Egypt in December.

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Egypt in December.

Postby L » Fri Nov 12, 2010 3:46 pm

OK, after being put back a couple of times I shall now be in Dr Sinan's care over the first week of December in Alexandria. I don't suppose anybody else will be there?
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Postby Perky » Sat Nov 13, 2010 3:47 am

I love Egypt and its warm and friendly people. Have you been before? If I were you, I would be very tempted to combine getting my veins widened with a relaxing week in Sharm!

Good luck to you, and I hope you see the very best results.
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Postby L » Sat Nov 13, 2010 4:32 am

Nope, never been before. I'm excited! Can't wait to try out my newly learnt Arabic. Thanks Perky.
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Postby ConstableComfortable » Sun Nov 14, 2010 10:50 am

HI L

Can I ask how much they are charging in Egypt? I did a Google but couldn't find costs readily available.

I have been looking into the cost of going to Belgium after a recommendation from someone on TIMS who had their procedure done for around 1300euro. Coupled with easy access via Eurostar it seems like a possibility.
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Postby L » Sun Nov 14, 2010 11:04 am

ConstableComfortable wrote:HI L

Can I ask how much they are charging in Egypt? I did a Google but couldn't find costs readily available.

I have been looking into the cost of going to Belgium after a recommendation from someone on TIMS who had their procedure done for around 1300euro. Coupled with easy access via Eurostar it seems like a possibility.


5,500€ it is.

I was thinking of Belgium myself, the Eurostar would have been so easy you're right.

I too read here of a reasonable price for Dr Beelen but when I contacted them (he deals with patients through office@royaldoctors.com now) the price I was quoted was much higher. I can't find the email but it was in the same price range as Dr Sinan I think (although I'm happy to stand corrected).

I was using Google translate to look for testimonials on Dutch and German CCSVI sites and it seemed that quite a high percentage of the few that I found didn't report any treatment of the azygous. I thought this really important for me and so decided to go with Dr Sinan (who reckons that 95% of MS patients need to have the azygous treated and uses balloons there as diagnostic tools).
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Postby ConstableComfortable » Sun Nov 14, 2010 11:22 am

L wrote:
ConstableComfortable wrote:HI L

Can I ask how much they are charging in Egypt? I did a Google but couldn't find costs readily available.

I have been looking into the cost of going to Belgium after a recommendation from someone on TIMS who had their procedure done for around 1300euro. Coupled with easy access via Eurostar it seems like a possibility.


5,500€ it is.

I was thinking of Belgium myself, the Eurostar would have been so easy you're right.

I too read here of a reasonable price for Dr Beelen but when I contacted them (he deals with patients through office@royaldoctors.com now) the price I was quoted was much higher. I can't find the email but it was in the same price range as Dr Sinan I think (although I'm happy to stand corrected).

I was using Google translate to look for testimonials on Dutch and German CCSVI sites and it seemed that quite a high percentage of the few that I found didn't report any treatment of the azygous. I thought this really important for me and so decided to go with Dr Sinan (who reckons that 95% of MS patients need to have the azygous treated and uses balloons there as diagnostic tools).


Excellent. Thanks for the info.
Best of luck.
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Postby Bear2 » Sun Nov 14, 2010 3:26 pm

It was 7000 US in September, go to Facebook page for Egypt.

http://www.facebook.com/group.php?gid=1 ... 732&v=wall
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how to contact Dr Tariq

Postby bunny82 » Tue Nov 16, 2010 6:20 am

Hi Guys,

This is my first post here, but I've been reading for about a year... :D
I'd like to contact Dr. Tariq so would like to ask you guys: is it still Kathleen (klynch56@earthlink.net) we need to contact for further info? I have found this email address but am not sure whether this is the correct one to use or does she only deal with North America? I'm from London. Thanks a mill for any info!
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Postby Cece » Tue Nov 16, 2010 8:07 am

welcome to the site, bunny82! :)

L, congrats, I think Dr. Sinan is an excellent choice!
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Postby L » Tue Nov 16, 2010 8:24 am

Cece wrote:L, congrats, I think Dr. Sinan is an excellent choice!


Yeah. What I was worried about was the azygous vein being under treated, this definitely won't be the case with Dr Sinan. If I see no improvements then I won't spend the rest of my life wondering whether or not something was overlooked..

bunny82 - hello there. Try Hatem - hatem.abouzeid AT cb-betna.com.

PS Bear2 mentions $7,000 US and he's quite right they do price their treatment in USD. With the exchange rate when I was first looking it worked out at 5,500€ (although it's only 5,100€ today.) I must have been making comparisons with European treatment centres..
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Postby Cece » Tue Nov 16, 2010 9:24 am

If it holds true that he's only seeing 2% restenosis rates, then that's another reason to go with Dr. Sinan.

Do you happen to know what he uses for anticoagulants?
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Postby CCSVIhusband » Tue Nov 16, 2010 9:29 am

I think Dr. Sinan is an excellent choice ... as long as you can get follow-up back in the UK.

I'll say that a few doctors (my wife's doctor who we're preparing for our 6 month check-up with) is saying that more and more they're using larger balloons and seeing good results.

Innovators ... love it.
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Postby bunny82 » Thu Nov 18, 2010 2:57 am

L wrote:Yeah. What I was worried about was the azygous vein being under treated, this definitely won't be the case with Dr Sinan. If I see no improvements then I won't spend the rest of my life wondering whether or not something was overlooked..


Hi L,

Many thanks for the email address; I have the very same reasons to go to Dr Sinan and I'm sure we are making the right choice with him. I've just found out I'm going in January, can't wait... :)
May I ask whereabout in the UK you are from and which airline you are flying with? I've done a search and so far BMI seems to be the cheapest option for me (flying from Heathrow); it costs £ 326 return. Not bad, I think, although I've never been to Egypt so don't have much to compare it with.
Also, have you got your hotel booked yet? I will contact Kathleen/Hatem in the afternoon and ask for their recommendations too, but am wondering where you are staying... Thanks a mill!!!

Cece, thank you so much for your lovely welcome and good luck on your journey!
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Postby L » Thu Nov 18, 2010 6:47 am

Hi bunny82. We're staying at the Hilton Green Plaza. That choice was determined mainly by the fact that they have accessible beds.

And we're flying BA, for about the same price that you are paying. I was going to book Egyptair but then my dad decided to accompany my girlfriend to help her out and then my brother decided to come just for fun/to help out my dad and everyone decided that BA would be easier with the wheelchair. I know for sure that BA is fine but I'm not sure about EgyptAir so that probably wasn't a bad decision.

I sent you a PM the other day but perhaps you haven't found the messages here yet. It would be great if this site alerts you when you have a new message by default..

Anyway, I'll be able to tell you all about it in a fortnights time. Oh, I'm in London by the way.
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Postby NHE » Fri Nov 19, 2010 3:09 am

Hi L,

L wrote:It would be great if this site alerts you when you have a new message by default.


You can get email alerts for a new message as well as a popup alert when you login. See this FAQ for the changes you can make to your account preferences.

http://www.thisisms.com/ftopicp-60896.html#60896

There is also an alert at the top of each page that indicates the presence of new private messages.

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