CureIous wrote:There's so many subsets, just like MS and CCSVI, and no person would ever say, "I'm not balanced and open-minded".
But others will say it of them....
We just have to rename the middle category. There is a difference between being a diehard believer, who would not give up on CCSVI even if Zamboni himself proved it wrong, and a believer who open-mindedly weighed the evidence and agrees with CCSVI but would reasonably change his mind if the evidence shifted against CCSVI.
Belief/Disbelief based on evidence
Exactly. I am 100% "in the bag" for stents.
Specifically 4 stents. 3 on the right side of my neck, 1 on the right side.
But if those stents went into someone elses neck or elsewhere, I would then ask them "are you for or against?", because I would not dare to TELL them WHAT they were. Perhaps they had a bad experience and are against. I allow the freedom to express that, it is a valid argument from their POV.
Some may say "hell no, angio all the way hurrah!". Fine, go for it, I'll drive you to the clinic myself and pick you up afterwards, I certainly wouldn't feel a need to convince you of your need for stents, I may ask a few questions about it, like, "have you considered stents" and such, but not with a proselytizing tone.
Some may say, "you aint touching my body til I feel as safe as I can possibly be about the subject". Great, then wait. Good for you, don't do anything you feel uncomfortable with, there's too much at stake here. (And here's a few links to educate yourself in the meantime, warnings included).
Somehow the above groups get systematically swept up into the scientific world's criteria. Stasis is the best place for some right now, they have the luxury of time on their side. Some don't. We all know that.
Somehow, it has become commonplace to sweep the positive results group into the "not so believeable due to bias" category, contrasted with the negative results category which NOBODY questions, ever. Nor should they. Who am I to tell someone they DIDN'T have a bad experience? I might say to wait a few months, as some are in a rush to thumbs up/down in 48 hours, and that's simply not enough time to know one way or the other. It could go sideways, give it time. It could get better, give it time. You knew that going in, this was a long-haul approach not a one-shot cure.
So all this talk about the bad experiences not being "shouted from the rooftops" is utter nonsense. There's an entire facebook group devoted to such, there's humongous threads here devoted to such. Every single article on CCSVI I have EVER seen, since 2009, begins or ends with the negative stuff. The headlines alone are enough sometimes to halt people in their tracks. Talk about shouting from the rooftops, don't get no bigger than worldwide media vs. message board postings eh?