This Is MS Multiple Sclerosis Community: Knowledge & Support

Over on Facebook, Arlene Hubbard posted the names of some of our other heroes who are at the SIR group meeting in Washington DC today: Dr. Hubbard, Dr. Siskin, Dr. Haacke, Dr. Dake, Dr. Haskel, and Dr. Sclafani. The SIR group is setting the agenda for registries and CCSVI research in North America. Can't wait to hear how it goes.

can't wait

Me 3.

you will have to wait. because there is a confidentiality agreement pending publication some time in the future.

It seems strange keeping things secret when people are so hard-pressed for information.

Why? YOU all keep telling us if CCSVI is going to be accepted, things have to be published and proven ... now they're going to do that, and you want it disclosed up front so you can have another study come out that refutes it before it's ever published.

I guess we can't win for losing here with some people ...

I don't suppose we'll be getting any youtube tapings of the meeting either then!

Over on Facebook, it is said that everyone at the meeting thought CCSVI should be pursued.

And here it was said to be a very stimulating meeting.

These are good things!

update: everything is confidential, lots of very smart people were gathered and are committed to pursuing CCSVI, it was a very good meeting, per the Hubbards on Facebook. Dr. MacDonald attended as well.

i signed a confidentiality agreement. This was just brainstorming. so there is nothing to speak about anyway. Please trust me. nothing is being hidden. when consensus is reached it will be published.

"Just brainstorming"...with those particular brains in attendance!

(I didn't think any of the snippets I gathered violates the confidentiality, but if they do, I will take them down.)