This Is MS Multiple Sclerosis Community: Knowledge & Support

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Not as sorry as we are.

-d

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dx rrms august 2009 (dx CFS spring 1988) off avonex after 3 months
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread

Would a tarred-and-feathered lyon be a griffin?

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glad you liked it

fogdweller wrote
[In my case, no harm done, but I suspect I have restenosis and am havinging trouble getting follow-up. The interventionalists at Pacific Interventionalists do not think that restenosis is something they are likely to see, and others don't want to see me for follow up since I have already been treated by someone else.]
This is a big concern internationally, and is becoming an issue. Be ware who is performing for you and that follow up and multiple treatment is available.

Sorry, Marc, for getting all huffy and attracting the wrong sorts of people to your thread...

I am getting kind of tired of this stuff, so I'm taking a leave from the flammability and spurious insults. I never did feel too comfortable trying to answer in kind. It's a bit demeaning. I don't think I need it right now. I have enough problems without lowering myself to writing things like: 'I guess denying things makes them not so.' Gods of science forbid.

I am sorry for the 'half a brain' comment. I just get impatient with people who have more marbles than me and choose to play tiddly-winks. But it's their own choice after all. Notice I said nothing about those with fewer... I'm always up for a game with them.

How am I doing Cece? Not very well, I guess Let me know if there's any good satire appears, will you?

Anyway much of this fooforah by local pundits will likely have blown over by the time I poke my head in around here again, though I will probably watch your blog, Kamikaze.

Number one reason people who have been Liberated disappear from the Internet: suddenly they have a life. All the world's a stage, and I'm leaving on the next one. I won't go away mad, really I won't. Or sad. Thanks for the fish.

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

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It was hard not to be a smart alek when they said they didn't expect it so they weren't lookiong and didn't see any. How can you see any if you don't look? I had sore jugulars for three weeks; some immediate results faded in about three days, and my calf muscels are a little worse than they were before, but otherwise back to about where I was. Dr. Sclafani was concerned and pm'ed me. I won't say more because it was a pm and if he wanted it out there he would have put it on his site, he is incredibly generous about what he is willing to say on a public forum.

As far as my situation, who knows about where I really am, but no luck geting any follow-up so far.

I am not sure why I got the dilsmissive the attitude I got.. Dr. Harris was very proud of the fact that they had trained up under Dr. Haake, and did all this pursuant to Haake procedure, and worked closely with Dr. Haake. From what I can tell Dr. Haake is a PhD expert in MRI with an interest in CCSVI but not the vascular expert that some of our other friends on this site are (imho, Cece, that includes you about a lot of things.) They may be a mill making money off a relatively simple procedure in very high demand. Who knows. I certainly have heard good things about Dr. Arata.

1eye, maybe you are the Scarecrow, he had his brains all along.

fogdweller, I changed what I wrote here into a pm

If only saying it made it true, that would be wonderful, eh 1eye?

Risks of arterial angioplasty are well known and minimal. For all the reasons stated previously and you continue to ignore, venous angioplasty is an entirely different matter and the safety profile remains unknown.

Sorry Lyon,

VENOUS ANGIOPLASTY has been done safely for many many years.....over 20 years although I cannot be exact. But I have been a nurse 38+ years and its been around most of them.

Originally done for venous stenoses and strictures seen in renal dialysis patients, this is NOT a new procedure or new tools , just a new application. It is considered a safe minimally invasive procedure.

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Cat (Catherine Somerville on FB)
MegansMom
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-

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No, this is incorrect. Call a health insurance company if you doubt me. Its considered a very safe procedure. And your implication that it is not does not make it less safe.

Renal dialysis patients who have had venous angioplasty have gone on and lived long lives. Some stay on long time dialysis and some............thousands get renal (kidney) transplants and live long "normal" lives. The angiolasty is merely a small speed bump. My nephew is one. He needed angioplasty during year 1 of his renal dialysis and went on to receive the transplant of his Dad's kidney. They both are doing well by the way and his life expectancy is not influenced by the angioplasty but the Immune suppressive drugs he must be on for the rest of his life.

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Cat (Catherine Somerville on FB)
MegansMom
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-

Well, I listened to the morning edition on WBUR and heard nothing, but a lot of boring political talk....