October 13, 2010.
They brought the 33 Chilean miners out from the cave-in today.
While they were doing that, I was selfishly thinking of myself. What I was trying to figure out (while they rescued the rescue worker) was, has it all been worth it? It was likely to be dire, since I spent the day coping with a bad stomach, which I blame squarely on Canadian Thanksgiving. I will spare you the details; it wasn't fun.
I should be in bed, but I spent a lot of today in bed already. So, a self-assessment:
My right ear rings. My left is quieter. That I would call a slight improvement.
I talk more clearly. Cognition is not much of an issue. Another improvement.
Paralysis: left arm and foot. No real improvements. I will soon get an exercise machine that may be of help. I was visiting one once a week at a Community centre, now might be able to do it every day.
Head still hurts. Legs still restless (I mean restless -- even if everything else wants to sleep, nope, legs still want to thrash.) Still can't walk past the Seniors' Centre on account of fatigue, non-dorsiflexion of left foot, atrophy of trunk muscles.
A positive benefit has been that I use the walker at all. I was resigned to the wheelchair.
Unsure, I asked Suzanne. She gave me an unequivocal yes. I guess all the little things add up, and she says they were definitely worth it. I am just so frustrated that it is so gradual. But hey, I'm only 56.
I think they have given up on Mrs. C. She has restenosis, clots, and a lot of pain. Drs. won't touch her, because of the blood thinner death. Too public, too risky. Is there no more stuff that can be done? Not on Dr. Zamboni's road. Once when she explained her plight to him (pre-clots), he said something like: it is for you that I do this.
I am off a few medications that I hated anyway. Effexor will effectively prevent any sexual gratification you might attempt. It will also arrange things so that you don't give a damn, too. For some people this might be a good thing. So off that stuff; only 75 mg anyway. Baclofen does what it's advertised to: eliminates spasticity. But in the process, for me at least but I suspect others too: it made the waterworks overflow. So out with the baclofen, for me at least.
Also, I make stupid noises on the piano. This is an adaptation due to complete loss of considerable ability to play the guitar. But I am realistic. Suzanne asked me who I was listening to. God. God? Well, that's what Fats (Thomas) Waller used to call him. Art Tatum. Like I said, I'm realistic.
So I guess the word is that something did something. Will it last? Don't ask a person with stomach troubles. Gives you a very bleak outlook on the future. Those miners were probably better off. Families wanted to visit? Perfect. Put them in the tubes and send them down to visit... you know the drill, if you've ever had a bad stomach.
One of the miners said they were down there with God and the Devil, but God won. Of course, being an atheist means one has to have a different kind of translator standing by. God did not do this. He was too busy with the line-up of souls in places like Afghanistan. The Chilean people, with help from all over, did this. While people often get the blame, for miraculous things they don't often get the credit. This time, I think they deserve it.
And all of you Americans: beware of turkeys...
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
I am not a doctor. Do not take anything I say as medical advice.