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PostPosted: Mon Nov 01, 2010 9:56 pm 
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Columbia University's IRB has approved Dr David Sperling's participation in the Hubbard Foundation Registry!


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PostPosted: Tue Nov 02, 2010 12:58 am 
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Cece wrote:
Columbia University's IRB has approved Dr David Sperling's participation in the Hubbard Foundation Registry!

Excellent!!!
Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse


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PostPosted: Tue Nov 02, 2010 5:43 am 
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woo hoo, the NEis becoming a hotbed of activity. Lets get more answers to the many unanswered questions. I am getting tired of saying I don't know.

Ann

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always look on the bright side of life

Veins opened 10/15/10. RIJV still on the small side. Feeling much better.


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PostPosted: Tue Nov 02, 2010 6:19 am 
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You can see on the map http://tinyurl.com/39mhjkb
that the Manhattan dot has gone red.

Here's the information that has been added:

David Sperling MD, Columbia University
Dr Sperling received IRB approval 11/1/10 from Columbia University, New York City
Columbia University
2960 Broadway
New York, NY 10027
(212) 854-1754
columbia.edu

My 1st post should be in quotes, it was from Arlene Hubbard on the CCSVI Facebook page.


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PostPosted: Tue Nov 02, 2010 9:37 am 
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I happen to know 2 other doctors will be approved in the coming few weeks ... (spoke to both of them personally). IN FACT, they are contacting patients to get them set-up for when they can start-up.

A wave is coming ...


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PostPosted: Tue Nov 02, 2010 10:17 am 
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This is such wonderful news! I am in contact with a Dr. who had been to the Glasgow conference this past weekend & said it was great & we'll be hearing much more on ccsvi.


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PostPosted: Tue Nov 02, 2010 2:08 pm 
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Waiting for the yellow ballons to turn red has been almost as exciting as watching paint dry... until now. This is great news! I hope more will turn red soon.


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PostPosted: Wed Nov 03, 2010 4:15 am 
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Who had the idea of the multicenter IRB? Hubbard himself? This was a genious idea.

Very soon everybody in USA will be treated thanks to this.

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You can get a worldwide list of available sites for CCSVI at http://www.ccsviclinic.info


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PostPosted: Wed Nov 03, 2010 8:40 am 
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The Warren Michigan site is back on the map again. It's still blue but at least it's there again! Great news! It looks like a couple of others have been added as well since the total count is now 18. It was 15.


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PostPosted: Wed Nov 03, 2010 8:41 am 
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frodo wrote:
Very soon everybody in USA will be treated thanks to this.

There are 500,000 people with MS in the US. It will take a while. Plus repeat venoplasties! Thank goodness they are started on it.

CCSVIhusband, that is good news too. Can't wait to see all the dots red. This is different than our regular treating doctors, wtih this registry all the data will be captured and will be used for publications and research. Clinically the docs are ahead of the game, we need that research to support what they're doing.

David, great news!


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