Symptom Improvements

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Symptom Improvements

Postby npost999 » Sat Nov 13, 2010 2:49 pm

I know I have read about many of the improvements some are experiencing following angioplasty & seen the videos of folks walking better. But I wanted to see how many people have seen changes in their bladder issues, had improved sleep & less fatigue. Also, I've heard some people have better heat intolerance, but I'm curious what type of heat we are talking about. I'm from South Texas and the heat there is unbearable to me due to the temperature and humidity. I'm just wondering if I'd be able to handle the heat better after the procedure along with seeing improvements on the bladder etc. side of things.

Thanks in advance for any & all posts.
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Postby prairiegirl » Sat Nov 13, 2010 3:04 pm

Other than checking out the tracking threads on this forum, you could check this: http://www.ccsvi-tracking.com
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response

Postby NormB » Sat Nov 13, 2010 6:15 pm

Hi,
In my case since my angio last Oct 30, I have seen many but subtle changes though one I find a very good change is with bladder control. Before when I had a beer or wine glass at or before supper I sensed the urgency within 15 or so min. and now I feel my bladder control as a normal person. For heat intolerance it is hard to explain since here in Canada it is getting more and more on the freeze side and to this I think my position has not changed too much. My feet feels cold but we have 6 more months of winter ahead then the heat will be felt and we shall see.Hopefully better I hope.
So there a glimpse of hope but definitevely a bit better symptoms managements.

Take care and do believe that the angio is beneficial from a person that experienced it.

Normb
'92 diag RR - '05 SP
On LDN since Sept. 2012 with better quality of life.
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Postby dunkempt » Sun Nov 14, 2010 3:01 pm

Yes, bladder problems (never big) completely resolved, fatigue vastly improved, heat intolerance not present even in the hot summer (we have a continental climate here; hot days are hot, thought not Texas hot - but the hot days have been hard to endure for years and years, and post-liberation I hardly noticed the heat at all.
-d
dx rrms august 2009 (dx CFS spring 1988) off avonex after 3 months
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread
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Re: response

Postby npost999 » Mon Nov 15, 2010 7:30 am

NormB wrote:Hi,
In my case since my angio last Oct 30, I have seen many but subtle changes though one I find a very good change is with bladder control. Before when I had a beer or wine glass at or before supper I sensed the urgency within 15 or so min. and now I feel my bladder control as a normal person.

Take care and do believe that the angio is beneficial from a person that experienced it.

Normb


Thanks for the info & I especially like to hear that about the bladder! I've not had a drink in several years and I miss having a beer from time to time, but I feared the effects it would have on the bladder.

I'm in the works with a local IR to get the angio, but also on the major lists around the country if this falls through.

One other symptom I forgot to ask about is spasticity, anyone seem any improvement in this? I'm on Baclofen & if I could get off most or all drugs I'd be a happy guy.
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Postby thornyrose76 » Mon Nov 15, 2010 2:02 pm

anybody had improvement in neuro pain post treatment? My legs and feet have horrible burning pain.. .has anyone see this disappear afterward?
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