CCSVI-Tracking.Com

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Marsei » Wed Dec 15, 2010 7:48 am

A new version of www.ccsvi-tracking.com is released! Aggregated timeline graphs and graphs on treatment details are now available for all visitors of the site to see.
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Postby msjen » Fri Dec 17, 2010 8:44 am

I hope that people with negative results will post and continue posting so others can see what happens. I worry about these people and hear initial comments, but don't hear in the long run if they continue to have issues, maintain, or start to get better from those issues that were unexpected. I hope to have surgery soon and will post so others can learn from what happens to me, no matter what that is. This is my secone procedure, so let's hope re-stenosis is not in the cards again!
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Postby Marsei » Fri Dec 17, 2010 3:14 pm

The objective of ccsvi-tracking.com is to show results of treatments regardless of the outcome. We encourage patients to keep posting so that the results on the long term can be assessed.

As you have been treated you can already participate and fill in the data from the month before your treatment until the restenosis.
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First complete picture of the effect of hundred treatments

Postby Marsei » Mon Jan 03, 2011 12:41 pm

The first complete picture of the effect of hundred treatments over a three-month period. The graph displays the decrease of Fatigue and Average Symptoms and an increase in the Quality of Life.

http://www.flickr.com/photos/55811301@N ... /lightbox/
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Postby Marsei » Sun Jan 09, 2011 12:15 pm

CCSVI-Tracking has reached more than 800 members, more than 500 participants, nearly 400 treatments and more than 1000 months of treatment results.

We invite everyone who has been treated for CCSVI to join the tracking site ( www.ccsvi-tracking.com/ ). We especially encourage patients who have had the treatment but have no or limited results.
There still is a lot to be learned about the treatment and it is important that the tracking site includes all patients regardless of the success of their treatment.
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CCSVI-Tracking reaches 600 participants!

Postby Marsei » Sun Jan 30, 2011 9:46 am

CCSVI-Tracking reaches 600 participants.
We have now nearly 900 members from 33 different countries and nearly 1300 recorded months.
If you have been treated for CCSVI or have a confirmed treatment date, please register at www.ccsvi-tracking.com
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More than 1500 months at www.ccsvi-tracking.com

Postby Marsei » Sun Feb 20, 2011 3:44 pm

CCSVI-tracking now contains more than 1500 months for you to draw conclusions on the effect of the treatment.
We’ve got nearly 1000 members. Please help us pass the 1000 members; if you have been treated for CCSVI or have a confirmed treatment date, register at ccsvi-tracking.com!
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Great site

Postby fiddler » Sun Feb 20, 2011 4:30 pm

Good work! A great site with lots of good information.
...Ted
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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Postby Marsei » Wed Feb 23, 2011 1:33 pm

Thanks Ted!
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Postby se1956 » Fri Feb 25, 2011 9:53 am

Great site !

R.
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Postby Marsei » Mon Mar 07, 2011 11:52 am

Thanks!
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CCSVI tracking passes milestone!

Postby Marsei » Mon Mar 07, 2011 11:55 am

CCSVI-Tracking.com passed 1000 members and now includes more than 500 treatments!
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Version 4 of the ccsvi-tracking site has been released!

Postby Marsei » Sun Jun 05, 2011 7:19 am

Version 4 of the ccsvi-tracking site has been released! This version includes many new features.

- We have included the possibility of other (MS-related) CCSVI treated patients to participate.
- Aggregated Graphs have been extended: graphs on Balance, Muscle Control, Bladder/Bowel, Brainfog, Dizziness, Speech/Swallow and Temperature Sensitivity have been added.
- It is now also possible to display timeline graphs per medical specialist.
- Treatments graphs have been extended with a graph on the number of treatments per participant.
- Graphs on geography: graphs on countries of residence and treatment.
- Graphs on therapies: timeline graphs on the effect of using MS-drugs and diet on the average symptoms.
- Graphs on restenosis:
* Restenosis in different categories.
* Occurence of restenosis distributed over the months.
* The number of restenosis per treatment location compared to the total number of treatments in that location.

If you have been treated for CCSVI, please join! The site gives you the possibility to track your progress and compare it to other participants.
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Promising results over 6 months at www.ccsvi-tracking.com!

Postby Marsei » Thu Jul 14, 2011 2:11 pm

For the first time we've now got results from 200 patients who've tracked 6 months after their treatment!
The graph shows substantial and persistent progress on the average of this group. The first month shows a large improvement, the second month a slight additional improvement and the months after that, the improvements are sustained.

Obviously individual cases vary. The group includes participants with negative- and no effects and participants with different levels of positive effects. The average improvement is a powerful indication of the benefits of the CCSVI treatment.

Participants of the tracking site can view individual results of this group.
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Nine months on the success of the CCSVI-treatment still pers

Postby Marsei » Sun Sep 04, 2011 10:47 am

More than 100 participants of ccsvi-tracking.com have tracked 9 months after their treatment.
The graph shows substantial improvements in the first 2 months and persistence of these improvements in the following months.

Some statistics of http://www.ccsvi-tracking.com:
- More than 1300 members
- More than 850 participants
- Nearly 700 treatments
- Nearly 3500 months
- Participants from 38 different countries

If you have been treated for CCSVI or have a confirmed treatment date, please register at http://www.ccsvi-tracking.com
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