritarian temperament is a professional deformation in Medicine.”
(This can be said for most Healing therapists.)
My general advice. Seek Flexibility. Take confidence in your own ability to heal, find your own authority. Once I heard about Dr Zamboni and CCSVI I asked for a neck, upper back massage to bring blood out of the brain and thus stopped “attacks”. I then tried out TENS acupressure with unexpected success. It may be something as simple as an occasional massage will do wonders. Exercise and seek suppleness – blood circulation. It’s frustrating to me that so many remain imprisoned in old rigid concepts. But I believe the ice of orthodoxy is slowly melting even though established vested interests don’t want to let go.
And back to the idea of sickness. Classical Homeopaths believe that mental illness is more serious than physical illness, that when a psychotic person “heals” he falls ill with Eczema (for example) or another physical ailment. I like to point this out to arrogant people who suggest that psychological problems must be at the origin of my MS. This usually shuts them up. (Well, this may be true in the limited sense that stress triggers severe body/muscle tension.)
I believe that Neurologists are not doing their job. That will be my next post, what Neurologists should be doing. If one’s Neurologist shuts down at mention of CCSVI, for instance, he has a rigidity problem. He in fact may be “sicker” than you (if that is any consolation.) Unfortunately we are all caught in an iron clad rigid web of orthodoxy, conformity, hierarchy, which vested interests play on to maintain their privileges (drug companies, neurologists, medical equipment companies and an entire industry surrounding MS diagnosis and treatment.) They use Fear to keep everyone in line, fear of paralysis for the MS person, fear of loss of status and recognition for others (and also the MS person.)
The entire planet is in the throes of Revolt against established authority. Why not the MS Community?

MS Cure Enigmas.net
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon Jul 08, 2013 9:50 am

Thanks for the post Vesta but I would like to stick to the topic of this thread and not drift off into psychology. That's a different topic that would be better treated as a separate thread. Vitamins, minerals, neutraceuticals, herbs and diet are also far to broad a topic for me to cover here and their use is unique to the individual's particular needs. This thread is about common physical components of neurodegenerative processes and conditions.
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Re: CCSVI and CCVBP

Postby dania » Mon Jul 08, 2013 10:02 am

Dr Flanagan my left leg is being pulled up into my abdomen that it is now compressing my intestine. Blocking it. Cannot defecate or pass gas. I had a piece of toast and half a coffee when all of a sudden I vomited. Nobody in the medical profession believes me and they think I am constipated due to MS. Any suggestions on what I can do to bring down my leg?
The person I found to drive me to my chiro appointments cannot do it any more. When are you opening your facility? We need it now unfortunately. Blossom and I are waiting. I am sure there are others.
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon Jul 08, 2013 1:38 pm

Dania,
The only thing that could pull your leg muscle up like that is a tonic spasm. Typically, spasms of that intensity cause significant pain. Any type of intestinal colic can also knot people up. Parkinson's and MS both affect the autonomic nervous system and most likely supress digestive juices and intestinal motility. You could try massaging your lower abdomen in circles as well as pushing your leg down. It's hard to imagine that you don't have autonomic problems. You need to have someone check out both the muscle and the organ components. It's part of what I do. Most doctors don't. The flexion-distraction table can be helpful for intestinal motility to a certain degree as well.

There are many people I would like to help but I am busted-up myself and do have physical limitations. My vision of centers to treate neurodegenerative conditions wouldn't take that much to build and do research right now using what is already available. The problem is finding doctors who are willing to do the work and learn. It's not easy. It's a complex topic that requires many years of study. Hopefully, I will get other professionals interested.
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Re: CCSVI and CCVBP

Postby blossom » Mon Jul 08, 2013 6:50 pm

hi dr. flanagan and all, i've been reading and lurking here. i've been haveing one hell of a time. i've been worsening with time. but the last 2 weeks tops it all. i know being in a wheelchair worsens things very few are fitted to the patient correctly and the leaning bobbling around causes more damage to the spine, nerves circulation etc. but, my wheelchair got caught in the rain and it's at the shop. brought a loaner. made for the jolly green giant and i'm 5' 2". i can't transfer from it so no standing so weakening. i was at least laying it back trying to keep arm movement going. was laying back in my bat position and the chair broke down. luckily my brother was there ""i'm alone most of the time" he got me up. they came and got the chair up. don't give me a clue when i'll get my chair back. and, they don't really give a damn.

dania has these problems and listening to the positioning importance and the signifance it has to her symptoms. as she said there are many more.

yes, dr. flanagan, your treating clinic is badly needed. and, i believe many many are suffering and future patients will suffer needlessly because of the ignorance and greed of the so called specialist in charge. i,dania and others need it badly-we are out of wait.

right at this moment i am so much worse because of the positioning due to this chair that if i were to go to a neuro. and him tell me my spine has nothing to do with my symtoms i think i'd whack him in the nose putting the nose bones crossways in the breathing canal and if he says he has trouble breathing because the bones are blocking his airway-i'd tell that's impossible and whack him again just for good measure. enough is enough. --- man, i'm so fed up with the bs.

dr. flanagan i hope i bought the winning ticket.
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Re: CCSVI and CCVBP

Postby uprightdoc » Tue Jul 09, 2013 3:26 am

Hello Blossom,

I am sorry to hear about your troubles with the chairs. Hopefully you get your chair back soon.

I previously posted and highlighted the following line from the study on cervical degeneration in light of your condition and taking an appropriate cases history...

"...Aggravating and alleviating factors are clues which often help the clinician formulate a differential diagnosis, and then narrow the options to the most likely etiology for the compliant in the majority of cases...

L’hermittes sign can be seen during the course of range of motion, which will be reported by the patient as the presence of an electric shock sensation with flexion and extension of the neck in some patients with cervical myelopathy..."


You may be on to something. A couple a quick jabs to the tip of the nose and a deviated septum may help clear the mind so it can listen.

I hope you win the lottery.
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