NEXT STEP IN THE MS TREATMENT

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

NEXT STEP IN THE MS TREATMENT

Postby Rici » Sat Nov 13, 2010 11:10 am

Hi
I was in the hospita l from Monday 09.Nov. On Tuesday morning, 09.XI professor from Israel came to Warsaw to help in the surgery. Began to study the preparations for surgery to take place on Wednesday 10.XI. Ultrasound and angiography at a table that is where operations and involves ballooning stents are make. While ultrasound has found a valve that can be removed. In the leg, in the stomach and in the hand under my armas well. However, when examining the jugular vein on the right side there was no reflux or turbulence found. The left side is also good flow (where the stent). Then angiography. The professor was at all times by me.(Very nice man I must say) Double-checked the right vein and ... there is no reflux, and no turbulence!. SHOCK! My body just repaired it, after11 months the damaged was recovered. But I feel bad. Barely walk. Professor, associate professors here on the spot, Dr. Schelling of Austria ordered the exact MRI of the spine and the draining veins cerebrospinal fluid. The problem is in the spine and spinal cord, ie in the veins: Cavas sueprior upper cava to the internal cerebral vein cerbri which nourish the spinal cord. Dr. Schelling told me on 10th Nov. evening, that the problem is here. Many people according statement of Dr. Schelling has this problem. These are the ones that do not have the jugular vein deformation. The same says professor and associate professor. It makes no sense to operate jogularis, as it repaired itself!. On 11.XI morning MRI and figh tgo on. In this hospital is all under one roof. You do not need to ride on the MRI. Hospital is of the high categroy. Professor from Israel did not stay for Wednesday. He returned to Israel earlier (in Israel for a medical visit to him you have to wait 2-3 months ...). CD with MRI tests ordered by dr Schelling agreed with the Professor (Cavs superior upper cava to the internal cerebral vein cerbri which nourish the spinal cord) was already send to Austria to Dr Schelling. My odyssey continues...

p.s.For such a studies Dr Schelling was waiting for many years. Now talking to assistant professor, who confirmed the possibility of the tests ordered by Dr Schelling. This could be the missing element in the MS removal treatment.
Regards
Rici
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Postby esta » Sat Nov 13, 2010 11:59 am

Rici., you do get around!
i've said it before (after angioplasy then stent- RJV), i don't think i'm, done yet...thanks for you're never give up attitude, it sure gives me hope :)
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
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Postby blossom » Sat Nov 13, 2010 12:47 pm

rici, you are certainly being put through the mill. i hoped you would be up and running again when they got this resolved for you.

it does sound like because of your case it is bringing a better understanding to ccsvi.

i'm sure you have read happypoet's experience since she is trying chiro.

so, thanks for keeping us updated. you are not alone having had the ccsvi procedure and still getting worse and hopefully soon we all will be helped.

the best thoughts to you.
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Postby HappyPoet » Sat Nov 13, 2010 1:07 pm

Rici,

Wow! We're so happy for you... it's wonderful that your vein repaired itself and that you have NO reflux and NO turbulence! Is the surgery for the valve replacement canceled? Do you still have CCSVI according to Dr. Zamboni's five criteria?

You are definitely on an oddesy! Now you need to rest and get stronger -- I'm sorry you have so many symptoms. Hopefully, your symptoms will improve. You will continue to be in our prayers.

Thank you for the update!

Warmest regards,
Bronic & Pam
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Postby Cece » Sat Nov 13, 2010 1:12 pm

That is fantastic news. Glad to hear your jugulars are in good shape, now for those spinal cord veins! Wishing you the best.
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Postby Rici » Sun Nov 14, 2010 7:48 am

Hallo Everybody,
Thanks you all for supporting me. I am in good hands anywhere - here is the picture of the hospital I was in: http://www.ccsvi-ms.pl/szpital/img248.jpg Doctors from that hospital are consulting my case with Dr Schelling and agree for a cooperation with professor from Israel - same who came for my surgery. Professor promised me to fight till the happy end in my case. They both Dr Schelling and professor are consulting each other also. Are waiting for a CD with examination to come . Professor asked me not to worry. He said it is much better I do not need this very complicate surgery.
Greetings
Rici
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Postby HappyPoet » Sun Nov 14, 2010 11:54 am

Rici wrote:Hallo Everybody,
Thanks you all for supporting me. I am in good hands anywhere - here is the picture of the hospital I was in: http://www.ccsvi-ms.pl/szpital/img248.jpg Doctors from that hospital are consulting my case with Dr Schelling and agree for a cooperation with professor from Israel - same who came for my surgery. Professor promised me to fight till the happy end in my case. They both Dr Schelling and professor are consulting each other also. Are waiting for a CD with examination to come . Professor asked me not to worry. He said it is much better I do not need this very complicate surgery.
Greetings
Rici

You're in very good hands with all those doctors! We're very happy for you!! :D

Dr. Schelling is very kind. He replied to all our emails, and his answers to our IJV valve questions stopped our worries. The CCSVI and CCVBP thread, started by Dr. Michael Flanagan (uprightdoc), talks about Dr. Schelling's theories. Please tell him HappyPoet and Bronic say hello and thank you!

Wow! A new flat-screen TV!! Your hospital room looks like a hotel room!!! :D

Your case is very important, so please keep us updated with details, lots of details. Thank you!

Best wishes,
Bronic & Pam
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Postby silverbirch » Sun Nov 14, 2010 3:53 pm

rici this is good news Im very pleased that you have answers and hope again long may it continue for you xxx
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Postby Pepe » Mon Nov 15, 2010 3:51 am

Rici, thanks for sharing your odissey.
All the best,
Pepe.
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.
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Postby Puma » Mon Nov 15, 2010 12:41 pm

Hi Rici,

We are together with you in your fight. By the way the hospital looks really of a high class.
Keep warm
Puma :twisted:
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Postby Ruthless67 » Tue Nov 16, 2010 10:32 am

Rici my friend,

It is good to see your face and to read that you do not need the complicated surgery.

The body sure is a complicated and miraculous thing, what a wonder and marvel. I am so happy to read your statement, "It makes no sense to operate jogularis, as it repaired itself!."

I am also delighted to hear the confidence you have in your proffessor's and that Dr Schelling is there for you 100%.

Warmest Regards,
Lora
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Postby David1949 » Tue Nov 16, 2010 12:51 pm

Best wishes to you. I pray the doctors will be able to fix your problem and also learn more about this evil disease in the process.
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Postby Rici » Tue Nov 16, 2010 1:27 pm

Ruthless67 wrote:Rici my friend,


I am also delighted to hear the confidence you have in your proffessor's and that Dr Schelling is there for you 100%.

Warmest Regards,
Lora

Thank you Lora

David1949 wrote:Best wishes to you. I pray the doctors will be able to fix your problem and also learn more about this evil disease in the process.

Thank you David

Dr Schelling is on the trail! I talked to him a few hours ago. He has my MRI CD
Greetings
Rici
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