CCSVI-Tracking is a private initiative, run by volunteers, fully independent and has no ties with medical specialists or the pharmaceutical industry.
The site has a link to the Facebookpage
with more information.
The data are based on self-assessments. The assessments are comparative: patients compare their symptoms from one month to another, starting with the month before the treatment. This assures consistency on an ordinal scale.
Furthermore, some of the tests are standardised and/or can be performed by independent professionals.
The way this assessment (basically questionnaires) is setup, confirms to the standards in the social sciences. Research done by medical specialists on the effect of their treatment is very similar.
We feel that this is a practical way to obtain large scale data on the opinion of the patients of the effectiveness of their treatment.
The data is used to create personal and aggregated graphs. As soon as the number of participants is large enough for reliable results, all aggregated graphs will be fully public.
It is not our intention to suggest support for the tracking site from Dr. Zamboni's research organization and the International Neurological Society. The links are just included to refer people to these sites for further information. We will consider being more explicit about this.