This Is MS Multiple Sclerosis Community: Knowledge & Support

[ErikaSlovakia]

There is nothing really new what you do not know.

- prof. Simka also used part of his new study during his presentation
- a Slovak doctor was also presenting his 7 CCSVI cases/procedures
- 700 procedures done in Katowice
- team in Katowice is starting very soon to work on something else what might have some benefits for us
- good news for Slovak patients: official study is starting very soon (maybe next week) with the "blessing" of the Slovak head of neurology
- my vein is patent, without any hyperplasia, no thrombosis of course, still very slow blood flow (we do not know if it is OK or if it might be a problem)
- it is VERY good fresh air here
Erika

[Rokkit]

There is nothing really new what you do not know.

- prof. Simka also used part of his new study during his presentation
- a Slovak doctor was also presenting his 7 CCSVI cases/procedures
- 700 procedures done in Katowice
- team in Katowice is starting very soon to work on something else what might have some benefits for us
- good news for Slovak patients: official study is starting very soon (maybe next week) with the "blessing" of the Slovak head of neurology
- my vein is patent, without any hyperplasia, no thrombosis of course, still very slow blood flow (we do not know if it is OK or if it might be a problem)
- it is VERY good fresh air here
Erika

This is a very good report. Bless you, Erika.

[esta]

i hope they find you're slow blood flow problem. Thrilled to hear Dr. Simka is workig on something 'new' for us. his team is the most experienced...yahoo.
take care Erika!
thanks

[ErikaSlovakia]

I am back at home, of course extremely tired, weak and dizzy.
As soon as at least a little part of my brain will be able to do something I will post prof. Simka´s presentation and in case I get a permission also a presentation from Dr. Madaric (Slovakia - they have done 7 procedures), too.
Erika

[ErikaSlovakia]

i hope they find you're slow blood flow problem.

Dear Esta!
Maybe it is not a problem at all that my blood flow is so slow.
Science these day simply does not know it. At the moment I can not do anything - some of you know I did a lot, I think maximum.
I understand you are not happy to hear that but we must be patient and wait for new discoveries - I think.
Erika

[esta]

hi erika
i think i have to agree with you -patience for more info...

[ErikaSlovakia]

http://sofista.sk/documents/CCSVI%20&%2 ... 202010.ppt

This is the presentation of prof. Simka from the 18th Slovak Angiological Congress.

I have not mentioned one important thing: he became a professor at the end of September 2010 - so only couple of days ago.
Congratulations prof. Simka!
Erika

[thisisalex]

http://sofista.sk/documents/CCSVI%20&%20MS,%20Slovakia,%202010.ppt

This is the presentation of prof. Simka from the 18th Slovak Angiological Congress.

I have not mentioned one important thing: he became a professor at the end of September 2010 - so only couple of days ago.
Congratulations prof. Simka!
Erika

great stuff thank you very very much Erika, i appreciate your work!

[Johnson]

Thanks for the posting of dr. Simka's presentation, Erika.

I'll see him next week.

[ErikaSlovakia]

This is the second presentation of prof. Simka from the Congress in Slovakia: http://sofista.sk/documents/safety%20of ... 0Simka.ppt

He had 2, so this is the second and last.
This is about the safety of the procedure.

Erika

[nicknewf]

The 6 month benefits seem significant, but not dramatic. Does anyone know if the 1 year results are better?

[ErikaSlovakia]

The 6 month benefits seem significant, but not dramatic. Does anyone know if the 1 year results are better?

There are no 1 year results from Katowice yet.
I was the second patient. The first was done 2 weeks before me and the third I think 1 week after me. I am 11 months after the procedure.
Anyway, I am only one number and it has no statistical meaning.
I am afraid we simply must wait longer time.
Erika