Great news! I am headed to Stanford on the 25th for my check up.
Yes, I wonder if you had the option to have another venography? I only ask because I have a return of headaches which were gone shortly after treatment. I want Dake to look inside if he's allowed and if he suggests. I also have stiffness and pain in my left calf, so I wonder about MT.
Could it be that the return or worsening of symptoms could be from permanent damage that somehow was helped by treatment for a while? Maybe this is where the placebo effect comes in? The fatigue and general feeling of well-being seems to hold. Which is huge when considering our quality of life!
The MRI results are very exciting! If there were new lesions, we would be hard pressed to see CCSVI treatment as working. Since no new lesions have been found I believe this is a huge benefit! I haven't been on any DMDs for over a year. so I can't wait to see my MRI. Because the last time I took a break from DMDs for a year I had 4 new lesions.
Best of luck in the next year! Oh, and hurray for those stents!!
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.