CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby dania » Wed Aug 21, 2013 9:20 am

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Re: CCSVI and CCVBP

Postby dania » Wed Aug 21, 2013 9:28 am

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Re: CCSVI and CCVBP

Postby dania » Wed Aug 21, 2013 9:46 am

Yesterday I joined Sacroiliac Joint Dysfunction Support Group by and for Patients on facebook. I was amazed at how many with a diagnosed SI joint problem have many symptoms that are also in the MS box. They complain of L'Hermmites, spasms, legs being jerked up, contracted muscles, purple toes, swelling in legs, problems walking etc
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Re: CCSVI and CCVBP

Postby uprightdoc » Wed Aug 21, 2013 2:27 pm

Dania,
The lower spine and pelvis are complex and most likely contributing to but not the cause of your condition. It's hard to be a wheelchair and not have and sacroiliac problem. It would be interesting to see your x-rays if you can get them.
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Re: CCSVI and CCVBP

Postby dania » Wed Aug 21, 2013 2:41 pm

http://www.hanslindgren.com/blog/unilat ... ion-janda/


No one is sure, but some believe that when a coccyx hooks, it tugs on the dural membrane via the filum terminale, a long, slender connective tissue strand that terminates at the end of the spinal cord (Fig 5). This, in turn, is believed to cause dural drag, loss of cerebrospinal fluid flow, and resultant CNS irritation.
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Re: CCSVI and CCVBP

Postby uprightdoc » Wed Aug 21, 2013 11:23 pm

Dania,
The connection between the dura mater, tailbone and skull is the basis of craniosacral theory. A genetically short spinal cord causes drag on the dura mater, which can be seen on MRI as a tethered cord that descends past the T12/L1 area. Neurosurgeon, Dr. Thomas Milhorat developed a unique system of imaging "occult" short cords in the supine and prone positions to check for tension. Some surgeons cut the filium terminale to release tethered cords.

While the pelvis may be contributory in your case, it has nothing to do with the cause of MS or your present condition. I suspect your problems are due to the "plaque" you describe seen in your cervical spine.
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Re: CCSVI and CCVBP

Postby dania » Thu Aug 22, 2013 3:58 am

uprightdoc wrote:The connection between the dura mater, tailbone and skull is the basis of craniosacral theory. A genetically short spinal cord causes drag on the dura mater, which can be seen on MRI as a tethered cord that descends past the T12/L1 area. Neurosurgeon, Dr. Thomas Milhorat developed a unique system of imaging "occult" short cords in the supine and prone positions to check for tension. Some surgeons cut the filium terminale to release tethered cords.

While the pelvis may be contributory in your case, it has nothing to do with the cause of MS or your present condition. I suspect your problems are due to the "plaque" you describe seen in your cervical spine.
I have questioned that exact thought. Just my from my experiences with my improvements from angioplasty, vein bypass surgery and AO adjustments plus spinal decompression and the changes when I change my position that theory does not make sense. At least not to me. My condition change so radically in a second. My hot head, now comes and goes when I change position. You said that is because of CSF flow problem. I think my coccyx is now more curved in as it is pinching my intestine more than before. What if CSF flow is be affected down there because of this? Just a thought. I never suffered from any eye problems, fatigue or loss of balance when tilting my head backwards like so many others with a MS.
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Re: CCSVI and CCVBP

Postby dania » Thu Aug 22, 2013 4:12 am

I will be getting a CD of my Xrays next Monday. And will get them to you as soon as possible.
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Re: CCSVI and CCVBP

Postby dania » Thu Aug 22, 2013 6:01 am

Watch video.
http://erikdalton.com/hooked-coccyx-butt-pain-emotions/

I stuck my hand down at the coccyx are and tried to do what was shown, moving the coccyx manually from left to right. Immediately feeling/sensations returned to normal plus sitting straight and tall. Spine no longer compressed. Unfortunately when I remove my hand it only lasts for about 5 minutes and my spine shrinks back to being curved.
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Re: CCSVI and CCVBP

Postby uprightdoc » Thu Aug 22, 2013 9:45 am

Heat intolerance is most likely due to dysautonomia.

The method of coccyx correction in the video is very similar to techniques used in Rolfing, Logan Basic, Van Rumpt Directional Non-Force Technique and Applied Kinesiology sacral wobble.

Although it can probably leak out, CSF doesn't flow through the filum terminale. Stitting compresses the spine regardless of how you manipulate the coccyx.

Studies by Milhorat showed a connetion between tethered cords and Chiari malformations.
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Re: CCSVI and CCVBP

Postby dania » Fri Aug 23, 2013 2:31 am

I researched dysautonomia and found these were the symptoms

Symptoms of dysautonomia may include:

-- tachycardia (extremely fast heart rate)
-- bradycardia (slow heart rate), palpitations
-- chest pain
-- dangerously low blood pressure
-- wide swings/sudden drops in blood pressure
-- orthostatic intolerance (the inability to remain upright)
-- excessive fatigue, exercise intolerance
-- dizziness, fainting/near fainting
-- gastrointestinal problems
-- nausea, insomnia
-- shortness of breath
-- anxiety, tremulousness
-- frequent urination
-- convulsions
-- cognitive impairment
-- visual blurring or tunneling
-- migraines.

I have none of those and I am perplexed how my hot head can come and go in a second when I change positions. My hot head use to be all the time and changing positions made no difference. But since I can no longer defecate, which I am pretty sure my coccyx has moved and is blocking the intestine, is when my hot head fluctuates when I move.
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Re: CCSVI and CCVBP

Postby uprightdoc » Fri Aug 23, 2013 3:27 am

The enteric nervous system is related to the autonomic nervous system. Dysautonomia includes gastrointestinal problems such as decreased intestinal motility and constipation. Variants of Parkinson's disease are often associated with dysautonomia, decreased intestinal motility and constipation.
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Re: CCSVI and CCVBP

Postby dania » Sat Aug 24, 2013 4:54 am

I am becoming so aware how my contracted muscles, why my abilities fluctuate so much, inability to move (frozen,becoming a statue), defecate, muscles weakness, is all related to the pelvic girdle. Every time I move/shift my pelvis, my abilities change. Just pushing my knees apart (they are glued together) my digestive tract comes alive. I feel and hear it. The gas is now able to come down my intestines and leave my body. The internal vibration that I have felt and complained about for more than 15 years I now realize is the tethering of the spinal cord.
TY Dr Flanagan for all the information that you give us. And for pointing me in the right direction.
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Re: CCSVI and CCVBP

Postby dania » Sun Aug 25, 2013 8:52 am

I had Hodgkin's Lymphoma. Scans showed it had progressed into my bones, lungs. Could this be the reason 1 plaque was found on my cervical spine?
http://radiographics.rsna.org/content/21/1/161.full
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Re: CCSVI and CCVBP

Postby uprightdoc » Sun Aug 25, 2013 9:42 am

It's highly unlikely. The lesion on the cervical cord is most likely due to structural problems in the cervical spine.
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