CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby Robnl » Wed Jul 31, 2013 2:12 pm

Doc,

28/8, als soon as i got the mri images, i will post some here.

One other weird thing; when i go to the swimmingpool, it's hard to get in. With the wheelchair to the edge, into the pool, walking stond a bit. After an hour go out and walk beween two people 5meter to dressing room. I think it is better going out because i had a 'cooldown' from the water

Robert
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Re: CCSVI and CCVBP

Postby uprightdoc » Wed Jul 31, 2013 3:02 pm

That's a significant clue. It could be the cooling antiinflammatory affect reducing swelling around the cord. I suspect it may also have to do with decreased gravitational effects on the spondylosis. Upright posture causes compression loads that can make the spondylosis worse. Compression loads from sitting in a wheel chair are worse because the muscles aren't working to reduce the strain. Aqua therapy is good for decompression of arthritic joints. Salt water is even better.
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Re: CCSVI and CCVBP

Postby Robnl » Thu Aug 01, 2013 12:46 am

One thing leads to another :mrgreen:

When i go to bed, lay down and sleep and wake up after 3/4 hours i can go to the bathroom myself (holding on to walls/doors...but ok)
sleeping for 8 hours is still ok, but i have to...how do i say it...get used to be vertical, very weak/totally no balance. After a few minutes it gets better.
I try to avoid sSleeping for 10 hours or more....mre weakness, recovery time is longer...

Lower back is also changing frequently when it comes to strength; sometime it's hard to sit straight, most of the time the muscles work ok.
When the lower back is weak, walking/stepping is even more difficult (looks like i'm sticked to the floor, standing on bubblegum :mrgreen: )
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Re: CCSVI and CCVBP

Postby uprightdoc » Thu Aug 01, 2013 2:19 am

Sleeping decompresses the spine but it can also cause problems with the muscles of the spine, especially the neck muscles. You obviously have problems with compression of the spine while you are upright. Sleeping for short periods decompresses the spine the same as aqua therapy, which allows you to walk better unassisted. Prolonged sleeping, however, makes you very weak. Your low back also makes you weaker and more spastic walking when it is sore. Considering your cervical MRI and history my guess is that you most likely have chronic inflammation and spasms in all the muscles of the spine. Your neck muscles are most likely a mess of knots. Getting a good treatment program that focuses on rehabilitation of the musculoskeletal problems and appropriate exercise routines will help you manage your condition better.
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Re: CCSVI and CCVBP

Postby Robnl » Thu Aug 01, 2013 3:48 am

Thx,

This afternoon i see my physiotherapist, will discuss our conversation with him!

Regards,

Robert
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Re: CCSVI and CCVBP

Postby dania » Thu Aug 01, 2013 7:48 am

Dr Flanagan what is your opinion this product? Wondering if it could help me. For my SI joint which is so out of place and for my muscles in my neck and shoulders and perhaps the MS hug.
http://www.kttape.com/
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Re: CCSVI and CCVBP

Postby uprightdoc » Thu Aug 01, 2013 8:52 am

We treated many athletic and sports injuries so we used many different types of elastic wraps and supports for all the joints. Elastic tapes and wraps won't be very helpful for sacroiliac problems due to the size and strength of the joint. It would also be inconvenienct to use. We used much stronger trochanteric belts to cinch the SI joints, ligaments and hip muscles together. The belt had a quick release so that once the tension was set to the desired strength it was easy to put on and take off.
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Re: CCSVI and CCVBP

Postby dania » Thu Aug 01, 2013 9:18 am

uprightdoc wrote:We treated many athletic and sports injuries so we used many different types of elastic wraps and supports for all the joints. Elastic tapes and wraps won't be very helpful for sacroiliac problems due to the size and strength of the joint. It would also be inconvenienct to use. We used much stronger trochanteric belts to cinch the SI joints, ligaments and hip muscles together. The belt had a quick release so that once the tension was set to the desired strength it was easy to put on and take off.
Which belt would you recommend? What brand?
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Re: CCSVI and CCVBP

Postby uprightdoc » Thu Aug 01, 2013 10:54 am

I like the Serola Sacroiliac Belt which is recommended and used by Sacrooccipital Technique (SOT) craniosacral doctors. You really should work with your chiropractor, however, and have him show you where to place the belt and how tight to cinch it. You don't want it too tight or too loose and you certainly shouldn't use it all the time as it compresses the muscles, joints, blood and lymph vessels. It is intended to provide temporary partial support to strained joints until they heal. In your case it could be used in various ways but it should not be used continuously. It would be better to pad the inside arms of your chairs if necessary.

Has any professional closely checked your muscles and told you which specific ones are weak? Do you know if you have any upper or lower motor signs?
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Re: CCSVI and CCVBP

Postby Robnl » Fri Aug 02, 2013 4:02 am

Hi Doc,

I want to share an image from Poland 2010

Image

Look at the lower part.

Regards,

Robert
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Re: CCSVI and CCVBP

Postby uprightdoc » Fri Aug 02, 2013 4:48 am

That's bad. It would be interesting to see the lower lumbar spine and pelvis.
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Re: CCSVI and CCVBP

Postby Robnl » Fri Aug 02, 2013 4:55 am

You have to be patient doc :mrgreen:

28/8 i will demand a cd after the mri :wink:
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Re: CCSVI and CCVBP

Postby uprightdoc » Fri Aug 02, 2013 6:10 am

blossom wrote:...the mind. body and spirit connection is being explored more and more by science. the energy that we and everything gives off. on and on. example, when as a child, i'd end up banging myself up, go in the house squawling, mom would clean me up, wrap it up, give me a little hug and say see that's not so bad -feel better now? and i did. the placebo healing touch. now, i realize body talk is a different animal than my mom's touch. what i'm getting at is as much as is known--there is more we don't know. if it can do no harm and ya can afford it go for it. just try not to get to crazy with stuff. although the crazy for some may be the answer for others. :wink:

one last switched up thing that should not be taking time from this site-what's your view on this video--then back to the bones and what people are here for--your help, knowedge and experience. as always thank you for hanging around and being here for everyone...


Hi Blossom,
Somehow I missed your post. As far as therapeutic touch is concerned, anything that vitalizes the spirit has healing power, including thoughts. I was involved with serious study of yoga years before chiroractic. It sparked my interest in anatomy and physiology. The chakras got me started in the autonomic nervous system. The person I learned from was a very interesting old man who also got me started in investigating alternative energy and construction, such as rammed earth and the Earnest Flagg (Flagstone) method, as well as radiant heat, heat sinks, organic food etc. I do regular chi kung and martial arts exercises called katas. Katas are form done to develop mind, body and spirit.

The limitations of the flesh limit the power of healing by simple touch, chi kung, kata or meditation. It is better for a knowledgeable professional to touch someone with a purpose and understanding of the problem to heal patients with serious afflictions or injuries. As a professional, I prefer to touch a sprained ankle with ice, interferential stim, or combi-ultrasound, than to lay my hands on the ankle and pray for a miraculous cure for which there is no procedural code for billing purposes. Praying for the swelling to go away doesn't help that much and the Big One upstairs has too much else to take care of running the universe than to deal with a sprained ankle. Praying for direction in finding a good doctor is far more productive.

The theory of water having memory goes way back to the start of homeopathy. The strongest homeopathic formulas have the weakest titrations (dilutions). Personally, I never warmed up to homeopathy professionally. The theory is hard to swallow and the diagnostic system is complex and subjective. Rather than investigating memory in water, I think we should be more focused on the massive radiation, oil spills, floating islands of garbage and fracking that are polluting our global water system, which has reached the breaking point. Water is the yin energy and mother of life.
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Re: CCSVI and CCVBP

Postby uprightdoc » Fri Aug 02, 2013 8:47 am

Blossom,
As far as weakness and disability are concerned, which of your extremities are worse - the arms or the legs - or are they equally weak and disabling? Is there a difference between the left and right sides?
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Re: CCSVI and CCVBP

Postby dania » Sun Aug 04, 2013 10:36 am

Dr Flanagan it is becoming extremely difficult and most of the time impossible to defecate. Long story short, the woman who helps me, tried to do it digitally. She notice that my coccyx is turned in, pressing on my intestines. Said she has another patient with the same issue. And she is even more disabled than me. I know this is probably the cause of most of my problems. Still trying to find someone to take me to get X rays.
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