CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby uprightdoc » Sat Apr 05, 2014 11:26 am

What were the signs and symptoms that improved following scoliosis surgery?
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Re: CCSVI and CCVBP

Postby dania » Sun Apr 06, 2014 6:30 am

A Ontario neurologist I know, has a sister who was diagnosed with MS and a rod was inserted in her spine 30 years ago and she has been fine ever since.
MISDIAGNOSED????????????????????????
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Re: CCSVI and CCVBP

Postby uprightdoc » Sun Apr 06, 2014 6:59 am

If she had classic signs and symptoms with lesions in the brain and cervical cord she most likely had MS. Cervical lesions however, tend to be more progressive and disabling. I can't think of any major signs or symptoms associated with MS, however, that would benefit from surgically straightening the lower spine. It would have little if any impact on the brain and cervical cord and spine. It is highly unlikely that it would have affected cerebral or cranial nerve signs and symptoms such as: optic neurtitis, diplopia, nystagmus, trigeminal neuralgia, dizziness, intention tremors, spasms, fatigue, ataxia, numbness and tingling or muscle weakness in the extremities etc.
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Re: CCSVI and CCVBP

Postby MrSuccess » Sun Apr 06, 2014 11:34 am

thank you for giving such a straight forward opinion.

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Re: CCSVI and CCVBP

Postby uprightdoc » Sun Apr 06, 2014 11:45 am

You're welcome.
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Re: CCSVI and CCVBP

Postby NZer1 » Sun Apr 06, 2014 4:30 pm

uprightdoc wrote:If she had classic signs and symptoms with lesions in the brain and cervical cord she most likely had MS. Cervical lesions however, tend to be more progressive and disabling. I can't think of any major signs or symptoms associated with MS, however, that would benefit from surgically straightening the lower spine. It would have little if any impact on the brain and cervical cord and spine. It is highly unlikely that it would have affected cerebral or cranial nerve signs and symptoms such as: optic neurtitis, diplopia, nystagmus, trigeminal neuralgia, dizziness, intention tremors, spasms, fatigue, ataxia, numbness and tingling or muscle weakness in the extremities etc.


Dr F would a flow test on CSF in several positions be a good indication of what 'could' be happening and also if it is a primary or secondary issue?

I get the feeling that the progressive nature of 'MS' type diseases is dependant of CSF flow as much as it is on BBB leakage?

:)
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon Apr 07, 2014 1:18 am

Nigel,
In my opinion, an upright Cine MRI is all that is needed. The problem with Cine MRI is the long aquisition times and lack of detail and local hydraulics. It barely shows the largest CSF pathways and flow never mind the minute compartments with their own local hydraulics based on location and physical properties of the particular area. I am working on a page for my website on the midbrain in MS and Parkinson's. The cerebral aqueduct passes through the midbrain which is surrounded by cisterns. My theory is that the location of the cerebral aqueduct and cisterns make the midbrain susceptible to faulty CSF flow. Among other things faulty CSF flow in and around the midbrain may play a role in nystagmus, diplopia, tremors etc. Computer modeling is the next step in studying fluid mechanics in the brain and cord. The data will be derived from upright MRI. Venous insufficiency and obstruction to CSF flow would be primary suspects in neurodegenerative diseases.

I suspect the progressive nature of cervical lesions is because they often associated with significant structural pathology in the cervical spine that impacts the long motor and sensory tracts of the cord to the body and extremities. Potential solutions are manual and mechanical manipulation, physioltherapies, endoscopic surgery and shunts.
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Re: CCSVI and CCVBP

Postby NZer1 » Mon Apr 07, 2014 9:38 am

Thanks Dr F, I also think that the CSF flows are of importance.

If technology moves ahead then the learning begins for all.

The thought that I had was based on progression of people with mobility challenges due to lack of CSF flow for instance which compounds the original issues, like accelerating the disability or a cascade of disability.

:)
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Do you have a name for your Centre?
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon Apr 07, 2014 10:48 am

You're welcome Nigel. Degeneration of the spine (spondylosis) and stenosis affect the vertebral veins which affects perfusion pressure and blood flow to the cord. Obstruction to venous flow also affects CSF flow in the cord. Chronic decreases in perfusion pressure and blood flow can lead to oxidative stress and ischemia which can in turn lead to degenerative cascades and accelerate disabilities.

The center/centre is listed in Wikipedia as the historic Merrill Magee House. For incorporation purposes we named it the Merrill Magee Inn.
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Re: CCSVI and CCVBP

Postby Robnl » Mon Apr 07, 2014 11:35 am

Is the website already up doc?

About cine mri;dr damadian used it to show the pulsation was weak in ms patients who had a physical neck trauma at early age.
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon Apr 07, 2014 12:52 pm

The website should be live in about a week or two.

In my opinion, all MS patients should have an upright MRI and Cine flow study. It's non-invasive, safe, relatively inexpensive and provides important highly relevant information.
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Re: CCSVI and CCVBP

Postby Robnl » Mon Apr 07, 2014 8:18 pm

Yeah,but cine mri is only available in London for Europe at thismoment.
Fonar is upgrading their sites,when germany is done, i will go
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Re: CCSVI and CCVBP

Postby MrSuccess » Mon Apr 07, 2014 10:05 pm

These new medical equipment items ..... certainly will help in the detection of -where - there are abnomalies. I am really looking forward to seeing/reading what all they reveal.

First we detect. Then correct the problem.

I am thrilled with the science of it all.


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Re: CCSVI and CCVBP

Postby dania » Tue Apr 08, 2014 7:36 am

My appointment with the orthopedic MD is tomorrow. I believe my problem is originating in my posterior pelvic area, left side. I noticed I have a bone that is protruding there. When I press on it my left leg which is anterior rotated, immediately lengthen and straightens. And I am able to move my legs again. feeling in extremities return to normal, muscular strength returns and contracted muscles disappear,etc. I believe the injury was cause be a seated fall on my coccyx at age 10. Since the fall I was never able to lift the left leg as high as the right. Later in life, I fell, seated again, on my coccyx when I slipped on the ice. 2 falls directly on my coccyx.
There must be something that can be done to stabilize the left side of my pelvis.
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Re: CCSVI and CCVBP

Postby Anonymoose » Tue Apr 08, 2014 7:43 am

Dania,
I just have to barge in to say I am so happy to see your scrappy butt still kicking and fighting. (That's an odd visual...but you know what I mean). I knew you wouldn't give up. :) You are an inspiration!
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