Hubbard Foundation tests....

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Hubbard Foundation tests....

Postby Donnchadh » Sun Nov 07, 2010 6:08 am

One of the MRI/MRV tests the Hubbard Foundation tests for is iron.

I was wondering if anyone has had this test and would share the results? Is it in text form or is it an image?

Donnchadh
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Postby Cece » Sun Nov 07, 2010 8:22 am

I know I've seen these results shared in the past. Quick search didn't turn them up. I found this: http://www.thisisms.com/ftopict-14044-iron.html+swi where drbart shared a link to a techtalk given by Dr. Haacke in August. I bet that would be of use. This all fits with where you're going with chelation and concerns about iron, I hope you find the answers.

Here's what cheer said about it:
cheerleader wrote:Thank you, Dr. Bart---
EXCELLENT presentation from the master of MRI.
Must-watching for those who seek to understand what doctors have been finding with SWI, BOLD and fMRI technologies that is leading them to confirm the CCSVI hypothesis and the vascular paradigm of MS.
cheer

and the link itself:
http://www.youtube.com/watch?v=lqDrvNC7Oi8
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Postby Donnchadh » Sun Nov 07, 2010 9:43 am

Cece,

You read my mind! Also the IR who did my first liberation procedure is now attempting to join up with the Hubbard Foundation IRB as his individual IRB proposal has been stalled since March. He is on their "map" as an HB applicant, but his hospital still hasn't have a decision yet.

When I went to the HB website, I noticed that one of their many MRI/MRV tests is for iron. I am becoming more and more convinced that Dr. Zamboni is correct in that deposited iron is the culprit that initiates the cascade of symptoms called "MS." It would be great to have an objective measurement of iron load both pre- and post-op to determine if any changes correlate with symptoms.

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Postby Donnchadh » Sun Nov 07, 2010 10:18 am

I tried to look at the youtube, but I am on dial-up so it's impossible.

Anyone actually have the Hubbard Foundation MRI/MRV tests done?

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Postby ikulo » Sun Nov 07, 2010 11:59 am

I had the tests done. The Haacke report stated that I had no abnormal iron deposition. I may not be the best subject for this test as I was only diagnosed last year.
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Postby David1949 » Sun Nov 07, 2010 9:20 pm

ikulo, may I ask; did they find ccsvi in you?
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Postby drbart » Sun Nov 07, 2010 9:43 pm

ikulo wrote:I had the tests done. The Haacke report stated that I had no abnormal iron deposition. I may not be the best subject for this test as I was only diagnosed last year.


I have studied hh's pre and post procedure Haacke reports. The scans were taken two weeks apart at Hubbard Foundation, but the the reportage of iron was unfortunately very different.

Although the scans themselves are operator-independent, their interpretation is currently still observer-dependent.
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Postby ikulo » Sun Nov 07, 2010 10:26 pm

David - The Hubbard/Haacke protocol found CCSVI -- reflux in both left and right jugular veins, and stenosis in my azygos. A few weeks later, I had my angioplasty. The IR found about a 50% stenosis in my LIJV and 50% stenosis in azygos. Both were ballooned.

DrBart - do you mean pre/post angioplasty reports?


I will try to dig up my iron scans and post them here tomorrow. Maybe someone else can post theirs to compare/contrast.
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Postby Cece » Sun Nov 07, 2010 10:44 pm

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Postby garyak » Mon Nov 08, 2010 11:41 am

The results are given in graph form with text interpretation. I didn't seem to have much iron in the brain but I have mainly spinal cord ms ? I had mine assed at hubbard's
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Postby Cece » Mon Nov 08, 2010 1:01 pm

garyak I shall have to document that use of profanity.... :D
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Postby gothicrosie » Tue Nov 09, 2010 11:32 pm

I had the Hubbard scans and an abnormal iron content found. No numbers were given in the report but there was a scatter chart and I was above the average by about 45 units (visual guesstimate).

I have not had the treatment yet. I am waiting on a local IR's IRB approval.
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Postby SaintLouis » Wed Nov 10, 2010 8:56 am

Cece wrote:garyak I shall have to document that use of profanity.... :D




:lol: :lol: :lol: :lol:
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