CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby Robnl » Thu Oct 10, 2013 11:08 pm

Hi Doc,

About possible improvement: Not sure & doubts, but.....

For almost two years i can not stand up from a couch, i try it regularly.
Two days ago i tried it again; first try a bit from the couch,2nd 3rd 4rth almost almost standing straight. I can not keep standing, i fall back to the couch.

Yesterday same thing, but it went easier, in my case it's 'nomal' to vary with symptoms so i only call it a improvement if it holds longer then a month.
The real test for me is the walking belt and leg press.....unfortunately i don't have treatment coming weeks, it starts oct 28th again.

Rgds,

Robert
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Re: CCSVI and CCVBP

Postby uprightdoc » Fri Oct 11, 2013 12:52 pm

Dania,
The other Dr. Flanagan returned your records to you today. You should have them in a couple of days. Good luck and keep me posted.
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Oct 12, 2013 7:01 am

I apologize for the delayed reponse but I have been distracted by a wonderful opportunity that popped up when I least expected it. I am now the proud owner off fine piece of property that includes an Historic 1830 Greek Revival house that had a bar and restaurant in it and a separate small ten room, well built bed and breakfast inn. The town people are all emotionally attached to and love the property but it was abandoned by the former owner and all three businesses were destroyed. The two buildings are in bad repair. No one wants the property because of the money needed to purchase it, make the extensive and expensive repairs, as well rebuild the three businesses. I look forward to it and will be using it for future seminars. It's a perfect location.
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Oct 12, 2013 7:13 am

Robert,
I have no idea what the chiropractor or the physical therapist are doing but you should never feel worse or weaker after treatment. Effective treatment should be associated with a decrease in exacerbations and severity of signs and symptoms.
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Re: CCSVI and CCVBP

Postby NZer1 » Sat Oct 12, 2013 1:01 pm

uprightdoc wrote:I apologize for the delayed reponse but I have been distracted by a wonderful opportunity that popped up when I least expected it. I am now the proud owner off fine piece of property that includes an Historic 1830 Greek Revival house that had a bar and restaurant in it and a separate small ten room, well built bed and breakfast inn. The town people are all emotionally attached to and love the property but it was abandoned by the former owner and all three businesses were destroyed. The two buildings are in bad repair. No one wants the property because of the money needed to purchase it, make the extensive and expensive repairs, as well rebuild the three businesses. I look forward to it and will be using it for future seminars. It's a perfect location.


It's incredible how the Universe conspires and supports you when you are clear and focused on what you want. Distraction can often be the factor to allow time to piece the parts of the puzzle together in ways you hadn't conceived before!!
Fantastic news!!

:)
Nigel
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Oct 12, 2013 2:37 pm

You are so right Nigel. There is much more to the story and the uncanny circumstances that led us to the property and then buying it. I won't go into it here. The property's history and lineage are rich and colorful. The old house is solid and straight as an arrow. It was built on large dry stacked granite block foundation with a slate roof. There are no leaks. The grounds are beautiful as is. Once I remove all the overgrowth and dead wood it will stand out. We estimate the some of the dead sugar maples to be about 200 plus years old. It amazing they haven't fallen and crushed the old house yet. There are bunch of vines in the back that look like they are covering a smoke house. There used to be an old classic Packard on the property. It's too bad they took it. It's worth a small fortune. Now if we can just find where the treasure is buried it will help reduce the costs of construction and six months of downtime. The fun part will be tearing apart and installing a brand new commercial kitchen. There will be plenty of taste testing. Mangia mangia.
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Re: CCSVI and CCVBP

Postby NZer1 » Sat Oct 12, 2013 2:56 pm

I get the impression we will meet one day!

Dr back to business, have MRI's been done on disc bulges in various positions to see if the bulge or some other factors are effecting the patient.

I was just meditating and found I was having difficulty, as usual, with holding a sitting posture. So when I move my head forward than back I feel as though somewhere in the central neck it is riding over a high spot or resistance. As that happens I also get a L'Hermites nerve signal through my body. On returning back to neutral where I want to be with my neck I hear the crepitus sound and I am able to relax into a neutral position for another few minutes, because the high spot dissipates or shifts so my neck feels neutral and not pushing off neutral.
I don't understand if it is a trapped type of bubble or one that grows each time, don't have a clue how I can fathom that out.

Back to the house, the last 15 years of my life my main income has come from buying and renovating houses with character, living in them often as I refurbish and modernise them. Incredible life style in my opinion, that changed though, dear old MS stopped me in my tracks. Hammering in a few nails became impossible in many ways and the mobility took the rest of the abilities with it.
So pleased the house where I live now was completed by paid help because it is the perfect situation for me to be in know. Hopefully it will survive the marriage separation!!

;)
Nigel

ps I am having bloods taken tomorrow morn and sending them to Germany for Lyme and co-infection analysis because I am still going down hill after 12 months on the ABx protocol, like others in my study group. Others have come back positive for Lyme and co-infections.
Couple of 3 videos worth there weight in gold about pathogens which could be involved in MS
Pt 1 http://www.youtube.com/watch?v=r8tESJVvM88
Pt 11 http://www.youtube.com/watch?v=2RATCS-3v9Q
Pt 111 http://www.youtube.com/watch?v=FEjNMlNM3l8
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Re: CCSVI and CCVBP

Postby Robnl » Sat Oct 12, 2013 3:12 pm

uprightdoc wrote:Robert,
I have no idea what the chiropractor or the physical therapist are doing but you should never feel worse or weaker after treatment. Effective treatment should be associated with a decrease in exacerbations and severity of signs and symptoms.


I'm just starting doc, and chiropractor and physiotherapist are learning...
Chiro doesnt have a traction table but is checking his network for someone who uses one.

Like i said, maybe some improvements but not sure...
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Re: CCSVI and CCVBP

Postby uprightdoc » Sun Oct 13, 2013 3:04 am

Nigel,
There are different causes of creaking, cracking and popping sounds that can occur when joints move. Noises from compression and cavitation of gas bubbles in synovial fluid filled joints, such as when "cracking" your knuckles, is just one cause. After cavitation, it take awhile for new gas bubbles to form before the knuckles can be cracked again. In contrast to synovial joints, ligaments make snapping sounds. Dry, degenerated, arthritic joints and cartilage make grating sounds. I suspect you have degenerated and inflammed joints. The irritation and inflammation subside when your neck settles down and the strain is reduced.

I don't have the time or the talent to work on the homes myself. I envy those talents. I live vicariously through the contractors I hire. I like the challenges of construction. These homes were built well by well-heeled people but they need some serious attention. I will update them to make them "green." I want to eventually compost the restaurants wastes.
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Xrays

Postby Robnl » Mon Oct 14, 2013 3:48 am

Hi Doc,

Dont think it's 100% what you asked, but hope it's ok.

Image

Image


Image

Image
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon Oct 14, 2013 8:03 am

Robert,
The x-rays may not be ideal but they are good images and more than enough to work on you effectively. The projections of bone in the rear of the spine are called spinous processes. The block shapes they are attached to in the front of the spine are the vertebral bodies. The cartilage called discs are between the bodies. The top spinous process is actually called the posterior arch of atlas or C1. If you look at the C2 and C3 processes you will see they are closer together than others. If you look to the front side of the spine you will see that the gray space where the disc should be is smaller that other discs between vertebral bodies. This signs indicate significant cartilage and connective tissues degeneration between between C2 and C3. All of the top and lower plates of the bodies show compression deformation. The processes of C4/5 are likewise too close and the cartilage between C6 and C7 is very thin compared to others due to degeneration and loss of height. The front of the body of C7 shows significant compression and buckling deformation. Range of motion x-rays and MRI would no doubt show faulty kinematics (motion) of the cervical spine and its segments. You would clearly benefit from high quality cervical traction aimed at preserving and rehabilitating the cartilage and connective tissue regardless of whether your strength improves or not. You don't want more problems due to degeneration. There is a possiblility it can also improve your strength and mobility. It is hard to find professionals with high quality equipment. I will be demonstrating and selling the right equipment on my new property for doctors who wish to treat patients with complex neurodegenerative conditions such as yours.
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Re: CCSVI and CCVBP

Postby Robnl » Mon Oct 14, 2013 10:07 am

Hi Doc,

Many thanks for your opinion and answers. It will indeed be very difficult to find a professional with all the right skills.
Therefore, could you give an indication of how long treatment will take?

I would have to make arrangements, but if you said; if you can come over to the US for three weeks for treatment i can do it...that would give me something to think about :mrgreen:
I really want to know if it's a possibility....

Regards,

Robert
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Re: CCSVI and CCVBP

Postby Robnl » Tue Oct 15, 2013 12:52 am

Hi Doc,

Just called my GP for the opinion of he radiologist concerning the xrays.
There was no specific question asked to him, but the report says; Everything normal, no issues.

So, now GP asks specific; what about compression and degeneration/malformation, especially c2/c3, c4/c5???
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Re: CCSVI and CCVBP

Postby uprightdoc » Tue Oct 15, 2013 1:03 am

Robert,
Your radiologist needs glasses. Ask the GP to ask the radiologist if the C6/7 disc looks "normal." Also ask if a lack of cervical lordosis is "normal" or does he mean that it is common. It is common to find disc degeneration, damaged connective tissues and loss of cervical lordosis due to injuries, such as from sports and whiplash trauma but that doesn't make it normal.
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Re: CCSVI and CCVBP

Postby Robnl » Tue Oct 15, 2013 1:26 am

uprightdoc wrote:Robert,
Your radiologist needs glasses. Ask the GP to ask the radiologist if the C6/7 disc looks "normal." Also ask if a lack of cervical lordosis is "normal" or does he mean that it is common. It is common to find disc degeneration, damaged connective tissues and loss of cervical lordosis due to injuries, such as from sports and whiplash trauma but that doesn't make it normal.


Doc, I can see that it is not as it should be, before your reaction......
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