like kinks in a garden hose, so are the jugulars in my neck.

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

like kinks in a garden hose, so are the jugulars in my neck.

Postby IHateMS » Mon Oct 18, 2010 2:05 pm

I had an MRV last week. I have the pics, but no report yet. The jugulars look like a helix. Is this considered CCSVI?
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Postby Cece » Mon Oct 18, 2010 6:05 pm

Hope it's not too long of a wait before you meet with your doc!
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Re: like kinks in a garden hose, so are the jugulars in my n

Postby drsclafani » Mon Oct 18, 2010 7:50 pm

IHateMS wrote:I had an MRV last week. I have the pics, but no report yet. The jugulars look like a helix. Is this considered CCSVI?


take care interpreting mrv. unless it is someone with much experience with ccsvi, interpretation can be faulty
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Postby IHateMS » Tue Oct 19, 2010 8:56 am

thanks.... i may try and post pics
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Postby IHateMS » Tue Oct 19, 2010 8:57 am

surprisingly, my neuro ordered the mrv. 8)
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Postby IHateMS » Wed Oct 20, 2010 6:02 am

no stenosis per report. i am sure the radiologist has never heard of ccsvi

the report did indicAte spinal stenosis. :roll:

i think when an experienced IR interprets the images, a diff conclusion will be reached.
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Postby Cece » Wed Oct 20, 2010 6:28 am

How frustrating. Did the MRV follow the Haacke protocol? Did it extend far enough down to where the jugulars meet the subclavical vein (a common problem area)? Do the images look sharp or crappy? If what you describe as a helix is a bright area, then a twist that is darker, then a bright area, did they give any explanation for that? And how the heck did you get your neuro to order an MRV? :)

Are you located anywhere near an IR who is testing and treating? A doppler is will show different things than the MRV, most particularly the reflux.
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