Can diet & supplements reduce CCSVI severity?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Can diet & supplements reduce CCSVI severity?

Postby MSUK » Thu Oct 07, 2010 12:50 am

Image

I have just got back from Glasgow, Scotland, where I had my veins scanned at the Essential Health Clinic.

The result was that I have mildly narrowed veins on one side only. Of the 150 patients this clinic has seen so far, only 3 have had stenosis on one side only and I am one of them.

Dr Tom Gilhooly, who runs this private clinic, told me not to bother with angioplasty as it was unlikely to make much difference to me as the stenosis is so mild. He only recommends treatment for CCSVI in severe cases where the stenosis is higher than 60%. ... Read More - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2954
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Postby Daisy3 » Thu Oct 07, 2010 2:39 am

I am finding it hard to believe taht out of 150 people only 3 were found to have stenosis. Surely that cannot be correct?
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Postby MSUK » Thu Oct 07, 2010 2:44 am

Hi Daisy, I think you read that wrong, it means that out of 150, only 3 had "one sided only stenosis", all the rest had stenosis on both sides.........

Hope that helps!

squiffs :D
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Postby Daisy3 » Thu Oct 07, 2010 2:46 am

Ah..

Thanks for that Squiffy:-)
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Stenosis and angioplasty

Postby homefront » Thu Oct 07, 2010 5:30 am

Squiffy

in advising not to have angioplasty, was the azygous vein considered which is not covered by the doppler scan?

Thanks
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Re: Stenosis and angioplasty

Postby Rokkit » Thu Oct 07, 2010 5:52 am

homefront wrote:in advising not to have angioplasty, was the azygous vein considered which is not covered by the doppler scan?

Good point. To me, evidence of ANY problem is reason enough to pursue a venogram.
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Postby MSUK » Thu Oct 07, 2010 5:57 am

Hi, I don't know actually, I am just relaying the story :D
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Postby PCakes » Thu Oct 07, 2010 7:30 am

Good morning.. this all sounds a little odd. Has the 'Essential Clinic' abandonded venogram? I understood it to be the 'gold standard' often uncovering issues missed by MRV & ultrasound?
There is also an 'ad' infused in this message ..
..the new book I have just written called..

hmm..
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Postby tzootsi » Thu Oct 07, 2010 7:56 am

Squiffy, I don't know how you were scanned, but my wife had a similar situation, which turned out to be false. She had a doppler done on both jugulars last year, and some turbulence was found in the left only. Luckily, our IR felt that this was enough to justify getting the procedure done. When he went in, he found BOTH jugulars were blocked to the point they both needed extensive ballooning. I would continue to pursue this.
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Postby MSUK » Thu Oct 07, 2010 8:06 am

Hi all,

It was not ME in this article, it was written my Judy Graham the editor of the MSRC's New Pathways Magazine....

:D
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Postby bluesky63 » Sat Oct 09, 2010 5:27 am

The outstanding person I went to said he was finding very little correlation between what was seen on the doppler, what was seen on the MRV, and what is ultimately found on the venogram. As others have pointed out -- including Dr. Sclafani -- if you have been diagnosed with MS, then you have excellent reason to suspect a venogram would be useful, especially if *any*abnormality has been found on a test.

Of all people, Judy Graham is likely to have done the best she can with diet and supplements but still -- read the experience of Dr. Embry's son. Diet and supplements are crucial, but looking at this piece of the puzzle could bring another layer of health. All the best to her -- and you, Squiffy! :-)
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