David1949 wrote:Smokey may I ask if you have any history of blood clots, embolisms, or Factor V Laiden and Protein C deficiency?
David1949 wrote:Bear in mind that I'm not a doctor so this is just my non-professional opinion.
The blood clotting problem you have is a factor in the case of the blocked stent but probably not in the case of the restenoses. Prudence might suggest that patients with a history of blood clots are not good candidates for angioplasty or at least not for stenting.
The restenosis is a different problem. We all know that's a common problem for people who have been liberated. Although your veins seem to be especially obstinate. After ballooning they closed up even tighter than they were before. And each attempt to open them makes them close up tighter yet. That's why I think your case deserves study by experts. If they can determine why your veins are so hell-bent on closing up maybe they can figure out how to prevent it. That would be a huge benefit to you and everyone else who has been, or will be liberated.
ikulo wrote:Dania thanks for sharing.
I'm no doctor, but I'm really surprised that testing for Protein C deficiency and Factor V Leiden testing isn't mandatory before venous ballooning and especially stenting. They are disorders that cause venous blood clots! Seems like a no brainer.
Here is more information about Factor V Laiden and Protein C deficiency: http://www.med.illinois.edu/hematology/PtProtC.htm
smokey wrote:Hi Dania, Really really sorry to hear what's happened. I guess we are in the unfortunate minority of people who go on to develop thrombus and/or our veins collapse. I had 2 stenosis in the left IJV high up. Good response to the first angioplasty. The effects lasted about 2 weeks. With the second angioplasty it was found that I have a thrombus and the entrance to the left IJV - the vein is occluded...and the left IJV now appears to have a discontinuation. Hmm. Hope these difficult presentations can be resolved at some stage. I didnt have stents or take anti coagulants. Smokey.
dania wrote:I would just like point out a few facts. Yes, I did get blood clots in the stent. I am prone to producing blood clots but that does not answer why all 3 veins restenosed. There are many others that got blood clots in their stent and some developed clots in the vein where there was no stent. Some restenosed but never developed clots.
The big question what is causing the veins to restenose?
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