newveins wrote:No you are one among many since we are many treated and only have a handful of doppler places in the country that do the Zamboni protocol.
andisue50 wrote:I saw that Dr. Sclafani recommends follow up dopplers at 1-3-6 months.
Cece wrote:Yes, we need such a list, and we need it as a sticky here (and if we need to reduce or merge some of the stickies to make room for it, I'd like that too). Right now there are far too few doppler ultrasound technicians who know how to do a CCSVI doppler. And doctors who are treating CCSVI are not all doing so openly.
This doc is in Miami, he's listed himself in the sirweb find-a-doctor listings as doing CCSVI:
1.Barry T. Katzen, MD, FSIR - (786) 596-5990 begin_of_the_skype_highlighting (786) 596-5990 end_of_the_skype_highlighting
Miami, FL - Baptist Cardiac & Vascular Institute
As it is, with a four-hour commute for follow-up care, you're actually better off than most.
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