Nervous a little...?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Nervous a little...?

Postby canadianguy340 » Sat Oct 09, 2010 1:18 pm

I hope this is ok to post in this part of the forum, certainly relocate if it is not. Im all excited about getting The Liberation treatment done. I have emailed back and forth with The Hubbard Foundation and gona see my doc on Tuesday Oct 12th hopefully get the documents Hubbard requires. But have noticed on a few different blogs where certain people have gotten "worse" or no changes at all. That said I know no one knows the out come and not asking but From what I have read high percentage of people have done well with this procedure more than not. I know like most people with MS sick of hearing "Placebo affect". But can anyone give me their opinon maybe just a kick in the ass and quit thinking/reading into it too much. My MS symtoms are rather mild I would say compared to where it can go. At this point Fatigue,Slight coordination in the legs,slight heat intorrence(Has gotten better) one of the worst things I deal with I guess its MS Hug. Left side just under the ribs have a tight/Knumb spot that seems to come and go. Innitally Feb 08 Knumb left foot this went away, then In June 08 Left leg went week that actually healed up but lately bin feeling my finger tips getting knumb so time is now Screw waiting and waiting for canada to get on the wagon, can anyone give me the gears not to worry about the procedure? Im not affraid to spend the money or the procedure itself just nervous Thanks :-)
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Postby ppicklee » Sat Oct 09, 2010 1:46 pm

I can understand your nerves Canadian Guy but you will be fine. I wish you all the best. If you have done your research and know what to expect i.e. percentages of all aspects of outcomes, you go in being very informed. Again, I wish you all the best :-)
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Postby Cece » Sat Oct 09, 2010 2:02 pm

There have been many many good outcomes with this, but I would also read through pklittle's thread, because those outcomes happen too. Drsclafani has recently taken his stance against stents and I consider his opinion as well-educated in CCSVI and compassionate for the patients as it gets.

The docs are still learning as they go. But if you've made the decision to go for it, then it's because the possible benefits outweigh the possible risks. I have mild MS too compared to many, but it's still MS and it's still a bear.
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Postby PointsNorth » Mon Oct 11, 2010 1:04 am

Howdie C-Guy,

I had the procedure done in Albany this past Thursday. I was nervous too - not so much about the the procedure itself but rather potential outcomes (good+bad). I got the distinct feeling that they are really getting the procedure down (250-300 procedures thus far). I have experienced a substantial reduction in fatigue and cog-fog. Worth the price of admission.

Best, PN
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Postby Jaguar » Mon Oct 11, 2010 5:22 am

I think you'll find that people with the mildest symptoms seem to get the best results from the procedure.
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Postby canadianguy340 » Mon Oct 11, 2010 6:57 am

Jaguar wrote:I think you'll find that people with the mildest symptoms seem to get the best results from the procedure.
Thanks Folks, exactly what I have come to know less the symptoms seems to work better for most. I know for my self don't want to fly across the ocean to get it done and Hubbard is in Sandiego and is only a 3 or 4 hour flight and have been there before. See My Doc Tommorow should be Interesting. When have talked about it before with him He wasn't apposed but did have some concerns about restenosis, But he did mention Copaxone to me once and at this point have decided No DMD'S for me, I know most know the percentages but when my neuro told me 30% chance will slow progression and only seems to work in the beginning course of the diesease and of course the cost Thanks But no thanks D
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Postby Motiak » Mon Oct 11, 2010 7:05 am

For my part, I am waiting. My symptoms are mild and really doctors are still just figuring this whole thing out. Based on what I have read, you have a better chance to feel better than you do to not improve/feel worse but there is a decent chance of no improvement with a small chance of worsening. If you feel your symptoms are such that you are having difficulty living with them then I say go for it. If not, well, then it's your call.
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Postby garyak » Mon Oct 11, 2010 6:09 pm

Nothing to be nervous about. The Hubbards are real people, have a great clinic and the vein clinic they recommend is top notch - I know I was liberated there :)
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