This Is MS Multiple Sclerosis Community: Knowledge & Support

Lyon,

I am not sure what exactly you are questioning. Perhaps I should reword what I said. I was diagnosed with MS about 10 years ago. I had venous angioplasty in May of 2010. The worst exacerbation in my 10 years with ms started about 4 weeks ago. I have read many of your posts and I think we need more posts with your degree of skepticism.
North

..

Dick Dastardly, you are right, it is important to remember that relapses are possible after the venoplasty.

..

I am saying that relapses are possible even after successful venoplasty. POSSIBLE. It is not that big of a win, DD....

It's why Zamboni recommends continuing to take immunomodulators. We just don't know. Even in CCSVI theory, it's possible that the immune system has been permanently altered as a result of overexposure to the brain; it's possible that iron remains in the brain from before the venoplasty that the immune system will clean out and cause an attack.

..

Lyon,

Yes, I did relapse after angioplasty but I do not think there was a restenosis. At angio, they found two lesions, an 50% stenosis of my azygous and a 100% stenosis of my left brachiocepahlic (aka innominate) vein. They ballooned the azygous but the IR did not want to attempt to balloon the brachiocephalic as this was all very new. I am booked Albany to attempt the ballooning of the brachiocephalic but the chances of success are not likely very good. FYI, I had definite improvement after ballooning the azygous alone. I think this relapse is just because I still have CCSVI. I am a firm believer.

North

Not if a very very few people have relapses post-venoplasty, far fewer than would be expected if no intervention had been done.

North52, do you know why the brachiocephalic ballooning would not have good chances? I am not even sure where the brachiocephalic is.

Lyon, it's ok to take the win, you know. You made a good point. Plus we both know this is overall not a game.

Cece,

The left jugular and the left subclavian vein join to form the left brachiocephalic vein. The stenosis is probably due to scarring from the radiotherapy I had to my chest when I was 17 years old for a cancerous tumour there. The IR said that his experience with lesions of this type was that they were difficult to get through.
North

At least they will give it a try, maybe it will work. Hope so. So it's not that it's in the brachiocephalic that makes it hard, but the type of lesion.

North52 - thanks for clarifying your CCSVI position . Long time TIMS readers know full well that there will be a mixed and -at times - frustrating Liberation result.

Long time TIMS readers also know that some very super smart medical practicioners are making inroads and gains - everyday - .

Each person that undergoes the Liberation procedure ADDS to the growing body of evidence ...... and takes part in helping develope the most effective method of CCSVI medical intervention .

Some say ...... Why is there so many methods of CCSVI treatment ?

The answer is ........ it is to everyones advantage that different methods and procedures be performed ...... and the results studied .




Mr. Success

..

One thing that IS happening, is people (like me) with progressive disease who have not had a remission for 10 years or so, are having improvements. Another thing that IS happening is that people with primary progressive disease (I know one of them, at least) who have *never* had a remission. are having improvements. *Some* of these people are having restenosis, and clots.

Some of those people are having such an obvious reinstatement of their symptoms, they trace the 'relapse' to the appearance of the clot or restenosis.

Once the 'remission' has been experienced, it is obvious to patients and doctors alike that what can be done once can be re-done, and of course it remains worth the big bucks to get more blood Liberation.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

I could be happy with that sort of success, Lyon.

North, I'd be discussing your original points, but they are a bit beyond me. From what I could tell, it was a thorough analysis!

1eye, it's true, I think something remarkable is happening, that has not happened before in the history of this disease. An absolute breakthrough. Can't wait to see what will be proven in the year ahead.

..