CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby vesta » Sat Oct 19, 2013 5:50 am

Robni, I am delighted by your persistence in finding treatment and will be following with great interest the changes we all hope will free the spine and blood/cerebrospinal fluids through the CNS (or however Dr Flanagan defines the hoped for transformation.) Keep up the good work and the communication, thanks, Vesta
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Re: CCSVI and CCVBP

Postby Robnl » Sat Oct 19, 2013 6:49 am

Ofcourse!
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Re: CCSVI and CCVBP

Postby dania » Sat Oct 19, 2013 7:28 am

Would this device be good for me?
http://malcomtech.com/Protec/inaction.html
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Oct 19, 2013 8:16 am

It's certainly an option. Anything that decompresses your pelvis and pumps fluids would help relieve the pain and inflammation. It would also massage the pelvic organs and help move blood and lymph.
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Oct 19, 2013 10:47 am

Vesta,
As you stated, one of the purposes for the flexion-distraction and axial decompression is to move blood and CSF past the obstructions in the cranial vault and spinal canal. This will help relieve abnormal hydraulics surrounding and inside the cord. Flexion-distraction can also be used to relieve and rehabilitate tethering of the cord and nerve roots, as well as to rehabilitate degenerated cartilage and connective tissues.
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Re: CCSVI and CCVBP

Postby dania » Sat Oct 19, 2013 11:39 am

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Re: CCSVI and CCVBP

Postby Robnl » Mon Oct 21, 2013 2:06 am

I managed to move the appointment....to tomorrow! :-D

Exciting!!

So doc, is there anything else i need to know or say to the chiro???

Thx & regards,

Robert
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Re: CCSVI and CCVBP

Postby vesta » Mon Oct 21, 2013 2:18 am

uprightdoc wrote:Vesta,
As you stated, one of the purposes for the flexion-distraction and axial decompression is to move blood and CSF past the obstructions in the cranial vault and spinal canal. This will help relieve abnormal hydraulics surrounding and inside the cord. Flexion-distraction can also be used to relieve and rehabilitate tethering of the cord and nerve roots, as well as to rehabilitate degenerated cartilage and connective tissues.

Do you feel that Robni's major CNS damage is primarily in the spine or in the brain as well?
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Re: CCSVI and CCVBP

Postby Robnl » Mon Oct 21, 2013 2:26 am

Vesta,

Maybe the brain damage s a result of reduced drainage (CSF, CCSVI)...
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon Oct 21, 2013 3:35 am

Vesta,
I suspect that Robert's disability and leg weakness is primarily due to the degeneration in his cervical spine and the circumstances that caused it (most likely soccer). Patients with cervical spondylosis, stenosis and lesions, such as Blossom (car accidents and falls), Dania (falls from horses) and Robert tend to have more progressive and disabling conditions. Costumenational was likewise heading toward similar problems and disability. Fortunately as a result of the TiMS website and specifically this thread, his condition was caught in time and turned around by specific upper cervical correction. CN's signs and symptoms started after a serious motorcycle accident in which he was thrown onto the right side of his head causing his neck to snap toward the left shoulder mislaligning his upper cervical spine and tearing connective tissues. Many others have also benefited from this thread. The key is to recognize and treat injuries of the spine on a timely basis before the do further damage to the nervous and musculoskeletal system.
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon Oct 21, 2013 3:47 am

Robert,
Everyone is different but from my professional perspective the doctor should ideally do a thorough orthopedic and neurological evaluation, as well as review of all of your x-rays and MRI scans. Among other things, the exam should include tests for adverse mechanical tension in the cord and nerve roots, such as L'Hermitte's sign and other signs of possible segmental tethering. From what I have seen, I would treat you as though you have a cervical myelopathy. I would focus on the cervical spine. In addition to flexion-distraction of the cervical segments I would put you on automatic long-axis traction to decompress the entire spine. I would also consider ultrasound or combination ultrasound over the cervical spine to unleash tethered tissues, reduce inflammation and move blood and CSF past the obstruction. Initial treatments should be mild to make make sure there are no adverse reactions.
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Re: CCSVI and CCVBP

Postby Robnl » Mon Oct 21, 2013 4:01 am

Thx doc, it's on my list :-D
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Re: CCSVI and CCVBP

Postby NZer1 » Mon Oct 21, 2013 10:12 am

Over the last few months I have been working with a very tolerant friend Mr Edward Murray (Squeaky Cat) to help my feeble mind understand the big picture of MS and what follows is the condensed detail;

So define MS then!

Okay. If you'll put that gun down that you have pointed at my head. :>)

It is a disease that is caused by a breach in the BBB which results in demyelination and resulting damage to nerves. That's it.

Demyelination isn't something that can be seen on MRI. It is seen in cadaver studies. It has been the defining characteristic of MS from the time that it was first studies.

You are confusing it with active inflammation which can be seen on MRI.

It is NOT a disease characterized by symptoms. Symptoms are necessarily going to be different for every single person because:

It depends on where the BBB is breached.
It depends on the severity of the breach and the frequency with which this occurs.
Because it happens SOMEWHERE, it then depends on which nerves are damaged.
It likely depends also on specifically what crosses the BBB into the CNS, ie, CD4 cells, red blood cells, EBV, CPn and so on.
And it has to depend to some degree on the ability of the immune system to keep it under control which will likely involve vitamin D in terms of availability and whether the whole system is working or disrupted because of genes or epigenetic factors.

Thanks Ed ;)

===========================================================================
So there are steps to create good health again.

Sealing the BBB leak and most importantly treating infections and CCSVI reflux/back jet issues.

Stopping the immune system damage that is occurring within the BBB/CNS because immune cells from outside the BBB are causing serious damage inside the CNS and they are transported by the CSF. Cells like CD4 and B and T cells which have tagged myelin for removal.

Stopping infections that have crossed the BBB from causing damage and symptoms.

Using calcitriol (which is the the next stage after the production of Vit D) within the CSF/BBB to 're-set' apoptosis of rouge immune cells that are 'eating' myelin.

Wellness health principles such as diet, mindfulness and exercise practises as well as rehabilitation to build good health for Life.

;)
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon Oct 21, 2013 1:24 pm

NZer1 wrote: ... According to Mr. Edward Murray, also known as Squecky Cat, as posted above by Nigel, MS is ...

a disease that is caused by a breach in the BBB which results in demyelination and resulting damage to nerves. That's it.

Demyelination isn't something that can be seen on MRI. It is seen in cadaver studies. It has been the defining characteristic of MS from the time that it was first studies.

You are confusing it with active inflammation which can be seen on MRI.

It is NOT a disease characterized by symptoms. Symptoms are necessarily going to be different for every single person because:

It depends on where the BBB is breached.
It depends on the severity of the breach and the frequency with which this occurs.
Because it happens SOMEWHERE, it then depends on which nerves are damaged.
It likely depends also on specifically what crosses the BBB into the CNS, ie, CD4 cells, red blood cells, EBV, CPn and so on.
And it has to depend to some degree on the ability of the immune system to keep it under control which will likely involve vitamin D in terms of availability and whether the whole system is working or disrupted because of genes or epigenetic factors ...


These statements won't fly with neurologists or radiologists and they are so full of errors and controversy that I don't know where to start. Among other things, although there is a great degree of variability, MS has characteristic signs and symptoms clearly recognized by neurologists and radiologists. More importantly, the signs and symptoms commonly seen in MS aren't necessarily associated with the location of the lesions.
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon Oct 21, 2013 1:34 pm

NZer1 wrote: ... So there are steps to create good health again.

Sealing the BBB leak and most importantly treating infections and CCSVI reflux/back jet issues.

Stopping the immune system damage that is occurring within the BBB/CNS because immune cells from outside the BBB are causing serious damage inside the CNS and they are transported by the CSF. Cells like CD4 and B and T cells which have tagged myelin for removal.

Stopping infections that have crossed the BBB from causing damage and symptoms.

Using calcitriol (which is the the next stage after the production of Vit D) within the CSF/BBB to 're-set' apoptosis of rouge immune cells that are 'eating' myelin ...


This is far too much speculation for me. The leaky BBB theory is weak. Infections are just one possible cause of MS and not the most likely cause in my opinion. Apoptosis due to rogue immune cells eating myelin is just a theory and likewise not a good one in my opinion.
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