Cece wrote:MS_HOPE, the office staff might not even know that the IR applied for the registry. This was the case in five out of six names given to someone else here for the area he lives in. (Only one of them knew about it.)
That was me...Cece is right, I called the 6 Dr's that the Hubbards sent me, and in 5 of the Dr's offices the staff had no idea that the IR had contacted the Hubbards about the registery.
Also, slightly disheartening, in 3 offices they had no idea what CCSVI was, I had to spell it out and then explain it.... but the 6th has been doing the procedure since August and my wife has an appointment with him on Oct 27.
and although I left my name & number with the other 5, only one other Dr called me back and told me he may be ready to treat by january or February