Sotiris thank you so much for your great answer!!!
Cece, I was tested at Dr. Sandy McDonald’s clinic in Barrie. I think he used to offer a consultation after but now, he is generously testing so many people (for free) and giving so much of his time that we do not get a consultation after. Our results are faxed to the referring physician. Dr McDonald and his technician were trained by Dr Zamboni in Italy. I know that the testing was performed properly. I just need to find out what this means.
I have an appointment to be treated in Albany next month but I really do not want stents to be used and I am hoping that what I have can be treated (i.e the VVs cannot be treated today as far as I know). I am also trying to evaluate if I want to keep my appointment right now (and having a better understanding of my problems would be helpful). I would love to have a better understanding of what my problems are.
One thing I should note, I always feel sick and tired when I wake up in the morning and I only start feeling better in the evening. After I wake up, I usually have a new symptom for at least 10 minutes (either poor vision in one eye, a very numb hand etc...). I tried inclined bed therapy and raised my bed 6 inches and noticed some improvements in how I was feeling upon waking up for about one week. Then, I stopped seeing any improvements. A few months later, I raised my bed even more (12 inches at the head) and I have been feeling a lot better in the morning. Before I was tested, I thought I would have problems with my IJVs because of this.
I have numerous spinal cord lesions (in addition to brain lesions) so I guess it is fair to assume that the azygous vein has some problems that will need to be addressed.
Cece...you can talk about your problems on this thread as much as you like
Anyone else can feel free to comment on my results as well and what you think it means.
I'm adding two additional question; there is no way to fix VVs problems today right? How might we address problems in the VVs in the near future?
Another question: I have been diagnosed with RRMS for the past 10 years. However, I have a lot of spinal cord lesions (and many many brain lesions which is less common in PPMS). Are these types of problems (problems with VVs and or azygous vein) usually associated with PPMS instead of RRMS?