CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby uprightdoc » Mon Apr 21, 2014 1:23 am

Hello Blossom,

It's nice to hear from you.

I hired an inn keeper, Dan, to handle our guesthouse, events planning and marketing. He currently runs the Batcheller Mansion in Saratoga Springs, New York. He will also do baking and breakfasts for the restaurant and overnight guests. He gets rave reviews for his breakfasts. Dan has years of experience in handling weddings, corporate and other events. He is also very good with website design and will be working closely with the marketing company I hired.

http://www.batchellermansioninn.com/

Once we have the restaurant and inn up and running, I will work with Dan on starting, promoting and organizing the seminars sometime in 2015. I may start hosting them at our Inn but I am also looking into a more suitable location near Albany International Airport, which will be much easier for travelers and for me.
User avatar
uprightdoc
Family Elder
 
Posts: 1710
Joined: Thu Sep 30, 2010 3:00 pm
Location: USA

Advertisement

Re: CCSVI and CCVBP

Postby Robnl » Mon May 19, 2014 4:18 am

Hi doc,

I noticed that all of my spasms start in the lower back.
During a spasm my legs a very stiff.
I will mention it to George tonight, but is it something interesting??

Rgds,

Robert
User avatar
Robnl
Family Elder
 
Posts: 429
Joined: Sun Nov 08, 2009 4:00 pm

Re: CCSVI and CCVBP

Postby uprightdoc » Mon May 19, 2014 5:40 am

Hi Robert,
Spasms are an interesting topic. I know a great deal about them both professionally and personally. I have had the worst, most extreme wicked immobilizing types of spasms imaginable along with intense pain. I have never used the dangeroous prescription drugs that were recommended to manage them. Spasms can be managed very effectively using much safer manual medicine, physiotherapies, Traditional Chinese Medicines and nutraceuticals. The methods I use depends on the patient and the source of the problem. Some spasms are due to peripheral problems in the body such as the internal organs, cardiovascular system, digestive system, eliminative system, reproductive system etc. Others are due to problems in the central nervous system such as the basal ganglia, thalamus etc. In your case it is probably due to the spondylosis and stenosis in your cervical spine. The leg weakness also strains your low back muscle. In addition to working on you structurally I would work on physiological agents aimed at reducing inflammation, increasing circulation and elimination metabolic wastes such as lactic acid in the muscles.
User avatar
uprightdoc
Family Elder
 
Posts: 1710
Joined: Thu Sep 30, 2010 3:00 pm
Location: USA

Re: CCSVI and CCVBP

Postby Robnl » Sun May 25, 2014 1:21 pm

Hi doc,

What i want to add is that i barely have spasms in vertical position, but after lying down for 30 minutes i only have to move my arm, leg, or touch my upper leg....STRETCH/SPASM.
User avatar
Robnl
Family Elder
 
Posts: 429
Joined: Sun Nov 08, 2009 4:00 pm

Re: CCSVI and CCVBP

Postby uprightdoc » Sun May 25, 2014 2:58 pm

That's interesting Robert. You have degeneration (spondylosis) and narrowing (stenosis) of the spinal canal. I suspect that in your case, lying down most likely further compresses the vertebral veins inside the spinal canal, which decreases perfusion pressure and blood flow to the long tracts and motor neurons of the cord.
User avatar
uprightdoc
Family Elder
 
Posts: 1710
Joined: Thu Sep 30, 2010 3:00 pm
Location: USA

Re: CCSVI and CCVBP

Postby NZer1 » Sun May 25, 2014 3:33 pm

uprightdoc wrote:That's interesting Robert. You have degeneration (spondylosis) and narrowing (stenosis) of the spinal canal. I suspect that in your case, lying down most likely further compresses the vertebral veins inside the spinal canal, which decreases perfusion pressure and blood flow to the long tracts and motor neurons of the cord.


Interesting how lying down can create this. I find that lying down also sets off things like tingles, shakes, buzzing sensations and sensory things.
The other factor that occurs is how if PwMS lie down for about 1.5-2 hours then other sensory things occur and particularly need to get up with bladder sending false signals. The restless legs and other more physical need to move occur after this period of lying down.

My personal experience because of being on the Wheldon Protocol is that the issue seems to be related to toxin build up in the CSF and that being upright helps the issues to stop. It is interesting that if I stay up for 15-20 minutes I can get back to sleep, but if I have just 5 minutes upright and then go back to bed the chances of relaxing and sleeping are nil and the reasons I woke are still an issue until I spend the time upright.

Every one is different I guess but I do have a few friends with the same problems occurring.

:)
Nigel
User avatar
NZer1
Family Elder
 
Posts: 1520
Joined: Thu Feb 18, 2010 4:00 pm
Location: Rotorua New Zealand

Re: CCSVI and CCVBP

Postby uprightdoc » Sun May 25, 2014 9:27 pm

There are significant differences in physiology and orthopedic affects in the cranial vault and spinal canal between the recumbent and upright positions in "normal" people. There are also significant physiological and orthopedic differences between lying on your back, your belly or your side. Pathological changes in the spinal canal such as spondylosis and stenosis further affect physiology and orthopedics associated with the recumbent and upright positions.
User avatar
uprightdoc
Family Elder
 
Posts: 1710
Joined: Thu Sep 30, 2010 3:00 pm
Location: USA

Re: CCSVI and CCVBP

Postby NZer1 » Sun May 25, 2014 9:58 pm

Thanks Dr F,
I think this will be another frontier for studies in MS etc ...............

:)
User avatar
NZer1
Family Elder
 
Posts: 1520
Joined: Thu Feb 18, 2010 4:00 pm
Location: Rotorua New Zealand

Re: CCSVI and CCVBP

Postby Robnl » Mon May 26, 2014 3:38 am

Aso...when i go 'horizontal', sometimes i got 'weird' tremors; one foot shakes for 8, 9 seconds, thne 30 secs nothing... this repeats several times and then stops....
User avatar
Robnl
Family Elder
 
Posts: 429
Joined: Sun Nov 08, 2009 4:00 pm

Re: CCSVI and CCVBP

Postby uprightdoc » Mon May 26, 2014 7:49 am

Your welcome Nigel. You and Robert are good candidates for Upright and Cine MRI.
User avatar
uprightdoc
Family Elder
 
Posts: 1710
Joined: Thu Sep 30, 2010 3:00 pm
Location: USA

Re: CCSVI and CCVBP

Postby NZer1 » Mon May 26, 2014 9:28 am

And for winning Lotto Dr! ;)
User avatar
NZer1
Family Elder
 
Posts: 1520
Joined: Thu Feb 18, 2010 4:00 pm
Location: Rotorua New Zealand

Re: CCSVI and CCVBP

Postby Robnl » Mon May 26, 2014 10:11 am

NZer1 wrote:And for winning Lotto Dr! ;)


I think the mri will come first, Nigel :lol:

And i hope fonar will upgrade their
European sites this year, so i can have a cine mri.
User avatar
Robnl
Family Elder
 
Posts: 429
Joined: Sun Nov 08, 2009 4:00 pm

Re: CCSVI and CCVBP

Postby uprightdoc » Mon May 26, 2014 1:51 pm

I just sent a complex case to the Fonar Facility in London. He has mild EDS with Marfanoid (giant) features. He has had many signs and symptoms of intracranial pressure problems, including dysautonomia his whole life and has been examined by many experts who found nothing wrong. The upright MRI showed severe misalignment of the upper cervical spine with underdeveloped ligaments causing blockage of CSF flow through the craniocervical junction. He also has a hypoplastic posterior fossa, as well as other malformations and spondylosis in the lower cervical spine further obstructing flow. He felt vindicated as soon as he heard the results.
User avatar
uprightdoc
Family Elder
 
Posts: 1710
Joined: Thu Sep 30, 2010 3:00 pm
Location: USA

Re: CCSVI and CCVBP

Postby Robnl » Mon May 26, 2014 9:49 pm

And....follow up?
User avatar
Robnl
Family Elder
 
Posts: 429
Joined: Sun Nov 08, 2009 4:00 pm

Re: CCSVI and CCVBP

Postby uprightdoc » Tue May 27, 2014 12:31 pm

I will be doing a consultation later this week regarding follow-up to see what can be done. It's difficult to find doctors I would refer patients to here in the US for these types of cases. It's much more difficult overseas. Most medical doctors and chiropractors are clueless about the cause of the problem and how to treat it.
User avatar
uprightdoc
Family Elder
 
Posts: 1710
Joined: Thu Sep 30, 2010 3:00 pm
Location: USA

PreviousNext

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service