This Is MS Multiple Sclerosis Community: Knowledge & Support

A new version of www.ccsvi-tracking.com is released! Aggregated timeline graphs and graphs on treatment details are now available for all visitors of the site to see.

I hope that people with negative results will post and continue posting so others can see what happens. I worry about these people and hear initial comments, but don't hear in the long run if they continue to have issues, maintain, or start to get better from those issues that were unexpected. I hope to have surgery soon and will post so others can learn from what happens to me, no matter what that is. This is my secone procedure, so let's hope re-stenosis is not in the cards again!

The objective of ccsvi-tracking.com is to show results of treatments regardless of the outcome. We encourage patients to keep posting so that the results on the long term can be assessed.

As you have been treated you can already participate and fill in the data from the month before your treatment until the restenosis.

The first complete picture of the effect of hundred treatments over a three-month period. The graph displays the decrease of Fatigue and Average Symptoms and an increase in the Quality of Life.

http://www.flickr.com/photos/55811301@N ... /lightbox/

CCSVI-Tracking has reached more than 800 members, more than 500 participants, nearly 400 treatments and more than 1000 months of treatment results.

We invite everyone who has been treated for CCSVI to join the tracking site ( www.ccsvi-tracking.com/ ). We especially encourage patients who have had the treatment but have no or limited results.
There still is a lot to be learned about the treatment and it is important that the tracking site includes all patients regardless of the success of their treatment.

CCSVI-Tracking reaches 600 participants.
We have now nearly 900 members from 33 different countries and nearly 1300 recorded months.
If you have been treated for CCSVI or have a confirmed treatment date, please register at www.ccsvi-tracking.com

CCSVI-tracking now contains more than 1500 months for you to draw conclusions on the effect of the treatment.
We’ve got nearly 1000 members. Please help us pass the 1000 members; if you have been treated for CCSVI or have a confirmed treatment date, register at ccsvi-tracking.com!

Good work! A great site with lots of good information.
...Ted

_________________
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com

Thanks Ted!

Great site !

R.

Thanks!

CCSVI-Tracking.com passed 1000 members and now includes more than 500 treatments!

Version 4 of the ccsvi-tracking site has been released! This version includes many new features.

- We have included the possibility of other (MS-related) CCSVI treated patients to participate.
- Aggregated Graphs have been extended: graphs on Balance, Muscle Control, Bladder/Bowel, Brainfog, Dizziness, Speech/Swallow and Temperature Sensitivity have been added.
- It is now also possible to display timeline graphs per medical specialist.
- Treatments graphs have been extended with a graph on the number of treatments per participant.
- Graphs on geography: graphs on countries of residence and treatment.
- Graphs on therapies: timeline graphs on the effect of using MS-drugs and diet on the average symptoms.
- Graphs on restenosis:
* Restenosis in different categories.
* Occurence of restenosis distributed over the months.
* The number of restenosis per treatment location compared to the total number of treatments in that location.

If you have been treated for CCSVI, please join! The site gives you the possibility to track your progress and compare it to other participants.

For the first time we've now got results from 200 patients who've tracked 6 months after their treatment!
The graph shows substantial and persistent progress on the average of this group. The first month shows a large improvement, the second month a slight additional improvement and the months after that, the improvements are sustained.

Obviously individual cases vary. The group includes participants with negative- and no effects and participants with different levels of positive effects. The average improvement is a powerful indication of the benefits of the CCSVI treatment.

Participants of the tracking site can view individual results of this group.

More than 100 participants of ccsvi-tracking.com have tracked 9 months after their treatment.
The graph shows substantial improvements in the first 2 months and persistence of these improvements in the following months.

Some statistics of http://www.ccsvi-tracking.com:
- More than 1300 members
- More than 850 participants
- Nearly 700 treatments
- Nearly 3500 months
- Participants from 38 different countries

If you have been treated for CCSVI or have a confirmed treatment date, please register at http://www.ccsvi-tracking.com