marcstck wrote:It's quite long, and will likely displease some, and please others.
marcstck wrote:1eye-as I responded on the blog, most of the current research indicates that not all MS patients suffer from CCSVI, so the statement "if you have MS, you need venoplasty" cannot be supported by the facts as they stand today.
Cece wrote:marcstck wrote:1eye-as I responded on the blog, most of the current research indicates that not all MS patients suffer from CCSVI, so the statement "if you have MS, you need venoplasty" cannot be supported by the facts as they stand today.
The statement, "most of the current research," would mean more if there were more research.
No, I agree, we can't support the statement, "If you have MS, you need venoplasty," yet. But I would say that if you have MS, there is a strong association between MS and CCSVI, and venoplasty is among your options, to be determined between you and your hard-found doctor.
1eye wrote:Some people do not have time for future studies. Prevalence is a very high number according to some. 'MS' may be a catch-all, but all types are getting results, which is a Big Clue as far as I am concerned. There are problems with thrombosis, but that is the main one, and stent avoidance goes a long way.
Take the plunge again. We know a lot more now. You won't regret it. Or don't. But you seem to have a bias due to your early exposure to venography. Don't warn off other people, especially the ones in dire need.
While we are at it, please don't prop up the myths about Doppler. It's not magic, can't image the azygous, and not necessary for treatment of CCSVI. You don't need it. It is for screening and follow-up.
drbart wrote:marcstck wrote:It's quite long, and will likely displease some, and please others.
Well written and interesting, but I'm not sure about the comprehensive part.
Re the 25% of "normals" who have CCSVI, don't the participation of family members and the subsequent MS diagnosis of some of the normals invalidate this assertion?
Re the "worthlessness" of MRV .. well perhaps when you're so specific to call out that one aspect of MR, but the total package of MRI, MRV, flow quantification, and fMRI are quite compelling. They not only point out problem areas to IRs (and yes, they need to see malformations in catheter venography), but they also provide a sanity check on the effectiveness of the intervention.
With MR FQ you can very definitely tell post-op if the flow issues have been corrected.
Re your condition, I would be careful about focusing completely on the compression of your jugular. You were present when Dr Sinan gave his talk at SUNY, and can't but be intrigued by the possibility of a more complete treatment of your AZV.
Here's hoping for some broken-field running (and a return to walking for you) so we can focus on getting answers rather than overcoming obstacles and dead weight.
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