CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby uprightdoc » Mon Dec 09, 2013 4:52 am

Hello Robert,
I sent him an email as soon as you requested me to about a week ago. I haven't heard from him.
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Re: CCSVI and CCVBP

Postby Robnl » Mon Dec 09, 2013 4:58 am

Ok, thx.

BTW, at the physiotherapist we started last thursday wih the new approach;
- i usd the motomed (electric bike)
- i sat on a cushion doing balance exercises (i do balance eercises at home also)
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon Dec 09, 2013 9:07 am

Robert,
What type of exercises are you doing for leg and foot muscles?
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Re: CCSVI and CCVBP

Postby Robnl » Mon Dec 09, 2013 1:47 pm

None yet, next appointment maybe

George has received your mail, he will reply soon
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon Dec 09, 2013 3:49 pm

The links below are to karate stances and Kata Sanchin. Sanchi daichi is toward the bottom of the page. The sanchin daichi stance is also know as the hour glass stance. It is used for a root lock for defensive, mental and sprititual purposes. It comes from the lower lock in yoga, called moola bandha. In kata sanchin, the head and thoracic spine perform jalandhara and uddiyana bandha. To perform the sanchin root lock, the feet are pointed inward in a pigeon toed type stance. The knees are bent. The feet grip the floor tightly while you tighten your buttocks and legs against the resistance of the feet. It's good exercise for developing isometric strength in the legs. Rather than just standing still, you can do it while you do your standing routine holding onto the desk. It will move blood and be less strainful and more productive. You can keep you feet on the same line or put one slightly in front of the other and alternate. Lock your feet to the floor, squeeze your buttocks and and tighten your legs by trying to twist them outward against the resistance of the floor.

http://en.wikipedia.org/wiki/Karate_stances

http://www.youtube.com/watch?v=xYNqgiYHFlU
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Re: CCSVI and CCVBP

Postby Robnl » Fri Dec 13, 2013 4:37 am

Hi Doc,

At the physio we will concentrate on the motomed and balance for now.

http://www.motomed.com/en/models/motomed-viva2.html something like that

Balance:
- sitting a a balance cushion
-- holding a ball and moving it to a certain position left and right horizontal and up
-- hands folded; hitting he hand of the physio (he moves his hand each time)
- standing up and stay for a minute

Balance was somewhat better than last week, i do the exercises also at home almost each day (without cushion ofcourse)

Rgds,

Robert
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Re: CCSVI and CCVBP

Postby uprightdoc » Fri Dec 13, 2013 9:57 am

Hi Robert,
Do a sanchin stance several times while you are standing. Tighten the thighs and squeeze the buttocks while trying to rotate the legs outward. Use your feet and the floor for resistance. It's good for isometric strength and will pump more blood into the muscles than just standing still.
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Re: CCSVI and CCVBP

Postby Robnl » Mon Dec 16, 2013 10:58 pm

Hi doc,

George told me you' ve got contact!

Good.
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Re: CCSVI and CCVBP

Postby uprightdoc » Tue Dec 17, 2013 10:00 am

Hello Robert,
No contact so far. I did receive information, however, from another doctor with a Cox 8 flexion-distraction table who I recently referred a patient to who was diagnosed with Parkinson's disease. The patient's lower cervical spine showed severe degeneration and lateral stenosis that was affecting his upper extremities. He had two serious head and neck injuries as a child and currently works as a farrier shoeing horses. He is doing very well with treatment.
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Re: CCSVI and CCVBP

Postby Robnl » Tue Dec 17, 2013 1:52 pm

hi Doc,

Question;

I just read a story from a guy i know; PPMS, did ccsvi, improvements....only his walking stayed difficult.
He saw a neurosurgeon in singapore, he concluded:
' You' ve got a type of spinal stenosis, the disc is compressing the L5 nerve (root/exit), i dont see any lesions. This is not MS"

Except the diagnosis, it's my story( i know this guy about 4 years via a forum..dutch guy that lives in canada and spends a lot of working in the East)...

I think he will (also) benefit from a treatment like yours, i advised him to checkout the Cox table info).
Are these nerves visible on my MRI or do i need a specific type of MRI??
This is something i want to know, suppose you understand :mrgreen:

Regards,

Robert
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Re: CCSVI and CCVBP

Postby Robnl » Tue Dec 17, 2013 2:14 pm

I've got the top-down MRI images, i can send them to you. 21 images.
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Re: CCSVI and CCVBP

Postby uprightdoc » Tue Dec 17, 2013 3:18 pm

Hi Robert,
It depends on what nerves you are referring to. Compression of peripheral nerves, such as the sciatic nerve, by stenosis is easy to see on CT or MRI. On the other hand, I suspect that cases of spondylosis such as yours, Dania and Blossom can cause compression malfunction of the long tracts of the cord without actual contact from the spondylosis, which is called stenosis. The compression of the long tracts of the cord occurs due to faulty hydraulics associated with compression of the vertebral veins in the epidural space surrounding the cord.

Go ahead and send the images. I will take a look.
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Re: CCSVI and CCVBP

Postby Robnl » Wed Dec 18, 2013 3:41 am

i will do it this evening, takes too much time during workhours :lol:
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Re: CCSVI and CCVBP

Postby Robnl » Wed Dec 18, 2013 5:03 am

Hi doc,

Just send you a mri2013.zip file.

if you want more/other images, please say so.
i'm especially interested in the nerve roots.,

Rgds,

robert
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Re: CCSVI and CCVBP

Postby uprightdoc » Wed Dec 18, 2013 3:31 pm

I will try and take a look at the images tomorrow.
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