CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby uprightdoc » Fri Jun 27, 2014 11:23 am

Thanks Vesta. The hypocrisy of our drug laws, like our politicians, are driven by corporate not patient concerns.
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Re: CCSVI and CCVBP

Postby uprightdoc » Fri Jun 27, 2014 1:12 pm

If the industrial hemp CBD oil it is just as effective as Charollett's Web there are many parents of children with seizures who would like to know.
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Jul 05, 2014 10:33 am

Hollygb66@cox.net
The comment below is to an article I wrote on Wordpress called "C1, C2 and CSF Flow."


I've been experiencing the symptoms of a CSF leak for the past 6 months. Prior to this, I was a very active adult, training for a mini tri and playing tennis 2-3 times a week. I've been to 6 different doctors and had numerous tests, all of which could not find my "leak." My opening pressure was at 9. I was in a desperate situation. A friend sent me a website that had an interactive spine. When I clicked on the C1-C2, it shows it affects the head! After being told a couple of weeks ago by my head and neck specialist that he was stumped, I decided to take matters into my own hands and seek out a chiropractor. My C1 was subluxated. After only 2 treatments, I'm feeling so much better! Not 100%, but a lot better than before. In fact, I didn't have to take my Fioricet yesterday or the 300 mg of Neurontin to sleep last night! I had no night sweats!!! I slept all night for 9.5 hours WITHOUT meds!!!! I have shared your article with others who are in the same boat I was in. They seem skeptical. All I know is THIS is working for me! This is giving me new hope. I appreciate the way you have written this article. It's very easy to understand! Thank you so much for sharing this information online. Mama needs a new pair of running shoes! And, I can say, "I do believe I have a "floating" brain again!"

Holly
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Re: CCSVI and CCVBP

Postby blossom » Sat Jul 05, 2014 12:33 pm

hi dr. Flanagan, this was posted on tims general discussion. your comment please---"spinal cord loss associated with ms progression"

- http://www.ms-uk.org/nervecells
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Re: CCSVI and CCVBP

Postby uprightdoc » Sun Jul 06, 2014 3:06 am

Hello Blossom,
We have discussed this before many times. MS that affects the spinal cord involvement tends to be more progressive and disabling than MS that mostly affects the brain. I suspect it is because of its impact on the motor tracts of the cord. In my opinion, you, Robert and Dania have cervical cord involvement due to bone spurs (osteophytes) and spondylosis with stenosis.
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Re: CCSVI and CCVBP

Postby Robnl » Sun Jul 06, 2014 5:22 am

Are these osteophytes visible on mri?
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Re: CCSVI and CCVBP

Postby uprightdoc » Sun Jul 06, 2014 6:17 am

They are plainly visible on x-rays and MRI. Cine Upright MRI can show the obstruction to blood and CSF flow. You don't have osteophytes as I recall. You have spondylosis. Blossom has a large osteophyte that almost touches the cord. In either case, spondylosis, stenosis and osteophytes compress the epidural space between the spinal canal and cord which contains the vertebral veins. Compression of the epidural space and vertebral veins can adversely affect blood and CSF flow in the cord. It is my opinion that compression of the front side of the canal by osteophytes or spondylosis, can affect the long motor tracts of the cord without actually contacting the cord by way of faulty craniospinal hydrodynamics (hydraulics).
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Re: CCSVI and CCVBP

Postby blossom » Sun Jul 06, 2014 11:10 am

dr. Flanagan, I know we have discussed this many times. when our paths first crossed if you recall I had been for yrs. trying to get neurologist and neurosugeons to pay attention and address my spine especially the cervical. it wasn't until you came along and made perfect sence of it all. getting what needs done is next to impossible. I was hoping that article meant some may be looking at the spine differently. it's a shame they don't read your book or listen more closely to their
patients. "and use common sence."
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Re: CCSVI and CCVBP

Postby NZer1 » Sun Jul 06, 2014 1:20 pm

Hi Dr,
Thanks for your comment "the epidural space between the spinal canal and cord which contains the vertebral veins".

In my limited way of thinking I imagine that there are many, many problems that will cause issues. Are the vertebrals contained within the cord/sac or are they external, and for that matter the arteries as well?

Viewing flow problems would have to be Cine and not MRI?

The clarity of cord MRI is a problem with movement and size so any fluid passage inspection would be 'impossible'?

My previous thought about the disc bulges being seen in many PwMS's MRI's made me think again about my MRI's. (Due for my next one 14.7) The cord is far more of a source of problems than I previously thought from my Doppler assessment which has flow issues when vertical on right side but good flow when lying down.

Do disc bulges ever decrease or disappear (mine seem to have remained)?

:)
Nigel
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Re: CCSVI and CCVBP

Postby uprightdoc » Sun Jul 06, 2014 1:55 pm

I know you understand Blossom. I think you also seriously challenged some neurosurgeons and opened their minds just a tiny bit getting them to see a possible connection between the large spur that almost touches the cord and the increase in weakness and Lehermitte's sign with neck flexion. You don't have classic MS. You have a spur causing cord problems.
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Re: CCSVI and CCVBP

Postby uprightdoc » Sun Jul 06, 2014 2:51 pm

I just got back from a nice swim. The weekend weather and the water were terrific.
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Re: CCSVI and CCVBP

Postby uprightdoc » Sun Jul 06, 2014 3:11 pm

Your welcome Nigel.

The internal vertebral veins are located in the epidural space between the cord and spinal canal. The external vertebral veins surround the spine. There are only some minor arteries in the epidural space. The main arteries to the cord are beneath the dura in the subarachnoid space that surrounds the cord. Compression of the epidural space compresses the vertebral veins. I suspect that compression of the internal vertebral veins can have a hydraulic effect on the cord. It can also decrease perfusion pressure and blood flow to the cord.

You are right. Viewing CSF flow in the cord is technically more difficult. Viewing CSF flow in the brain isn't much better though. We have a long way to go. The technology, however, is rapidly improving. If more engineers and researchers get on board, computer modeling could speed up the process.

Bone spurs are the result of years of chronic structural stress, strains and inflammation of the area involved. They don't go away.

What vessel has flow issues on the right side when you are upright and not when you are recumbent?
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Re: CCSVI and CCVBP

Postby NZer1 » Sun Jul 06, 2014 5:04 pm

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Re: CCSVI and CCVBP

Postby Robnl » Mon Jul 07, 2014 12:16 am

What vessel has flow issues on the right side when you are upright and not when you are recumbent?



i'm thinking.....
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Re: CCSVI and CCVBP

Postby uprightdoc » Mon Jul 07, 2014 8:32 am

Thanks Nigel. The link worked fine. I don't recall seeing or you mentioning blockage of the right vertebral veins previously.
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