Has anyone had any problems with Clexane?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Has anyone had any problems with Clexane?

Postby Interrupted » Mon Oct 04, 2010 5:29 pm

[Edit: Changed title since realised i'd got the drug wrong]

Since Plavix seems to be the most commonly prescribed anti-clotting drug prescribed after the procedure... has anyone had any problems with it thus far? Or is it well tolerated generally?
Last edited by Interrupted on Fri Oct 08, 2010 5:07 pm, edited 1 time in total.
28/07/10, 04/10/10, 16/11/10 - Dopplers x3 Ireland, Poland, Scotland.
12/10/10 - 1st procedure, Poland. Symptoms worsened. No improvement.
Verdict: I urge caution + am taking a back seat watching research ATM.
13/02/12 - Started Wheldon ABX protocol.
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Postby dunkempt » Mon Oct 04, 2010 7:19 pm

I was dizzy-woozy on Plavix and my lips were numb. Now, neither symptom is unknown to me simply from my MS, but these were strong and persistent. After 3 months (and after checking with my GP) I went off it (just on aspirin since), and those symptoms went back to MS-normal.
To be honest, I couldn't tell you *for sure* what was from MS and was Plavix in that time, but I am happier not being in doubt now.

-d
dx rrms august 2009 (dx CFS spring 1988) off avonex after 3 months
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread
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Postby JCB » Mon Oct 04, 2010 8:16 pm

I have been on plavix for just three weeks, no side affects that I'm aware of. I was hoping my hair would start growing on my head, but the male pattern baldness gene is just too strong. :)
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Postby colapesce » Tue Oct 05, 2010 1:56 am

Plavix and/or Detralex made me feel sick, dizzy and weak. Stopped taking them and started to feel better again.
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Plavix

Postby Rosegirl » Tue Oct 05, 2010 4:48 am

In about a week, my legs were all bruised. It looked like the bruises follwed the veins. I was told to stop the Plavix and just take aspirin (81mg) for 3 months.
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Postby ozarkcanoer » Tue Oct 05, 2010 9:18 am

I have been on plavix since August 17. I had one bleeding incidence from hemhorroids but other than that I am just fine. I have 6 more weeks to go.

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Postby esta » Tue Oct 05, 2010 11:54 am

hi all
have been on Plavex since aug 26th 7 days injections-now pills for a year, plus aspirin....i take a somach pill too, all from katowice, poland and all have had no side effects for me...
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
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Postby Interrupted » Tue Oct 05, 2010 1:04 pm

JCB wrote:I have been on plavix for just three weeks, no side affects that I'm aware of. I was hoping my hair would start growing on my head, but the male pattern baldness gene is just too strong. :)


^ :lol: Worse luck, JCB

------

So it does indeed seem to be generally well tolerated. Good news.
28/07/10, 04/10/10, 16/11/10 - Dopplers x3 Ireland, Poland, Scotland.
12/10/10 - 1st procedure, Poland. Symptoms worsened. No improvement.
Verdict: I urge caution + am taking a back seat watching research ATM.
13/02/12 - Started Wheldon ABX protocol.
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Postby Jaguar » Tue Oct 05, 2010 7:53 pm

I started Plavix in May. No side effects at all.

I won't be going off it anytime soon on advice of IR here.
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Plavix

Postby Kate_PghPA » Wed Oct 06, 2010 4:38 pm

I've been on Plavix 75mg since Dec 2008 for "Hugh's syndrome'

No Side effects, no reactions-no Clots!
Venoplasty 12/26/10 Vas.Surg/ Pgh,PA Angio'd Both IJV

2/9/11 F/U Transcranial Doppler: flowing well
8/15/11 Hosp. Exac. "MS" 1st Spinal lesions EVER seen/ MRI
9/7/11 F/U T. Doppler: flowing well
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Postby BooBear » Fri Oct 08, 2010 8:55 am

I have been on Plavix since August 13. I do bruise easily anyway, so the Plavix did allow for some rather spectacular bruising to occur with some rather minor bumps. How I wish I was more graceful.

Other than that, no side effects worth mentioning. I take my dose right before bed.
Three veins angioplastied.  One renewed life.  
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Re: Has anyone had any problems with Plavix?

Postby mmk » Fri Oct 08, 2010 12:15 pm

Two days after having the surgery, I woke up with terrible pain in all of my limbs to the point that I couldn't even get out of bed. I was burning and felt very itchy. When I turned on my bedroom light, I realized I had hives over my entire body. Obviously, I called the IR who wanted me to come back in immediately. He pronounced it as an allergic reaction to Plavix. Apparently it occurs in one out of every 10,000 patients. He switched me to low dose aspirin (81mg).

I have too have increased bruising. While I typically bruise easily, this bruising is very strange. It starts out with a like small spot and by the end of the day it turns into a larger bruise. I know I didn't bump into things in between my fingers and on other small areas. Is any one else experiencing weird bruising?
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Postby Interrupted » Fri Oct 08, 2010 5:06 pm

Sounds like they sorted you out quickly mmk. I hope you are coping well now?

-----

Ok I got it wrong, it's Clexane they use in Poland, not Plavix.

So backtracking like mad...

How has everyone got on with CLEXANE? Generally well tolerated?

Excuse my mistake earlier :oops:
28/07/10, 04/10/10, 16/11/10 - Dopplers x3 Ireland, Poland, Scotland.
12/10/10 - 1st procedure, Poland. Symptoms worsened. No improvement.
Verdict: I urge caution + am taking a back seat watching research ATM.
13/02/12 - Started Wheldon ABX protocol.
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Re: Has anyone had any problems with Plavix?

Postby Cece » Fri Oct 08, 2010 6:48 pm

That is an impressive reaction, mmk!!!
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Postby vivavie » Fri Oct 08, 2010 10:16 pm

after I had a stent in Poland I was on Clexane once a day for 14 days and Plavix for 6 weeks extended to 6 months by my GP.

I did not feel well on Clexane, I was as if I had a Jello brain When I moved it felt as if my brain move and hit on my skull. Strange feeling, not dizzy.

This time I am on Lovenox (twice a day) until the coumadin level gets to INR of 2. It's been more than 3 weeks but I don't have that feeling.
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