A friend, after a recent full day MS assessment shared the following...
Bit of background, diagnosed 5 years ago, middle aged, first symptom - foot drop.
Now, 5 years later, same foot/leg severly diminshed function - wearing a brace - using a cane, bladder/bowel issues, severe fatigue and cognitive issues. Copaxone injections for past 2 years.
During the assessment was asked when last MRI took place, admitted to ccsvi MRV and doppler. Doctor's response was angry and frightening. Why would you even be interested? You are not in a wheelchair? It is dangerous! Vascular surgeons do not angioplasty veins. If you travel out of Canada and something goes wrong, your insurance will not cover you! Are you willing to lose your house? You are not going to get better, you are going to get worse..you need to understand that.
No science, no facts.. just an emotion filled attack on a vulnerable and already frightened person who in no way had decided for or against pursuit of ccsvi treatment.
What is going on?
I am not in Alberta, is there someone, or a group, in the Edmonton area who might be able to lend some support? Please pm me.. thank you.