burg wrote:CONGRATULATIONS CECE !!!!!!!!!!!!!!!!!!
So happy for you.
Thank you. It's two days later and I'm still wiped out from getting the MRV, plus the driving to and from, and my head has been a block of wood since Monday too, I'm waiting for that to clear. So it was not without sacrifice that I obtained this report.
Yes, I'll do a tracking thread, I am hopeful to have good things to write in it when the time comes. Most of my symptoms align with the things that seem to respond well to CCSVI venoplasty (severe fatigue, cogfog, vision clarity, weakness).
Maybe the equation is "Severity of CCSVI / how well the body compensates + time = MS" and my body has compensated well. Maybe also I don't know how to interpret any of the imaging, so can't really say if my CCSVI is severe or average or what exactly. But most likely there would have been my share of disability waiting in the future as a result of these blockages and the timing of this discovery and treatment means I'll avoid that.
I also am feeling confident since I've now had two different imaging tests done both of which were interpreted as positive for CCSVI. No reason to think the catheter venogram would show any different.
I need more smile emoticons!