If you want to find out about real peoples experiences on CCSVI then I advise that you disregard posts by Lyon, Malden. Motiak, Concerned, Scorpion et al. These posters rubbish any supportive information concerning de-stenosis therapy. However they rarely present alternative information.
I gave one example, which was rubbished by the gang of nay-sayers:
- 2000 people with MS have received diagnosis and therapy with venoplasty.
The nay-sayers do not provide any information (its only 500 not 2000 for example).
Once I supported my case the nay-sayers do not ackowledge the accuracy of my information, just nay-say on something else.
So what is the percentage where MS progression has continued ??
Lets have an answer from the nay-sayers.
Early adoptors take a risk in having an invasive selective venogram and balloon venoplasty when only 2000 others have done this already. The amount of risk you are prepared to take is personal.
Being an early adoptor of any novel medical therapy is not without risk, but MS progression was a greater risk for me after my analysis of the facts. Its your personal decision to take without cast iron guarantees and at a cost around 10-15K USD.
I am a health professional and experienced business analyst and I am prepared to post my name, professional experience and my MS story for all to see. Lyon, Malden. Motiak, Concerned, Scorpion et al hide behind their pen names, ask yourself why you should trust them
Kind regards to all seekers after facts,
Maybe you could just tell us where you are getting your numbers (2000 procedures completed worldwide, 90% of patients with cessation of progression).