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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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Cece
PostPosted: Mon Oct 18, 2010 1:25 pm 
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Over on Facebook, Arlene Hubbard posted the names of some of our other heroes who are at the SIR group meeting in Washington DC today: Dr. Hubbard, Dr. Siskin, Dr. Haacke, Dr. Dake, Dr. Haskel, and Dr. Sclafani. The SIR group is setting the agenda for registries and CCSVI research in North America. Can't wait to hear how it goes.
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garyak
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PostPosted: Mon Oct 18, 2010 5:28 pm 
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can't wait
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David1949
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PostPosted: Mon Oct 18, 2010 5:55 pm 
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garyak wrote:
can't wait


Me 3. :)
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drsclafani
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PostPosted: Mon Oct 18, 2010 8:51 pm 
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David1949 wrote:
garyak wrote:
can't wait


Me 3. :)


you will have to wait. because there is a confidentiality agreement pending publication some time in the future.
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concerned
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PostPosted: Tue Oct 19, 2010 5:56 am 
It seems strange keeping things secret when people are so hard-pressed for information.
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CCSVIhusband
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PostPosted: Tue Oct 19, 2010 5:59 am 
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concerned wrote:
It seems strange keeping things secret when people are so hard-pressed for information.


Why? YOU all keep telling us if CCSVI is going to be accepted, things have to be published and proven ... now they're going to do that, and you want it disclosed up front so you can have another study come out that refutes it before it's ever published.

I guess we can't win for losing here with some people ...
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Cece
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PostPosted: Tue Oct 19, 2010 9:24 am 
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I don't suppose we'll be getting any youtube tapings of the meeting either then!

Over on Facebook, it is said that everyone at the meeting thought CCSVI should be pursued.

And here it was said to be a very stimulating meeting.

These are good things!

update: everything is confidential, lots of very smart people were gathered and are committed to pursuing CCSVI, it was a very good meeting, per the Hubbards on Facebook. Dr. MacDonald attended as well.
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drsclafani
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PostPosted: Tue Oct 19, 2010 10:02 pm 
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concerned wrote:
It seems strange keeping things secret when people are so hard-pressed for information.


i signed a confidentiality agreement. This was just brainstorming. so there is nothing to speak about anyway. Please trust me. nothing is being hidden. when consensus is reached it will be published.
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Cece
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PostPosted: Wed Oct 20, 2010 7:38 am 
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"Just brainstorming"...with those particular brains in attendance!

(I didn't think any of the snippets I gathered violates the confidentiality, but if they do, I will take them down.)
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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