3 Weeks Update:
No improvement, still getting worse in some ways, others not quite so bad in true MS/CFS "one forward 5 back" form. My vision in terms of nerve tetchiness, colour distortions, and light intolerance has actually become painful and the exhaustion unbearable, only I have to bear it because I don't have the energy to fight back, lol. So for anyone reading, this is 50% CFS at play thus not as alarming as it might sound. I'm spending most of my time currently in a zombie state on the sofa, muscles and brain not interacting, hormones swinging from fine one second to just wanting to cry and cry the next, pain and fire in most limbs, unable to focus my eyes for more than a few seconds at a time, not having the energy to talk or string sentences together properly. Horrible sense of doom hanging over me still (man I hate that!) that I know comes from such severe exhaustion. The worst thing in a way if this constant feeling that i'm going to pass out when I try and do anything, a bit like I feel i'm going to have a heart attack - I know I won't, it's just a feeling that i've long recognised but comes as lot stronger and longer at the moment.
Yet i'm still doing the walking. Every day morning and early evening and I will not cave. I know full well how important it is to keep moving through an MS attack that's hitting the legs. I haven't burst into tears yet through sheer stubborness but I can feel it coming, I have not felt this low and ill for a long long time. I have no idea what state my veins are in, i'm guessing they restenosed + a little bit extra because that's where my health is at in alignment.
I still notice sometimes, though, this funny full and heavy feeling in my jugulars after i've exercised sometimes. Takes a short while to dissipate, odd sensation.
Not sure what to do all round really, thought about seeing the neurologist to talk about my eyes, lucidity, and the derealisation that's driving me nuts but not sure I can take being fobbed off again without GBH ensuing
I'll think on it.
Please remember that I am not a normal case so don't base your decision(s) on treatment on anything I have said. I have overwhelming Chronic Fatigue as well as MS and I believe this to be playing a large part in my experience so far. I do not regret having tried the procedure.
28/07/10, 04/10/10, 16/11/10 - CCSVi Dopplers x3 ** 12/10/10 - Poland procedure. Symptoms worsened. No improvement.
13/02/12 - Wheldon ABX protocol for 1.5yrs. Fairly stable but no improvement. Unable to source alternate ABX needed.