18th Slovak Angiological Congress with prof. Simka

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18th Slovak Angiological Congress with prof. Simka

Postby ErikaSlovakia » Fri Oct 01, 2010 8:50 am

There is nothing really new what you do not know.

- prof. Simka also used part of his new study during his presentation
- a Slovak doctor was also presenting his 7 CCSVI cases/procedures
- 700 procedures done in Katowice
- team in Katowice is starting very soon to work on something else what might have some benefits for us
- good news for Slovak patients: official study is starting very soon (maybe next week) with the "blessing" of the Slovak head of neurology
- my vein is patent, without any hyperplasia, no thrombosis of course, still very slow blood flow (we do not know if it is OK or if it might be a problem)
- it is VERY good fresh air here
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Re: 18th Slovak Angiological Congress with prof. Simka

Postby Rokkit » Fri Oct 01, 2010 12:21 pm

ErikaSlovakia wrote:There is nothing really new what you do not know.

- prof. Simka also used part of his new study during his presentation
- a Slovak doctor was also presenting his 7 CCSVI cases/procedures
- 700 procedures done in Katowice
- team in Katowice is starting very soon to work on something else what might have some benefits for us
- good news for Slovak patients: official study is starting very soon (maybe next week) with the "blessing" of the Slovak head of neurology
- my vein is patent, without any hyperplasia, no thrombosis of course, still very slow blood flow (we do not know if it is OK or if it might be a problem)
- it is VERY good fresh air here
Erika

This is a very good report. Bless you, Erika.
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Postby esta » Fri Oct 01, 2010 1:12 pm

i hope they find you're slow blood flow problem. Thrilled to hear Dr. Simka is workig on something 'new' for us. his team is the most experienced...yahoo.
take care Erika!
thanks
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
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Postby ErikaSlovakia » Sat Oct 02, 2010 7:37 am

I am back at home, of course extremely tired, weak and dizzy.
As soon as at least a little part of my brain will be able to do something I will post prof. Simka´s presentation and in case I get a permission also a presentation from Dr. Madaric (Slovakia - they have done 7 procedures), too.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Joined: Wed Jul 29, 2009 2:00 pm
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Postby ErikaSlovakia » Sat Oct 02, 2010 7:43 am

esta wrote:i hope they find you're slow blood flow problem.

Dear Esta!
Maybe it is not a problem at all that my blood flow is so slow.
Science these day simply does not know it. At the moment I can not do anything - some of you know I did a lot, I think maximum.
I understand you are not happy to hear that but we must be patient and wait for new discoveries - I think.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1124
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

Postby esta » Sat Oct 02, 2010 10:26 am

hi erika
i think i have to agree with you -patience for more info...
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
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esta
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Postby ErikaSlovakia » Sat Oct 02, 2010 10:27 am

http://sofista.sk/documents/CCSVI%20&%2 ... 202010.ppt

This is the presentation of prof. Simka from the 18th Slovak Angiological Congress.

I have not mentioned one important thing: he became a professor at the end of September 2010 - so only couple of days ago.
Congratulations prof. Simka!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1124
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

Postby thisisalex » Sun Oct 03, 2010 11:18 am

ErikaSlovakia wrote:http://sofista.sk/documents/CCSVI%20&%20MS,%20Slovakia,%202010.ppt

This is the presentation of prof. Simka from the 18th Slovak Angiological Congress.

I have not mentioned one important thing: he became a professor at the end of September 2010 - so only couple of days ago.
Congratulations prof. Simka!
Erika

great stuff thank you very very much Erika, i appreciate your work!
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Postby Johnson » Sun Oct 03, 2010 2:41 pm

Thanks for the posting of dr. Simka's presentation, Erika.

I'll see him next week.
My name is not really Johnson. MSed up since 1993
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Postby ErikaSlovakia » Mon Oct 04, 2010 2:05 am

This is the second presentation of prof. Simka from the Congress in Slovakia: http://sofista.sk/documents/safety%20of ... 0Simka.ppt

He had 2, so this is the second and last.
This is about the safety of the procedure.

Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1124
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

Postby nicknewf » Mon Oct 04, 2010 5:23 am

The 6 month benefits seem significant, but not dramatic. Does anyone know if the 1 year results are better?
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Postby ErikaSlovakia » Mon Oct 04, 2010 5:54 am

nicknewf wrote:The 6 month benefits seem significant, but not dramatic. Does anyone know if the 1 year results are better?

There are no 1 year results from Katowice yet.
I was the second patient. The first was done 2 weeks before me and the third I think 1 week after me. I am 11 months after the procedure.
Anyway, I am only one number and it has no statistical meaning.
I am afraid we simply must wait longer time.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
Family Elder
 
Posts: 1124
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe


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