Restenosis after 2nd or 3rd procedure

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Restenosis after 2nd or 3rd procedure

Postby anamishguy » Sun Nov 14, 2010 11:07 am

Are there any stats on the rate of restenoses after the second or third angio? I am scheduled for my second procedure in 3 weeks and am curious.
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Postby Cece » Sun Nov 14, 2010 11:25 am

I don't think there are any stats to speak of. I suppose it might depend on what is the cause of the restenosis (elastic recoil, which may happen again, or thrombosis, which might be preventable with the right anticaogulants?). Also if using a different doc, perhaps different techniques will be used or different skill levels at finding the outflow obstructions. I have heard reports here of success after the second procedure but I've heard the alternative too.
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Postby garyak » Mon Nov 15, 2010 9:55 pm

I communicated with Devin Hubbard today and he said ten out of 100 treated patients have restenosed from their first treatment so far-I am one. I will post my results of second try.
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Postby Cece » Mon Nov 15, 2010 10:05 pm

garyak wrote:I communicated with Devin Hubbard today and he said ten out of 100 treated patients have restenosed from their first treatment so far-I am one. I will post my results of second try.

Garyak, I'm sorry to hear that. But I'm glad that there's a second try in the works. How did you discover you had restenosed?
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Postby Johnson » Tue Nov 16, 2010 2:15 am

Cece wrote:...
How did you discover you had restenosed?


You'll know. It's just like a relapse.

For me, I could feel it a couple of days later, and over the next 4 months, all of my symptoms returned.

I had a second round, and felt no benefit. A stent was recommended, but I declined. For me, it was not about clotting stents, migration, fracture, etc. (though they were considerations), it was about location, and other considerations.

I find it curious that Jeff Beal has an occluded stent, but still no return of symptoms. Rici has clear jugulars, but "Turbo MS". What is the difference? Dr. Simka wrote (and said) that he believes "MS" is 'CCSVI and an unknown factor'. I think he is right. I think that the "unknown factor" is bacteria, and a depressed immune system (put that in your auto-immune pipes and smoke it). I have undertaken a therapy that targets chronic bacteria (Lyme, and co-morbidities), and while too early to declare Eureka!, I am feeling better. Much better. There are other factors to consider, so only time will tell. Perhaps Jeff's immune system is healthier than Rici's. Perhaps the clot/thrombosis stimulates Jeff's immune system. Perhaps the invasive procedure of venoplasty stimulates the immune system - for varying lengths of time, and effect. Perhaps the foreign body (stent) stimulates the immune response.

Is it possible that +/- 25% of the "healthy" human population has venous stenosis, but lives with it just fine until an "unknown factor" - like a tick bite - tips the balance to dis-ease?

Sorry to stray in my response...
My name is not really Johnson. MSed up since 1993
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Postby Johnson » Tue Nov 16, 2010 2:16 am

Cece wrote:...
How did you discover you had restenosed?


You'll know. It's just like a long relapse.

For me, I could feel it a couple of days later, and over the next 4 months, all of my symptoms returned.

I had a second round, and felt no benefit. A stent was recommended, but I declined. For me, it was not about clotting stents, migration, fracture, etc. (though they were considerations), it was about location, and other considerations.

I find it curious that Jeff Beal has an occluded stent, but still no return of symptoms. Rici has clear jugulars, but "Turbo MS". What is the difference? Dr. Simka wrote (and said) that he believes "MS" is 'CCSVI and an unknown factor'. I think he is right. I think that the "unknown factor" is bacteria, and a depressed immune system (put that in your auto-immune pipes and smoke it). I have undertaken a therapy that targets chronic bacteria (Lyme, and co-morbidities), and while too early to declare Eureka!, I am feeling better. Much better. There are other factors to consider, so only time will tell. Perhaps Jeff's immune system is healthier than Rici's. Perhaps the clot/thrombosis stimulates Jeff's immune system. Perhaps the invasive procedure of venoplasty stimulates the immune system - for varying lengths of time, and effect. Perhaps the foreign body (stent) stimulates the immune response.

Is it possible that +/- 25% of the "healthy" human population has venous stenosis, but lives with it just fine until an "unknown factor" - like a tick bite - tips the balance to dis-ease?

Sorry to stray in my response...
My name is not really Johnson. MSed up since 1993
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