CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby tazbo » Mon Jul 22, 2013 1:26 pm

http://www.thestar.com/life/health_well ... octor.html
It looks like the stats and symptoms fit ms as well and trauma that leads to developing other issues.
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon Jul 22, 2013 2:18 pm

Nice article Tazbo. I have been studying traumatic brain injuries for many years now. I have a different perspective on it but I it is too length a topic so I won't go into it here.

I had a young woman contact my Wordpress blog last week regarding her brother in law who developed Devic's disease which affects African-Americans. Asians get a similar form called optic spinal MS. In contrast to MS, Devic's and optic spinal MS causes optic neuritis and transverse myelitis. Though Asians and African-Americans have a much lower incidence of MS, Devic's and optic spinal MS are much worse and more disabling when they do get it. I think the difference has to do with skull design.

The young man in this case was diagnosed with Devic's three months after getting hit in the head by a baseball swing. At the age of 13 he was hit in the head and knocked down by a pitch. Interestingly, Lou Gehrig was a famous baseball player who got ALS which affects the cord and sometime the lower part of the brainstem. It is rapidly progressive and often fatal. I had patients with ALS. Lou Gehrig had many concussions in his career but one in particular was a fastball that knocked him out cold. Head gear didn't have protection at the time. Currently, many linemen in football are coming down with dementia and Parkinson's despite heavy duty protective head gear. Mohammed Ali took many horrific blows to the head many from much larger men. Ali is the poster boy for head trauma and Parkinson's. Michael J. Fox has Parkinson's. Fox was an avid hockey player. He was checked hard into the side boards once, which knocked him unconscious. I can tell you endless stories about patients with neurodegenerative conditions most likely related to head trauma.
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Re: CCSVI and CCVBP

Postby dania » Tue Jul 23, 2013 9:43 am

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Re: CCSVI and CCVBP

Postby uprightdoc » Tue Jul 23, 2013 11:11 am

It sure is. I used to use plumb lines. I still have my level for checking shoulder and pelvic tilt as well as depth of spinal curves. I used Dr. David Walther's Applied Kinesiology observational analysis of muscle imbalances in upright posture along with Dr. Clarence Gonstead's system of specific pelvic x-ray analysis. I also used an Applied Kinesiology and Sacrooccipital Technique approach to the pelvis. The pelvis is perfectly designed for upright posture and bipedialism but upright posture also predisposes it to some problems due to design.
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Re: CCSVI and CCVBP

Postby dania » Tue Jul 23, 2013 11:42 am

uprightdoc wrote:It sure is. I used to use plumb lines. I still have my level for checking shoulder and pelvic tilt as well as depth of spinal curves. I used Dr. David Walther's Applied Kinesiology observational analysis of muscle imbalances in upright posture along with Dr. Clarence Gonstead's system of specific pelvic x-ray analysis. I also used an Applied Kinesiology and Sacrooccipital Technique approach to the pelvis. The pelvis is perfectly designed for upright posture and bipedialism but upright posture also predisposes it to some problems due to design.
So the big question is How do I improve????????? I am so disabled now, I need more than chiro, physio, osteo... Too bad I did not meet you before I became so disabled. I feel like I need to be in something where I am suspended, not putting weight on my coccyx/pelvis and something between my thighs, forcing my leg to rotate outwards into a more normal position.
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Re: CCSVI and CCVBP

Postby uprightdoc » Tue Jul 23, 2013 2:34 pm

I would have to know what is wrong first which requires a complete orthopedic and neurological evalutation with a gamut of muscles tests, as well as reviewing your abilities and disabilities.
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Re: CCSVI and CCVBP

Postby dania » Tue Jul 23, 2013 7:26 pm

Yes. That would be best. Impossible to have that done here. They lack your insight and expertise. Just an example, I showed my neuro last week how I am able to stand up (in a split second, no struggling) when I change my position and my strength changes depending on my position, he said NOTHING. The people who see me daily, their eyes popped out seeing this.
Either, you come out of retirement or we just have to clone you.
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Re: CCSVI and CCVBP

Postby vesta » Wed Jul 24, 2013 6:45 am

Hi Dania: Your Neurologist, on seeing the profound change in strength occasioned by body position, should immediately get busy finding an expert in treating spinal injuries, musculo-skeletal trauma etc to study and correct the problem. He is not doing his job. Doctors like that remind me of an idiot child who has learned his lesson well except it's the wrong lesson and he doesn"t want to let it go. Decide that you are going to find a solution and keep at it until you do. He needs to find the specialists and refer you, get off his butt and be useful. If not him, then find someone who will. I think you can do so if deep inside yourself you are determined.
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Re: CCSVI and CCVBP

Postby dania » Wed Jul 24, 2013 10:56 am

Yes. my neuro SHOULD DO what you wrote. And you are correct that he is not doing his job. Being so disabled I have to rely on others as I am alone. Seeing a specialist can take months or even over a year. My neuro gave me a referral to see an ENT doctor for the scarring I developed in my neck from surgery and I know it is not the right doctor to see. I cannot waste precious energy doing something that will not make a difference for me. The medical system in Canada sucks for someone like me.
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Re: CCSVI and CCVBP

Postby dania » Wed Jul 24, 2013 11:20 am

Going for Xrays next week. Which ones should they do?
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Re: CCSVI and CCVBP

Postby uprightdoc » Wed Jul 24, 2013 2:50 pm

Dania,
If it were me, I would get and AP (anterior to posterior) and Lateral pelvic views to start with. If you can handle it standing views are better but not necessary if you can't. Make sure the technician include the tops of the ilia and bottoms of the ischial tuberosities. I would also recommend AP and Lateral lumbar (low back) views). If you landed hard enough to fracture the tailbone you may have injured discs as well. While your at it, an AP and Lateral cervical view would be helpful.

The care patients get for MS in the US isn't any better than Canada. It just costs a lot more.
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Re: CCSVI and CCVBP

Postby blossom » Thu Jul 25, 2013 4:00 pm

dania wrote:Yes. my neuro SHOULD DO what you wrote. And you are correct that he is not doing his job. Being so disabled I have to rely on others as I am alone. Seeing a specialist can take months or even over a year. My neuro gave me a referral to see an ENT doctor for the scarring I developed in my neck from surgery and I know it is not the right doctor to see. I cannot waste precious energy doing something that will not make a difference for me. The medical system in Canada sucks for someone like me.


dania, or anyone if you find a neuro to do as they should ya better corner him and not let him get away-he's rare. i've been at it since 90 showing, positioning, begging, threatening you name it and all i got or get is "the look" or some lame smart ass answer. there are more and more patients diag. wrongly and pushing for change. that should help but ya better have a hammer with ya. and even at that----------------
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Re: CCSVI and CCVBP

Postby NZer1 » Thu Jul 25, 2013 4:51 pm

Treating symptoms is great and ,,,,,,
The article below is about one disease, Alzheimer's, which has been misunderstood and over drugged for 'ever' and there is also many other de-generative that 'require' a rethink.
MS is screaming out for more research because people are having symptom relief as well as progression halted by anti-biotic protocols designed to 'treat' stealth bacterial infections, such as CPn and Lyme etc.
WHY IS THERE NO RESEARCH HAPPENING WHEN THESE OUTCOMES ARE PUBLISHED??

Let's Rethink Alzheimer's
http://www.huffingtonpost.com/dr-david- ... 41828.html
Alzheimer's now affects more than 5.4 million Americans and may be costing as much as $200 billion annually, twice what is spent on cardiovascular disease and close to triple what is spent on treating cancer, according to a recent RAND study.

The central thesis in terms of what causes Alzheimer's, has focused on the role of a particular protein, beta-amyloid, as a cornerstone in the degeneration of the brain seen in this disease. In fact, new brain-imaging technology is now available that can actually determine the amount of this protein in people as a way to help predict their Alzheimer's risk. But in the absence of any meaningful treatment, the utility of this line of investigation is questionable. I'll leave that be, but indicate that clearly half of individuals studied who are found to have significant elevations of beta-amyloid are completely intact from a cognitive perspective.

Focusing on the purported role of beta-amyloid in Alzheimer's has led to pharmaceutical researchers expending incredible resources to find drugs to rid the brain of this seemingly dreadful protein. And thus far, all efforts have failed, miserably.

It comes as no surprise that a study published recently in the New England Journal of Medicine is yet another report of the failure of a drug, one designed to reduce beta-amyloid in the brains of people at risk for Alzheimer's disease, has not only failed, but its use, compared to placebo, actually led to worsening of cognitive function. This finding should cause researchers and clinicians alike to question their perception of beta-amyloid. If reducing amyloid in the brain makes people decline more rapidly, perhaps it isn't the problem. Perhaps it is actually doing the brain good.

It turns out that beta-amyloid is an "antimicrobial peptide," a technical term for a protein that helps get rid of foreign organisms. Indeed, Dr. Ruth Itzhaki from the University of Manchester has published extensively demonstrating compelling evidence of the central role of the herpes simplex virus in Alzheimer's disease.

So consider that beta-amyloid is increased in the Alzheimer's not as a cause, but rather as an effect. This protein, the target of so many failed pharmaceutical campaigns, may well be our brain's desperate response to an invading organism, herpes simplex or who knows what else. So we should reconsider our thought process on what underlies this devastating disease, especially as it relates to the role of beta-amyloid. Remember, the enemy of my enemy is my friend.

Thinking, thinking, thinking,
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Re: CCSVI and CCVBP

Postby blossom » Thu Jul 25, 2013 5:52 pm

dr. flanagan, what are your thoughts and input on this. a friend of mine who is a massage therapist and schooled some in what they call "body talk" steered me to this. although i have seen and experienced very small improvements with limited body talk treatments i think it would be a plus in some of the healing. but, as with everything if you are not in the position to pursue many things you try to do what ya can.

i know this is off the beaten path somewhat but i just had to show you the puppy video. and, also get your thoughts on this dr. in florida. it's a rotten shame and a loss for all that you have not yet been able to teach train and treat the masses.

get the kleenex- http://www.youtube.com/watch?v=SVTi42ytmMg

http://www.youtube.com/watch?v=i82mgRUMB84
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Re: CCSVI and CCVBP

Postby uprightdoc » Fri Jul 26, 2013 2:38 am

Beta amyloid and herpes simplex are effects not the cause of Alzhiemer's. Helico bacter pylori is an effect of dysautonomia in Parkinson's not the cause of PD.
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