Winnipeg -After care

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Winnipeg -After care

Postby thornyrose76 » Thu Nov 04, 2010 2:02 pm

For those who live in Winnipeg Canada-What have you done about aftercare?
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Postby dunkempt » Thu Nov 04, 2010 2:27 pm

Hey Thornyrose, fellow Winnipegger:
- My GP was aware and on-board and willing to do all blood monitoring, etc.
- I am in contact with a new, non-hostile neuro for neuro follow-ups (hasn't happened yet)
- and I got in to Barrie for a follow-up ultrasound fairly easily ($250 + flight and accommodation)

I have also keep in touch with EuroMedic, and I have budgeted for a return flight and 12-month check-up next spring (~1500 flight and accommodation).

If a 2nd procedure is called for it will cost less than the first, but it will still be money I don't have after a couple of years of MS-reduced earnings. But it can be managed if necessary.

Not perfect, but that's what it is. For me, better than waiting multiple years for all our lobbying to bear fruit.
-d
dx rrms august 2009 (dx CFS spring 1988) off avonex after 3 months
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread
dunkempt
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Location: Heart of the Continent

Postby dunkempt » Thu Nov 04, 2010 3:15 pm

Thornyrose -
Forgot to say, be sure and ask at the CCSVI Manitoba Facebook page as well:
http://www.facebook.com/pages/CCSVI-Man ... 7488603099
-d
dx rrms august 2009 (dx CFS spring 1988) off avonex after 3 months
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread
dunkempt
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Posts: 142
Joined: Sun Nov 29, 2009 4:00 pm
Location: Heart of the Continent

Postby thornyrose76 » Thu Nov 04, 2010 5:50 pm

Thanks a bunch, really appreciate the helpful info! :)
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