I hadn't thought about the toll that travel would take as an extra factor. And I agree that it's harsh he even had to travel.
In my own CCSVI experience, part of the agreement was that the vascular professional who performed my procedure wanted to know who was going to be my follow-up physician and who to send records to. But I have always assumed that for any emergency, CCSVI or not, part of my plan ought to be my own local ER.
In the past I have had MS treatment that was considered experimental by my local doctors (IVIg when it was very new for MS), and it was prescribed and overseen by a specialist located far, far away. Twice I did have an emergency; I did go to the local ER; I did have some explaining to do, some raised eyebrows from people who had no idea what I was talking about or who didn't agree with the idea, but no less expert care.
Putting myself in other people's positions, I can't fathom an ethical medical professional saying, "Go back to your original doctor -- we won't take care of you here -- yes, I know you're having a medical emergency right in front of our eyes, and you might be dying, but you should have planned for that."
They don't even do that to junkies or criminals.
OK, I should stop now, since I have tried to tell myself to never post when I'm emotional!