CCSVIhusband wrote:I think the one thing to take away from Lucky's story is that she had improvements after her 1st procedure, but didn't "feel" something was right still. She pushed to get another procedure, and her doctor agreed that something still wasn't right ...
She had a 2nd procedure and, boom, new and better results. (I don't want to speak for her, but we have discussed this off these boards).
Often times I see persons on this board say, I had the procedure, had some results (or sometimes no results) ... and they give up on CCSVI or act lost and depressed.
My advice is to keep advocating for yourself, keep pushing the doctors to challenge their thinking and if they don't, find another one who will. The science will come in time, CCSVI is going to be a HUGE part of this whole puzzle. It can't fix already permanently done damage, but it can do a LOT of other things ... don't get discouraged, go out there and push your doctors for the best treatment they can offer.
Congrats Lucky ... glad you found that doctor of yours!
MegansMom wrote:How wonderful !
I might add that perhaps physical rehab might help some. Obviously the electrical circuits work better with oxygenated juice and can stop spasticity and pain but unused muscles need good range of motion and warming up to see the full gamut.
Remyelination which might be what occurs post- angio takes many months. We know this with other demyelinating diseases such as Guillian Barre ( which is an acute attack of demyelination)
I have seen those patients get better, so we know that re-myelination is possible but it is never fast.
As long as the axons are alive there is hope of re-insulating that cell.
Getting regular exercise, good diet, hydration, and pacing onesself are good ideas
I think maybe good physical rehab may be indicated in certain cases
But with your new shoppong trips you might not need rehab! Bravo!
LR1234 wrote:Hi Lucky
Are you on Blood thinners still? if so which ones?
I hope you continue to feel well x
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